| Literature DB >> 35841432 |
Emily E Haroz1, Victoria M O'Keefe1, Fiona Grubin2, Tara L Maudrie1, Sophie Neuner1, Maisie Conrad1, Emma Waugh1, Allison Barlow1, Ashleigh Coser3, Kyle Hill4, Shardai Pioche1.
Abstract
The coronavirus disease 19 (COVID-19) pandemic is broadly affecting the mental health and well-being of people around the world, and disproportionately affecting some groups with already pre-existing health inequities. Two groups at greater risk of physical and/or mental health detriments from COVID-19 and more profoundly impacted by the pandemic include frontline workers and American Indian/Alaska Native (AI/AN) communities. To provide support and prevent long-term mental health problems, we culturally adapted a psychological first aid guide specifically for COVID-19 frontline workers serving AI/AN communities. We engaged a diverse, collaborative work group to steer the adaptation content and process. We also held two focus group discussions with frontline workers in AI/AN communities to incorporate their perspectives into the adapted guide. Results from the group discussions and the collaborative work group were compiled, analyzed to extract themes and suggestions, and integrated into the adapted content of the guide. Main adaptations included updating language (i.e., to be more culturally appropriate, less prescriptive, and less text heavy), framing the guide from a harm-reduction lens, incorporating cultural activities, values, and teachings common across diverse AI/AN communities (e.g., importance of being a good relative), and validating feelings and experiences of frontline workers. The resulting adapted guide includes four modules and is available as a free online training. Our adaptation process may serve as a guiding framework for future adaptations of similar resources for specific groups. The adapted guide may stand as an enduring resource to support mental well-being, the prevention of mental health problems, and reduction of health inequities during the pandemic and beyond.Entities:
Keywords: American Indian/Alaska Native; COVID-19; Cultural adaptation; Indigenous; Mental health; Psychological first aid
Mesh:
Year: 2022 PMID: 35841432 PMCID: PMC9288204 DOI: 10.1007/s10935-022-00695-y
Source DB: PubMed Journal: J Prev (2022) ISSN: 2731-5533
Summary of adaptations/modifications organized by FRAMEa categories
| Frame category | Descriptions of adaptations/modifications |
|---|---|
| 1. When did the modification occur? | Pre-implementation/dissemination of this resource |
| 2. Were the adaptations planned? | Planned, reactive (in response to the COVID-19 pandemic) |
| 3. Who participated in the decision to modify? | Researchers, public health professionals, health care workers, community members, funder |
| 4. What was the goal? | Improve fit with recipients to make the resource culturally relevant and appropriate |
| 5. What is modified? | |
| 6. At what level of delivery (for whom/what) is the modification made? | |
| 7. What is the nature of content modification? | |
| 8. Relationship fidelity/core elements? | Fidelity consistent, core elements and functions (i.e., to support coping, resource sharing, and mental well-being and prevent long-term mental health problems from developing) preserved |
aCategories of the FRAME framework come from Wiltsey Stirman et al. (2019)
Summary of CWG guidance incorporated into adapted guidea
| Module (from original guide) | General feedback on IASC guide | General input on how to adapt the IASC guide |
|---|---|---|
| Module 1: Your well-being | Dislike language framing COVID-19 response as a responsibility. This could increase stress, and some people did not sign up for this responsibility. | Include the importance of taking care of yourself as it relates to taking care of others. |
| Note about feeling overburdened rings true, this can be expanded on. People may feel they have new responsibilities and cannot deliver on them all. | Highlight importance of being a good relative. | |
| Instructing people to stay up-to-date on information feels patronizing. | Validate feelings of inadequacy, fear, anxiety. | |
| Suggestions around adhering to a schedule and minimizing substance use feel patronizing. | Acknowledge the sacrifices frontline workers are making and the impacts on them and their families. | |
| Keep the circles of control exercise. | Use a harm reduction approach. | |
| Case example of community leader is not helpful and should be removed. | Promote practicing gratitude. | |
| Incorporate traditional activities in suggestions for relaxing/coping (e.g., spiritual/prayer activities, appropriate use of traditional medicines). | ||
| Reduce text heaviness by eliminating irrelevant examples. | ||
| Use videos to engage people more. | ||
| Module 2: Supportive communication in everyday interactions | Not all body language is appropriate across Native communities (e.g., direct eye contact is sometimes considered disrespectful). | Include ideas for creating comfortable environments for virtual interactions, rapport building. |
