C Schippers1, D Volk2, M de Zwaan3, J Deckert4,5, J Dieris-Hirche6, S Herpertz6, J B Schulz2,7, H Hebestreit4. 1. Zentrum für Seltene Erkrankungen, Universitätsklinikum, RWTH Aachen, Bahnhofstr. 18, 52064, Aachen, Deutschland. cschippers@ukaachen.de. 2. Zentrum für Seltene Erkrankungen, Universitätsklinikum, RWTH Aachen, Bahnhofstr. 18, 52064, Aachen, Deutschland. 3. Klinik für Psychosomatik und Psychotherapie, Medizinische Hochschule Hannover, Hannover, Deutschland. 4. Zentrum für Seltene Erkrankungen - Referenzzentrum Nordbayern (ZESE), Universitätsklinikum Würzburg, Würzburg, Deutschland. 5. Klinik und Poliklinik für Psychiatrie, Psychosomatik und Psychotherapie, Zentrum für Psychische Gesundheit, Universitätsklinikum Würzburg, Würzburg, Deutschland. 6. Klinik für Psychosomatische Medizin und Psychotherapie, LWL-Universitätsklinikum Bochum, Bochum, Deutschland. 7. Neurologische Klinik, Universitätsklinikum, RWTH Aachen, Aachen, Deutschland.
Abstract
BACKGROUND: Patients with an unclear diagnosis and suspected rare disease pose special challenges to physicians, among others. AIM OF THE STUDY (RESEARCH QUESTION): The ZSE-DUO project aims to establish whether patient care under the joint supervision of a somatic expert and a mental health expert can improve diagnostic efficacy and precision, as well as shorten the time to diagnosis. MATERIAL AND METHODS: ZSE-DUO has successfully recruited more than 1000 patients at eleven national centres for rare diseases in a control and an intervention group. The findings are being analysed by three evaluating institutions. RESULTS AND DISCUSSION: The study is currently in its final phase. The results will be published in further papers.
BACKGROUND: Patients with an unclear diagnosis and suspected rare disease pose special challenges to physicians, among others. AIM OF THE STUDY (RESEARCH QUESTION): The ZSE-DUO project aims to establish whether patient care under the joint supervision of a somatic expert and a mental health expert can improve diagnostic efficacy and precision, as well as shorten the time to diagnosis. MATERIAL AND METHODS: ZSE-DUO has successfully recruited more than 1000 patients at eleven national centres for rare diseases in a control and an intervention group. The findings are being analysed by three evaluating institutions. RESULTS AND DISCUSSION: The study is currently in its final phase. The results will be published in further papers.
Authors: Tobias Mueller; Andreas Jerrentrup; Max Jakob Bauer; Hans Walter Fritsch; Juergen Rolf Schaefer Journal: Orphanet J Rare Dis Date: 2016-06-21 Impact factor: 4.123
Authors: Helge Hebestreit; Cornelia Zeidler; Christopher Schippers; Martina de Zwaan; Jürgen Deckert; Peter Heuschmann; Christian Krauth; Monika Bullinger; Alexandra Berger; Mark Berneburg; Lilly Brandstetter; Anna Deibele; Jan Dieris-Hirche; Holm Graessner; Harald Gündel; Stephan Herpertz; Gereon Heuft; Anne-Marie Lapstich; Thomas Lücke; Tim Maisch; Christine Mundlos; Andrea Petermann-Meyer; Susanne Müller; Stephan Ott; Lisa Pfister; Julia Quitmann; Marcel Romanos; Frank Rutsch; Kristina Schaubert; Katharina Schubert; Jörg B Schulz; Susann Schweiger; Oliver Tüscher; Kathrin Ungethüm; Thomas O F Wagner; Kirsten Haas Journal: Orphanet J Rare Dis Date: 2022-02-14 Impact factor: 4.123