Literature DB >> 35812032

Symptom control in advanced chronic liver disease: integrating anticipatory palliative and supportive care.

Mark Wright1, Hazel Woodland2, Ben Hudson3.   

Abstract

The number of patients coming to hospital with liver disease is increasing. There was a worrying trend before the pandemic, and this has intensified. Despite improvements in the management of patients with advanced cirrhosis many patients will die within 6-12 months of first presentation, and, despite this, the field of palliative and supportive care in liver disease is still in its infancy. This is a narrative review. Evidence is often thin in this field. Where it exists it is cited, but much of the commentary here is based on the authors own experience and readers are free to consider it and debate it. Most patients who die of liver disease receive palliative care very late in their illness (if at all). There are many barriers to supportive and palliative care in liver disease which are discussed. Symptom control is often poor because of these barriers. Before symptomatic control can be established, patients in need of it must to be identified and conversations had about the severity of their situation and what their wishes would be. Interest in palliative and supportive care for patients liver disease is growing as is the number of hepatologists and palliative care clinicians within the UK with an interest. It is important that this enthusiasm and interest can be rolled out and scaled up across the UK so that all patients, wherever they are, can benefit. The aims of these articles are first to highlight and bring into focus the unmet need for palliative and supportive care in liver disease and second to provide suggestions for its integration into liver services. Ask yourself the question: where would I start in my hospital to help these patients? © Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  ASCITES; CHRONIC LIVER DISEASE; LIVER CIRRHOSIS

Year:  2022        PMID: 35812032      PMCID: PMC9234743          DOI: 10.1136/flgastro-2022-102114

Source DB:  PubMed          Journal:  Frontline Gastroenterol        ISSN: 2041-4137


  36 in total

1.  Palliative care for patients with end-stage liver disease: An overview.

Authors:  Mina O Rakoski; Michael L Volk
Journal:  Clin Liver Dis (Hoboken)       Date:  2015-07-28

2.  Barriers to Use of Palliative Care and Advance Care Planning Discussions for Patients With End-Stage Liver Disease.

Authors:  Nneka N Ufere; John Donlan; Lauren Waldman; Jules L Dienstag; Lawrence S Friedman; Kathleen E Corey; Nikroo Hashemi; Peter Carolan; Alan C Mullen; Michael Thiim; Irun Bhan; Ryan Nipp; Joseph A Greer; Jennifer S Temel; Raymond T Chung; Areej El-Jawahri
Journal:  Clin Gastroenterol Hepatol       Date:  2019-03-15       Impact factor: 11.382

3.  EASL Clinical Practice Guidelines for the management of patients with decompensated cirrhosis.

Authors: 
Journal:  J Hepatol       Date:  2018-04-10       Impact factor: 25.083

4.  Outcomes of Palliative Care Consultations for Hospitalized Patients With Liver Disease.

Authors:  Nneka N Ufere; David L O'Riordan; Kara E Bischoff; Angela K Marks; Nwamaka Eneanya; Raymond T Chung; Vicki Jackson; Steven Z Pantilat; Areej El-Jawahri
Journal:  J Pain Symptom Manage       Date:  2019-07-19       Impact factor: 3.612

5.  Changing end-of-life care practice for liver transplant service patients: structured palliative care intervention in the surgical intensive care unit.

Authors:  Sangeeta Lamba; Patricia Murphy; Susan McVicker; Janet Harris Smith; Anne C Mosenthal
Journal:  J Pain Symptom Manage       Date:  2012-07-04       Impact factor: 3.612

6.  Cirrhosis with ascites in the last year of life: a nationwide analysis of factors shaping costs, health-care use, and place of death in England.

Authors:  Benjamin Hudson; Jeff Round; Brendan Georgeson; Andrew Pring; Karen Forbes; Catherine Anne McCune; Julia Verne
Journal:  Lancet Gastroenterol Hepatol       Date:  2017-11-15

7.  Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT): a mixed-methods study.

Authors:  Gill Highet; Debbie Crawford; Scott A Murray; Kirsty Boyd
Journal:  BMJ Support Palliat Care       Date:  2013-07-25       Impact factor: 3.568

8.  AASLD Practice Guidance: Palliative care and symptom-based management in decompensated cirrhosis.

Authors:  Shari S Rogal; Lissi Hansen; Arpan Patel; Nneka N Ufere; Manisha Verma; Christopher D Woodrell; Fasiha Kanwal
Journal:  Hepatology       Date:  2022-04-22       Impact factor: 17.298

9.  Palliative Care Always: Hepatology-Virtual Primary Palliative Care Training for Hepatologists.

Authors:  Jan C DeNofrio; Manisha Verma; Andrzej S Kosinski; Victor Navarro; Tamar H Taddei; Michael L Volk; Marie Bakitas; Kavitha Ramchandran
Journal:  Hepatol Commun       Date:  2021-10-31

10.  Palliative long-term abdominal drains versus repeated drainage in individuals with untreatable ascites due to advanced cirrhosis: study protocol for a feasibility randomised controlled trial.

Authors:  Lucia Macken; Louise Mason; Catherine Evans; Heather Gage; Jake Jordan; Mark Austin; Nick Parnell; Max Cooper; Shani Steer; Justine Boles; Stephen Bremner; Debbie Lambert; David Crook; Gemma Earl; Jean Timeyin; Sumita Verma
Journal:  Trials       Date:  2018-07-27       Impact factor: 2.279

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