| Literature DB >> 35885681 |
Erika Zelko1,2, Larisa Vrbek3, Melita Koletnik4.
Abstract
Educating and raising awareness among lay members of the public about palliative care can significantly improve the care for terminally ill patients and their quality of life. This paper reports on the survey aimed at assessing the experience and expectations of participants in the Last Aid course launched in Slovenia in 2019 to train hospice volunteers and promote dialogue on death and dying. The course implementation was supported by materials prepared, translated, and/or adapted from German under the PO-LAST project, which linked Slovenian medical and healthcare professionals, hospice representatives, and university students. The Last Aid course follows an international four-module curriculum that has been successfully applied in 18 countries so far. In Slovenia, the course was delivered 30 times with 21 in-person deliveries and 9 online events attended by 450 participants of different sexes, ages, and professions. The surveyed population included 250 people who returned the evaluation questionnaires by October 2020. The aim of the analysis was to gain insight that can be applied broadly in future work and research on adult education on palliative care and the erasure of death-related taboos.Entities:
Keywords: Last Aid course; education; lay public; palliative care
Year: 2022 PMID: 35885681 PMCID: PMC9315648 DOI: 10.3390/healthcare10071154
Source DB: PubMed Journal: Healthcare (Basel) ISSN: 2227-9032
Last Aid participants—sociodemographic data.
| Number | Share (%) | ||
|---|---|---|---|
| Sex | Men | 37 | 15.2 |
| Women | 206 | 84.8 | |
| Average age (standard deviation) (in years) | 50.44 (16.122) | ||
| Age bracket | Young (under 35) | 48 | 19.9 |
| Middle-aged (35–64 years) | 139 | 57.7 | |
| Elderly (65 years and over) | 54 | 22.4 | |
| Level of education | Primary | 3 | 1.8 |
| Secondary | 62 | 37.6 | |
| Tertiary | 100 | 60.6 | |
Participant ratings for the course and individual modules.
| Rating | The Entire Course | Module 1 | Module 2 | Module 3 | Module 4 |
|---|---|---|---|---|---|
| 1 unsatisfactory | 1 (0.4%) | 1 (0.4%) | 1 (0.4%) | 1 (0.4%) | 1 (0.4%) |
| 2 satisfactory | 0 (0.0%) | 1 (0.4%) | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) |
| 3 good | 2 (0.8%) | 4 (1.6%) | 4 (1.6%) | 5 (2.0%) | 3 (1.2%) |
| 4 very good | 27 (11.1%) | 38 (15.2%) | 50 (20.1%) | 33 (13.3%) | 33 (13.3%) |
| 5 excellent | 213 (87.7%) | 206 (82.4%) | 194 (77.9%) | 209 (84.3%) | 211 (85.1%) |
| Average (SD) | 4.86 (0.436) | 4.79 (0.522) | 4.75 (0.518) | 4.81 (0.493) | 4.83 (0.466) |
SD—standard deviation
Participant ratings by age bracket.
| Young | Middle-Aged | Elderly | Kruskal-Wallis H Test | |
|---|---|---|---|---|
| Average (SD) | Average (SD) | Average (SD) | ||
| The entire course | 4.78 | 4.93 | 4.76 | H = 6.360; df = 2; |
| Module 1 | 4.65 | 4.87 | 4.70 | H = 9.993; df = 2; |
| Module 2 | 4.58 | 4.85 | 4.66 | H = 1.836; df = 2; |
| Module 3 | 4.79 | 4.86 | 4.67 | H = 4.071; df = 2; |
| Module 4 | 4.73 | 4.89 | 4.76 | H = 4.437; df = 2; |
* Indicates statistically significant values at p < 0.05.
Participant ratings (the entire course and individual modules) by sex (Mann–Whitney U test).
| Men | Women | Mann–Whitney U Test | |
|---|---|---|---|
| Average | Average | ||
| The entire workshop | 4.69 (0.796) | 4.89 (0.332) | U = 3.093,5; |
| Module 1 | 4.59 (0.798) | 4.82 (0.456) | U = 3.176,0; |
| Module 2 | 4.51(0.804) | 4.80 (0.437) | U = 2.967,0; |
| Module 3 | 4.69 (0.749) | 4.82 (0.442) | U = 3.342,5; |
| Module 4 | 4.69 (0.749) | 4.85 (0.398) | U = 3.283,0; |
* Indicates statistically significant values at p < 0.05.
Thematic analysis of open-ended questions—results.
| Theme | Categories | Code |
|---|---|---|
| Time | Period before death | 48 |
| Suggestions | Ethical and cultural aspects | 35 |