Sreekanth Nair Thekkumkara1, Aarti Jagannathan1, Thanapal Sivakumar2. 1. Dept. of Psychiatric Social Work, National Institute of Mental Health and Neurosciences (NIMHANS), Bengaluru, Karnataka, India. 2. Dept. of Psychiatry, National Institute of Mental Health and Neurosciences (NIMHANS), Bengaluru, Karnataka, India.
According to the Persons with Disabilities Act, 1995, and the Rights of Persons with
Disabilities Act (RPWD), 2016,[1] mental illness is recognized as a disability. In India, most
employment programs for persons with disabilities (PwD) focus on locomotor, visual, and
hearing disabilities.[2,3] For
the first time, the RPWD Act 2016 offered government job reservations for persons with
benchmark disability because of mental illness. The Mental Health Care Act 2017
(MHCA)[4]
mandates the government to provide “hospital and community-based rehabilitation
establishments and services” for persons with mental illness (PWMI). Currently,
rehabilitation services are in infancy and do not exist in many tertiary care
hospitals.[5]
Most rehabilitation facilities are residential.[5] Many rehabilitation facilities are
run by the nongovernmental organizations sector and are located in South
India.[5] The
family needs to pay a fee to avail services.[5] Because of lack of availability,
accessibility, and affordability, rehabilitation facilities are out of reach of families
of PWMI.[5]Employment is a critical felt need of PWMI and caregivers.[3,6-10] Employment positively impacts
symptom reduction, functioning, self-esteem, and community integration.[11,12] It is an indicator of wellbeing
and is related to social and symptomatic recovery.[13]As compared to Western countries, the employment outcome is better for persons with
schizophrenia in India because of family support, support from workplace colleagues, and
work availability in the informal sector.[14] The employment rates for persons
with schizophrenia are better in rural than urban areas.[13,15] In both urban and rural areas,
many PWMI are employed in informal jobs that do not require much education or
skills.[13,15] Although jobs in
the informal sector are easier to get and generate additional income, it is insufficient
to meet personal or family needs.[16] A critical predisposing factor for
taking up informal jobs may be low education status[17,18] and lack of skills. In rural
areas, many people may not pursue higher studies because of social factors and lack of
opportunities. Besides, for a sizeable proportion of patients, severe mental illness
(SMI) typically has its onset during adolescence or early adulthood and disrupts
education.[19] This has ripple effects, leading to poor social functioning, lack
of employment, and low income.[20]Indian families take the initiative of employing PWMI based on their understanding of
abilities and clinical status. Families may employ PWMI in family
establishments,[18] through acquaintances, or by utilizing local resources
(including government programs, resources from nongovernmental organizations, self-help
groups, and cooperative societies) available to the general public.[16,21] Even when performance was
below-par, employers in the unorganized sector did not always dismiss PWMI but paid them
according to the work output.[18]Significant employment barriers for PWMI include a lack of suitable jobs, stigma,
discrimination, lack of supportive working environment,[21] and lack of skill training
centers.[2,17] Individual
placement and support (IPS) and other supported employment approaches are evidence-based
practices for employment for PWMI.[11] Because of the shortage of mental
health professionals (MHP) and rehabilitation facilities, it is challenging to implement
IPS model with high fidelity across the country.[22] However, even in
resource-constrained settings, certain principles of supported employment, like welfare
benefits counseling, respecting personal preferences, and follow-along
supports[11]
can be followed for facilitating employment for PWMI.Although the Government of India gazette on disability certification[23] does not restrict
certification to SMI, most disability certificates for mental illness are issued for
SMI.[24] As
per the National Mental health survey (NMHS; 2015–16), schizophrenia and bipolar
affective disorders are priority disorders requiring disability assessment and
rehabilitation interventions.[25]NMHS recommends creating rehabilitation facilities at district and state levels,
provision of facilities for re-skilling, and protected employment for PWMI.[25] As skills training
helps PWMI find better employment prospects, NMHS recommended the utilization of
flagship government programs like “Skill India” to facilitate reskilling
of PWMI to promote employment.[25]
“Skill India” and Pradhan Manthri Kaushal Vikas Yojana
(PMKVY)
The Government of India has launched the “Skill India” program to
empower youth with skill sets to boost their employability and productivity. It
offers courses across 40 sectors aligned to the industry’s standards and the
government, under the National Skill Qualification Framework. PMKVY is implemented
by the National Skills Development Corporation (NSDC) across the country under the
guidance of the Ministry of Skill Development and Entrepreneurship (MSDE). The
details of PMKVY centers and available vocational courses in the respective locality
are available at the PMKVY website.[26]Any unemployed Indian citizen in the 18 to 35 years age group can apply for PMKVY.
The training is offered free of cost. Preferably, the candidate needs to enroll in a
center near their residence specified in the Aadhaar card. Candidate details are
linked to the Aadhaar card. A candidate can choose only one course under PMKVY.