| Do’s and Don’ts chart is stressful. | Focus on empathy and love for all relatives. | |
| Active listening graphics should be reframed to highlight common cultural teachings around the importance of listening. | Highlight importance of listening as a cultural teaching. | |
| Incorporate humor. | ||
| Module 3: Offering practical support | Needs in addition to original list are mental health, cultural and spiritual needs, addressing misinformation. | Include information on how to support people in acute mental health crisis. |
| Language about “manage their own problems” is negative. | Focus on caring for community and Elders as a positive action. | |
| Keep the case example. | Adapt language of stop-think-go tool to be more culturally relevant (changed to Stop-Reflect-Skoden) and succinct. | |
| Module 4: Supporting people who are experiencing stress | Signs of stress ring true. | For descriptions of serious distress, add the following signs/symptoms: difficulty concentrating, difficulty sleeping, and binge behaviors. Remove the sign/symptom of a person not knowing their own name (i.e., orientation to person). |
| Keep the deep breathing and progressive muscle relaxation exercises. | ||
| Module 5: Helping in specific situations | Dislike language describing community members as “vulnerable” or “marginalized.” | Change language to “priority” instead of “vulnerable/marginalized.” |
| Include the following groups of priority community members: (a) those who are unhoused; (b) people who are unsafe in their homes (e.g., because of domestic violence); (c) people who struggle with substance use; (d) people who live alone or away from home community; (e) people with pre-existing health or mental health conditions; and (f) Elders. |
aAll of the feedback and suggestions described in this table were incorporated into the final, adapted guide. General feedback on the IASC guide refers to specific things about the IASC guide that the CWG noted should be changed, kept, or removed when adapting the materials. General input on how to adapt the IASC guide refers to guidance the CWG shared as to how to best change and adapt the IASC guide.
Fig. 1displays the table of contents page showing the four main modules from the adapted psychological first aid for COVID-19 frontline workers in AI/AN communities guide. Descriptive caption for accessibility: four lines of text are displayed next for four colorful images; each line and image represent a module in the table of contents of the adapted PFA guide. The first line says, “Module 1: Your and Your Relatives’ Well-being” and includes an image of three people together holding hands. The second line says, “Module 2: Supportive Communication in Everyday Interactions” and is next to an image of two people using virtual video call on cell phones. The third line says, “Module 3: Offering Practical Support to Community Members” and is next to an image of two hands holding each other in a heart shape. The last line says, “Module 4: Supporting Everyone in Our Communities” and is next to a circular image of five hands placed on top of each other
Adaptations to basic psychosocial skills: a guide for COVID-19 responders
| Program component | Basic psychosocial skills: a guide for COVID-19 responders (original guide) | Psychological first aid for COVID-19 frontline workers in AI/AN communities (adapted guide) |
|---|---|---|
| Guide contents | ||
| Modules | 1. Your well-being | 1. Your and your relatives’ well-being |
| 2. Supportive communication in everyday interactions | 2. Supportive communication in everyday interactions | |
| 3. Offering practical support | 3. Offering practical support to community members | |
| 4. Supporting people who are experiencing stress | 4. Supporting everyone in our communities | |
| 5. Helping in specific situations | ||
| Annexes | A. Advice for managers and supervisors who support staff and volunteers | A. Resources for supervisors & managers |
| B. Daily routine schedule | B. Burnout & compassion fatigue | |
| C. Circles of control | C. Relaxation exercises | |
| D. Progressive muscle relaxation instructions | D. Supporting children | |
| E. Resources in your area | E. Trusted COVID-19 resources | |
| Case examples | 1. Patrick’s case: community leader | 1. Case example: Coping with stress and misinformation |
| 2. David’s case: communication | 2. Case example: Caring for elders who need access to food or other essential items | |
| 3. Asma’s case: supportive listening | ||
| 4. Precious’ case: supporting people who are grieving | 3. Case example: Tamara and Connor use Stop-Reflect-Skoden! | |
| 5. Priya and Deepak’s case: supporting elders | ||
| 6. Ahsan and Mohammad’s case: Stop-Think-Go | ||
| 7. Josephine and Julia’s case: staying connected virtually | ||
| Training | Online | Online |
| Free | Free | |
| No registration required | Registration required | |
| Asynchronous | Asynchronous | |
| Knowledge assessed via quizzes hosted on google forms | Knowledge assessed via quizzes in online learning platform | |