| Literature DB >> 35814130 |
Wouter J Rijke1,2, Anneke M Vermeulen3, Christina Willeboer1, Harry E T Knoors1,4, Margreet C Langereis3, Gert Jan van der Wilt2.
Abstract
In the Western world, for deaf and hard-of-hearing children, hearing aids or cochlear implants are available to provide access to sound, with the overall goal of increasing their wellbeing. If and how this goal is achieved becomes increasingly multifarious when these children reach adolescence and young adulthood and start to participate in society in other ways. An approach to wellbeing that includes personal differences and the relative advantages and disadvantages that people have, is the capability approach, as developed by Nobel Prize laureate Amartya Sen. Capability is the set of real opportunities people have to do and be things they have reason to value. We interviewed 59 young people, aged 13 through 25, with cochlear implants (37) or hearing aids (22) to capture their capability. We found that their hearing devices enabled them to actively participate in a predominantly hearing society, with few differences between cochlear implant and hearing aid recipients. They did, however, report challenges associated with prejudices and expectations, and with feeling poorly understood, all of which appeared to impact their capability. Through the lens of capability, alleged differences between hearing aid and cochlear implant recipients began to fade. We discuss the implications for initiatives focused on the long-term support young recipients of hearing devices to meet their specific requirements over time.Entities:
Keywords: capability approach; conversion factors; functionings; hard-of-hearing; hearing aids
Year: 2022 PMID: 35814130 PMCID: PMC9261909 DOI: 10.3389/fpsyg.2022.895868
Source DB: PubMed Journal: Front Psychol ISSN: 1664-1078
Demographic characteristics of the respondents, distinguishing recipients of hearing aids, and cochlear implants.
| Characteristic | Recipients of cochlear implant(s) | Recipients of hearing aid(s) | ||
|---|---|---|---|---|
| n | 37 | 22 | ||
| Age in years | M (SD) | 17.3 (3.7) | 17.3 (3.6) | |
| Range | 12.6–25.0 | 12.8–24.1 | ||
| Age of first aid in years, M (SD) | 4.0 (3.6) | 4.8 (2.8) | ||
| Gender | male | 17 | 15 | |
| female | 20 | 7 | ||
| Education | secondary special education | 3 | 2 | |
| secondary education | 21 | 11 | ||
| secondary vocational education | 9 | 6 | ||
| higher education | 4 | 1 | ||
| university education | 0 | 2 | ||
| Hearing device | unilateral | 13 | 0 | |
| bilateral | 21 | 22 | ||
| bimodal | 3 | |||
| Hearing loss in dB (pure-tone average at 1, 2 and 4 kHz) | M (SD) | >85 | 56.1 (12.8) | |
| Range | 37–77 | |||
| Missing | 4 | |||
| Speech perception (% correctly repeated phonemes) | 65 dB in quiet | M (SD) | 93.6 (6.8) | 94.5 (9.9) |
| 45 dB in quiet | Range | 67–100 | 60–100 | |
| Missing | 0 | 3 | ||
| M (SD) | 87.1 (10.3) | 73.8 (22.2) | ||
| Range | 45–100 | 24–100 | ||
| Missing | 4 | 3 | ||
| Speech supported by sign language | Yes | 6 | 1 | |
| No | 31 | 21 | ||
| Interview setting | Online | 13 | 5 | |
| Face-to-face | 24 | 17 | ||
Audiological inclusion criteria for cochlear implantation is > 85 dB hearing loss.
Participants’ input in terms of capability elements.
| In general | |||
|---|---|---|---|
| Functionings | Resources | Conversion factors | Interests |
| Explain to others, but also not disclosing deafness | Cochlear implant | Forgetting devices (personal factor that influences the use of the hearing device) | Not being different |
| Being laughed at | Hearing aid | Changing preferences, accepting deafness more | Not being overestimated in their ability to hear when aided |
| Last to laugh at jokes | Hearing assistive technologies | Positive attitude, more motivation than typical-hearing peers | Not being ashamed for appearance cochlear implant |
| Cycling at the back to increase sound perception | Cords for sports | Maintenance, cleaning, vulnerability device and batteries | Being able to take phone calls in noise |
| Drive car | Prejudices, perceptions of others, taboo, people do not know how to communicate | Being able to lie on head with cochlear implant | |
| Sleep well | Appearance of cochlear implant | Being able to turn off hearing device | |
| Not being labeled | |||
| Consideration of others | |||
|
| |||
| Functionings | Resources | Conversion factors | Interests |
| Being (highly) educated, have job(s) | Resources associated with special education | Less energy | Being able to become anything when growing up |
| No early shift after late shift at hospital | |||
| Sitting in front for lip reading | |||
| Not meeting friends from school | |||
|
| |||
| Functionings | Resources | Conversion factors | Interests |
| Swimming together, swimming alone | Water case | Not waterproof | Enjoying environmental sounds |
| Listening to music | Wireless connection with phone | Being able to play an instrument | |
| Activities with organization for young deaf and hard-of-hearing people | Rain makes hearing aids disfunction | Playing games rather than conversations | |
| Go to the bar, go to festivals, cinema, parties | Music can be noise | Being able to participate in group conversations | |
| Play sports (with and without hearing device) | Cochlear implant does not fit in horse cap | ||
| Help from teammates | |||
Exclusively mentioned by hearing aid users.
Exclusively mentioned by cochlear implant users. The table is organized in columns (vertical), not rows (horizontal). Elements between columns are therefore not linked.