Literature DB >> 35876948

The role of parental health and distress in assessing children's health status.

Sherrie H Kaplan1,2, Marilou Shaughnessy3, Michelle A Fortier4,5,6, Marla Vivero-Montemayor7, Sergio Gago Masague8, Dylan Hayes9, Hal Stern10, Maozhu Dai11, Lauren Heim12, Zeev Kain13,12,5,14.   

Abstract

PURPOSE: The purpose of the study was to examine the contributions of parents' health and distress to parent's and children's assessments of children's health.
METHODS: We used baseline data from a longitudinal study of 364 children (ages 4-12) about to undergo surgery and their parents in a Southern California pediatric hospital. We used the 20-item child self-reported CHRIS 2.0 general health and the parallel parent-reported measure of the child's health, along with a measure of parental distress about the child's health were administered in the perioperative period. Other measures included parents' physical and mental health, quality of life, distress over their child's health, and number and extent of other health problems of the child and siblings.
RESULTS: On average, parents' reports about the child were consistently and statistically significantly higher than children's self-reports across all sub-dimensions of the CHRIS 2.0 measure. Parents' personal health was positively associated with their reports of the child's health. More distressed parents were closer to the child's self-reports, but reported poorer personal health.
CONCLUSION: Parent-child differences in this study of young children's health were related to parental distress. Exploring the nature of the gap between parents and children in assessments of children's health could improve effective clinical management for the child and enhance family-centered pediatric care. Future studies are needed to assess the generalizability of CHRIS 2.0 to other health settings and conditions and to other racial/ethnic groups.
© 2022. The Author(s).

Entities:  

Keywords:  Children’s health; Children’s self-reported health-related quality of life; Parent proxy reporting; Parental distress

Year:  2022        PMID: 35876948     DOI: 10.1007/s11136-022-03186-z

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   3.440


  36 in total

1.  Quality of life in children and adolescents: a European public health perspective.

Authors:  U Ravens-Sieberer; A Gosch; T Abel; P Auquier; B M Bellach; J Bruil; W Dür; M Power; L Rajmil
Journal:  Soz Praventivmed       Date:  2001

2.  PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

Authors:  J W Varni; M Seid; P S Kurtin
Journal:  Med Care       Date:  2001-08       Impact factor: 2.983

3.  Health-related quality of life in pediatric bone marrow transplant survivors: according to whom?

Authors:  S K Parsons; S E Barlow; S L Levy; S E Supran; S H Kaplan
Journal:  Int J Cancer Suppl       Date:  1999

Review 4.  The uses of outcomes research for medical effectiveness, quality of care, and reimbursement in type II diabetes.

Authors:  S Greenfield; S H Kaplan; R A Silliman; L Sullivan; W Manning; R D'Agostino; D E Singer; D M Nathan
Journal:  Diabetes Care       Date:  1994-06       Impact factor: 19.112

5.  Psychological and quality of life outcomes in pediatric populations: a parent-child perspective.

Authors:  Helena Moreira; Carlos Carona; Neuza Silva; Roberta Frontini; Monika Bullinger; Maria Cristina Canavarro
Journal:  J Pediatr       Date:  2013-07-31       Impact factor: 4.406

6.  Comparing self and maternal reports of adolescents' general health status: do self and proxy reports differ in their relationships with covariates?

Authors:  Dana Garbarski
Journal:  Qual Life Res       Date:  2014-03-06       Impact factor: 4.147

7.  Impact of psychosocial factors on quality of life in overweight youth.

Authors:  David M Janicke; Kristen K Marciel; Lisa M Ingerski; Wendy Novoa; Kelly W Lowry; Bethany J Sallinen; Janet H Silverstein
Journal:  Obesity (Silver Spring)       Date:  2007-07       Impact factor: 5.002

8.  Parental Distress and Stress in Association with Health-Related Quality of Life in Youth with Spina Bifida: A Longitudinal Study.

Authors:  Colleen F Bechtel Driscoll; Joanna Buscemi; Grayson N Holmbeck
Journal:  J Dev Behav Pediatr       Date:  2018-12       Impact factor: 2.225

9.  Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales.

Authors:  Joanne Cremeens; Christine Eiser; Mark Blades
Journal:  Health Qual Life Outcomes       Date:  2006-08-30       Impact factor: 3.186

10.  What factors influence parents' perception of the quality of life of children and adolescents with neurocardiogenic syncope?

Authors:  Teresa Grimaldi Capitello; Caterina Fiorilli; Silvia Placidi; Roberta Vallone; Fabrizio Drago; Simonetta Gentile
Journal:  Health Qual Life Outcomes       Date:  2016-05-17       Impact factor: 3.186

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