Literature DB >> 35969120

Creating a data commons: The INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT).

Kirk D Wyatt1, Suzi Birz2, Douglas S Hawkins3, Veronique Minard-Colin4, David A Rodeberg5, Monika Sparber-Sauer6,7, Gianni Bisogno8, Ewa Koscielniak6,7, Gian Luca De Salvo9, Martin Ebinger10, Johannes H M Merks11, Suzanne L Wolden12, Wei Xue13, Samuel L Volchenboum2.   

Abstract

In this article, we will discuss the genesis, evolution, and progress of the INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT), which aims to foster international research and collaboration focused on pediatric soft tissue sarcoma. We will begin by highlighting the current state of clinical research for pediatric soft tissue sarcomas, including rhabdomyosarcoma and non-rhabdomyosarcoma soft tissue sarcoma. We will then explore challenges and research priorities, describe the development of INSTRuCT, and discuss how the consortium aims to address key research priorities.
© 2022 The Authors. Pediatric Blood & Cancer published by Wiley Periodicals LLC.

Entities:  

Keywords:  data aggregation; pediatrics; sarcoma

Mesh：

Year:  2022        PMID： 35969120      PMCID： PMC9560864          DOI： 10.1002/pbc.29924

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN： 1545-5009            Impact factor:   3.838


  22 in total

1.  Parameningeal rhabdomyosarcoma in pediatric age: results of a pooled analysis from North American and European cooperative groups.

Authors:  J H M Merks; G L De Salvo; C Bergeron; G Bisogno; A De Paoli; A Ferrari; A Rey; O Oberlin; M C G Stevens; A Kelsey; J Michalski; D S Hawkins; J R Anderson
Journal:  Ann Oncol       Date:  2014-01       Impact factor: 32.976

2.  Non-rhabdomyosarcoma soft-tissue sarcoma.

Authors:  Sarah A Milgrom; Lynn Million; Henry Mandeville; Akmal Safwat; Ralph P Ermoian; Stephanie Terezakis
Journal:  Pediatr Blood Cancer       Date:  2021-05       Impact factor: 3.167

Review 3.  The treatment approach to pediatric non-rhabdomyosarcoma soft tissue sarcomas: a critical review from the INternational Soft Tissue SaRcoma ConsorTium.

Authors:  Andrea Ferrari; Daniel Orbach; Monika Sparber-Sauer; David O Walterhouse; Kristian W Pajtler; William H Meyer; Sheri L Spunt; Aaron R Weiss
Journal:  Eur J Cancer       Date:  2022-04-28       Impact factor: 9.162

Review 4.  Molecular testing of rhabdomyosarcoma in clinical trials to improve risk stratification and outcome: A consensus view from European paediatric Soft tissue sarcoma Study Group, Children's Oncology Group and Cooperative Weichteilsarkom-Studiengruppe.

Authors:  Simone Hettmer; Corinne M Linardic; Anna Kelsey; Erin R Rudzinski; Christian Vokuhl; Joanna Selfe; Olivia Ruhen; Jack F Shern; Javed Khan; Alexander R Kovach; Philip J Lupo; Susanne A Gatz; Beat W Schäfer; Samuel Volchenboum; Véronique Minard-Colin; Ewa Koscielniak; Douglas S Hawkins; Gianni Bisogno; Monika Sparber-Sauer; Rajkumar Venkatramani; Johannes H M Merks; Janet Shipley
Journal:  Eur J Cancer       Date:  2022-07-12       Impact factor: 10.002

5.  The International Neuroblastoma Risk Group (INRG) classification system: an INRG Task Force report.

Authors:  Susan L Cohn; Andrew D J Pearson; Wendy B London; Tom Monclair; Peter F Ambros; Garrett M Brodeur; Andreas Faldum; Barbara Hero; Tomoko Iehara; David Machin; Veronique Mosseri; Thorsten Simon; Alberto Garaventa; Victoria Castel; Katherine K Matthay
Journal:  J Clin Oncol       Date:  2008-12-01       Impact factor: 44.544

6.  Prognostic factors in metastatic rhabdomyosarcomas: results of a pooled analysis from United States and European cooperative groups.

Authors:  Odile Oberlin; Annie Rey; Elizabeth Lyden; Gianni Bisogno; Michael C G Stevens; William H Meyer; Modesto Carli; James R Anderson
Journal:  J Clin Oncol       Date:  2008-05-10       Impact factor: 44.544

7.  NCI Thesaurus: using science-based terminology to integrate cancer research results.

Authors:  Sherri de Coronado; Margaret W Haber; Nicholas Sioutos; Mark S Tuttle; Lawrence W Wright
Journal:  Stud Health Technol Inform       Date:  2004

8.  Increased clinical trial enrollment among adolescent and young adult cancer patients between 2006 and 2012-2013 in the United States.

Authors:  Helen M Parsons; Dolly C Penn; Qian Li; Rosemary D Cress; Brad H Pollock; Marcio H Malogolowkin; Ted Wun; Theresa H M Keegan
Journal:  Pediatr Blood Cancer       Date:  2018-09-06       Impact factor: 3.838
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