Literature DB >> 35875172

Recruitment, retention, and intervention adherence for a chronic illness self-management intervention with the Apsáalooke Nation.

Laurel Fimbel1, Mikayla Pitts1, Mark Schure1, Alma Knows His Gun McCormick2, Suzanne Held1.   

Abstract

Recruitment, retention, and adherence within health intervention research have been understudied in Indigenous communities, where well-known health disparities exist. The purpose of this paper is to describe planned versus actual recruitment, retention, and adherence strategies and the evaluation of retention and adherence strategies for a community-based research study of a Chronic Illness (CI) self-management intervention within an Indigenous community. A Community-Based Participatory Research (CBPR) approach was used to develop and implement Báa nnilah, a culturally consonant educational intervention to improve CI self-management. Reasons for participant adherence and retention were tracked and recorded over time. A post-intervention survey assessed barriers and facilitators to intervention adherence. Overall, recruitment, retention, and adherence methods were successful in enrolling and maintaining participation. Using a CBPR approach and culturally consonant strategies may assist in meeting recruitment goals and improving sustained participation of community members, thus impacting health disparities among Indigenous communities.

Entities:  

Keywords:  Adherence; Chronic Illness; Indigenous; Intervention Evaluation; Recruitment; Retention

Year:  2022        PMID: 35875172      PMCID: PMC9302479     

Source DB:  PubMed          Journal:  Public Health Rev (Minneap)        ISSN: 2641-5356


  32 in total

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Authors:  Christine Makosky Daley; Aimee S James; Ezekiel Ulrey; Stephanie Joseph; Angelia Talawyma; Won S Choi; K Allen Greiner; M Kathryn Coe
Journal:  Qual Health Res       Date:  2010-02-12

5.  What Touched Your Heart? Collaborative Story Analysis Emerging From an Apsáalooke Cultural Context.

Authors:  John Hallett; Suzanne Held; Alma Knows His Gun McCormick; Vanessa Simonds; Sloane Real Bird; Christine Martin; Colleen Simpson; Mark Schure; Nicole Turnsplenty; Coleen Trottier
Journal:  Qual Health Res       Date:  2016-09-21

6.  Case management to reduce cardiovascular disease risk in American Indians and Alaska Natives with diabetes: results from the Special Diabetes Program for Indians Healthy Heart Demonstration Project.

Authors:  Kelly Moore; Luohua Jiang; Spero M Manson; Janette Beals; William Henderson; Katherine Pratte; Kelly J Acton; Yvette Roubideaux
Journal:  Am J Public Health       Date:  2014-09-11       Impact factor: 9.308

7.  Multilevel and Community-Level Interventions with Native Americans: Challenges and Opportunities.

Authors:  Valarie Blue Bird Jernigan; Elizabeth J D'Amico; Bonnie Duran; Dedra Buchwald
Journal:  Prev Sci       Date:  2020-01

8.  Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program.

Authors:  Suzanne Held; John Hallett; Mark Schure; Alma Knows His Gun McCormick; Sarah Allen; Shauna Milne-Price; Coleen Trottier; Brianna Bull Shows; Lucille Other Medicine; Jillian Inouye
Journal:  Soc Sci Med       Date:  2019-10-03       Impact factor: 4.634

Review 9.  A framework for enhancing ethical genomic research with Indigenous communities.

Authors:  Katrina G Claw; Matthew Z Anderson; Rene L Begay; Krystal S Tsosie; Keolu Fox; Nanibaa' A Garrison
Journal:  Nat Commun       Date:  2018-07-27       Impact factor: 14.919

10.  The representation of Indigenous peoples in chronic disease clinical trials in Australia, Canada, New Zealand, and the United States.

Authors:  Valerie Umaefulam; Tessa Kleissen; Cheryl Barnabe
Journal:  Clin Trials       Date:  2022-01-06       Impact factor: 2.486

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