Literature DB >> 35854725

EHR Data Quality Assessment Tools and Issue Reporting Workflows for the 'All of Us' Research Program Clinical Data Research Network.

Noah Engel1, Hongjue Wang2, Xinzhuo Jiang2, Chun Yee Lau2, Jason Patterson2, Nripendra Acharya2, Maura Beaton2, Lina Sulieman3, Nishanth Pavinkurve2, Karthik Natarajan2.   

Abstract

The All of Us (AoU) Research Program aggregates electronic health records (EHR) data from 300,00+ participants spanning 50+ distinct data sites. The diversity and size of AoU's data network result in multifaceted obstacles to data integration that may undermine the usability of patient EHR. Consequently, the AoU team implemented data quality tools to regularly evaluate and communicate EHR data quality issues at scale. The use of systematic feedback and educational tools ultimately increased site engagement and led to quantitative improvements in EHR quality as measured by program- and externally-defined metrics. These improvements enabled the AoU team to save time on troubleshooting EHR and focus on the development of alternate mechanisms to improve the quality of future EHR submissions. While this framework has proven effective, further efforts to automate and centralize communication channels are needed to deepen the program's efforts while retaining its scalability. ©2022 AMIA - All rights reserved.

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Year:  2022        PMID: 35854725      PMCID: PMC9285158     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  14 in total

1.  Advancing the science for active surveillance: rationale and design for the Observational Medical Outcomes Partnership.

Authors:  Paul E Stang; Patrick B Ryan; Judith A Racoosin; J Marc Overhage; Abraham G Hartzema; Christian Reich; Emily Welebob; Thomas Scarnecchia; Janet Woodcock
Journal:  Ann Intern Med       Date:  2010-11-02       Impact factor: 25.391

2.  Lack of Diversity in Personal Health Record Evaluations with Older Adult Participants: A Systematic Review of Literature.

Authors:  Laura Kneale; George Demiris
Journal:  J Innov Health Inform       Date:  2017-01-15

3.  A pragmatic framework for single-site and multisite data quality assessment in electronic health record-based clinical research.

Authors:  Michael G Kahn; Marsha A Raebel; Jason M Glanz; Karen Riedlinger; John F Steiner
Journal:  Med Care       Date:  2012-07       Impact factor: 2.983

4.  Exploring completeness in clinical data research networks with DQe-c.

Authors:  Hossein Estiri; Kari A Stephens; Jeffrey G Klann; Shawn N Murphy
Journal:  J Am Med Inform Assoc       Date:  2018-01-01       Impact factor: 4.497

5.  Multisite Evaluation of a Data Quality Tool for Patient-Level Clinical Data Sets.

Authors:  Vojtech Huser; Frank J DeFalco; Martijn Schuemie; Patrick B Ryan; Ning Shang; Mark Velez; Rae Woong Park; Richard D Boyce; Jon Duke; Ritu Khare; Levon Utidjian; Charles Bailey
Journal:  EGEMS (Wash DC)       Date:  2016-11-30

6.  A Comparison of Data Quality Assessment Checks in Six Data Sharing Networks.

Authors:  Tiffany J Callahan; Alan E Bauck; David Bertoch; Jeff Brown; Ritu Khare; Patrick B Ryan; Jenny Staab; Meredith N Zozus; Michael G Kahn
Journal:  EGEMS (Wash DC)       Date:  2017-06-12

7.  Data model harmonization for the All Of Us Research Program: Transforming i2b2 data into the OMOP common data model.

Authors:  Jeffrey G Klann; Matthew A H Joss; Kevin Embree; Shawn N Murphy
Journal:  PLoS One       Date:  2019-02-19       Impact factor: 3.240

8.  Application of openEHR archetypes to automate data quality rules for electronic health records: a case study.

Authors:  Qi Tian; Zhexi Han; Ping Yu; Jiye An; Xudong Lu; Huilong Duan
Journal:  BMC Med Inform Decis Mak       Date:  2021-04-03       Impact factor: 2.796

9.  Launching PCORnet, a national patient-centered clinical research network.

Authors:  Rachael L Fleurence; Lesley H Curtis; Robert M Califf; Richard Platt; Joe V Selby; Jeffrey S Brown
Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497

10.  A Harmonized Data Quality Assessment Terminology and Framework for the Secondary Use of Electronic Health Record Data.

Authors:  Michael G Kahn; Tiffany J Callahan; Juliana Barnard; Alan E Bauck; Jeff Brown; Bruce N Davidson; Hossein Estiri; Carsten Goerg; Erin Holve; Steven G Johnson; Siaw-Teng Liaw; Marianne Hamilton-Lopez; Daniella Meeker; Toan C Ong; Patrick Ryan; Ning Shang; Nicole G Weiskopf; Chunhua Weng; Meredith N Zozus; Lisa Schilling
Journal:  EGEMS (Wash DC)       Date:  2016-09-11
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