PMKVY benefits candidates who are either school/college dropouts or unemployed. Upon
completing the training, the candidate gets a government certificate to help avail
loans and microcredit for self-employment. Job placement services are also
offered.Sharada Prasad Committee (2016) pointed out that most of the PMKVY training was
short-term in duration, with no proper recognition of the prior learning of the
candidate, and low placement rates (12%). The Committee recommended that PMKVY pay
attention to job opportunities available in the market, select appropriate
vocational courses in the center, and provide training in skills relevant to the
local job market. A trained candidate’s salary was between Rs. 5,000 and
10,000, where the Committee recommends training that can offer a high wage between
Rs. 40,000 and 50,000.[27]Despite all these concerns, the training under this flagship program is free of cost
and widely available across the country, without any stringent requisites to enroll.
MHPs can offer PMKVY to PWMI, and a proportion of people are likely to benefit.A skill council for PwD is working with PMKVY to adapt training needs and
methodologies for PwD.[26] The RPWD Act 2016, clause 2(y) describes reasonable
accommodation for PwD, where necessary, and appropriate modification and adjustment
in the training centers, such as flexible work timing frequent breaks, and clause
19(2d) recommends that PwD can avail loans at concessional rates. Persons disabled
with mental illness can apply for PMKVY as PwD to avail the benefits under the RPWD
Act 2016.[1]
PMKVY and PWMI
As the PMKVY training centers are present across the country PWMI can avail
services from a center near their residence. This will help save travel
expenses. As the training is provided free of cost, there is no additional
financial burden.A specialized psychiatric rehabilitation facility is considered an
“entrapping niche” because of natural exclusionary processes in
the setting, where social interaction is dominated by other patients and
MHP.[28] Patients attending specialized psychiatric rehabilitation
facilities are labeled, and this promotes stigma.[28] There is a risk of people
becoming chronic and comfortable in the setting.[28] There is little
expectation of personal progress.[28] There are limited chances
of learning skills and expectations that would help the patients move on to
mainstream life.[28]In contrast, a mainstream skills training center like PMKVY can serve as an
“enriching niche” to help PWMI progress further.[28] The center
offers opportunities to learn skills and has a path to career
progress.[28] PWMI are likely to benefit from the activity schedule
and daily routine. The process of going to the center involves a range of
activities such as waking up on time, getting ready, traveling to the center,
learning new skills, practicing them, and gaining a sense of purpose. It can
also offer an opportunity to socialize with peer groups over age-appropriate
issues (like the latest movie or latest phone). PWMI can discuss their problems
in a nonjudgmental atmosphere without the tag of a “patient,” get
positive social role models, gain perspective about others’ difficulties,
and arrive at solutions. The inclusive environment positively impacts social
inclusion, self-esteem, symptom control, and quality of life.[11,29] The
time-limited nature of training, real-life exposure,[30] and job prospects on
completing training can motivate PWMI to acquire skills and progress on the road
to recovery.[31-33]A potential problem with sending PWMI to mainstream centers like PMKVY is the
risk of them being labeled as a “patient” and
stigmatized.[21] This can happen by behavioral oddities, medication side
effects, or observing a patient taking medicine in the center.[21] There is a
risk of being ridiculed or discriminated against. These stressors may lead to
relapse.[21] MHP need to liaise with PMKVY officials to ensure that
patients are offered “reasonable accommodation” and are not
discriminated against.A disability certificate is mandatory for availing any benefits. A disability
certificate is issued in government hospitals by a designated medical authority.
In India, the private sector offers 85% of the total health care.[25] Many
persons disabled with mental illness are under treatment from the private
sector. As they are not certified for disability, they cannot avail of welfare
benefits.[34] In PMKVY, any PWMI can enroll without a disability
certificate; a disability certificate can help a candidate avail
“reasonable accommodation” or any other benefits.
Role of Mental Health Professionals
In India, families and PWMI look up to MHP. Because of the paucity of
rehabilitation facilities, MHP find it challenging to offer rehabilitation
inputs. As a free government-aided program available across the country, PMKVY
can be considered a rehabilitation tool by MHP in resource-constrained settings
where a multidisciplinary team may not be available.MHP need to liaise with the PMKVY center in their locality and collect the
following details: courses offered, training duration, enrolment process,
necessary documents, minimum qualifications, and contact details. MHP can
display the pamphlets/posters in OPD/clinic/ward. Eligible PWMI can be
encouraged to visit the nearest PMKVY center and get information. The PMKVY
staff may have several myths about PWMI. A personal visit to the center helps
MHP establish rapport and understand available resources. MHP can sensitize the
PMKVY team to mental health issues like handling stress. MHP need to educate
PMKVY team about mental illness and that PWMI can lead normal lives with
treatment and psychosocial interventions. MHP can invite the PMKVY staff to
address PWMI/family and clarify doubts.It is advisable that patients who express a need for vocational rehabilitation,
have prevocational skills, and likely perform well in a PMKVY center be referred
first. If the PMKVY staff have a positive experience with the first PWMI, they
will be open to taking additional PWMI. MHP need to follow-up periodically with
the PMKVY center to understand the progress made by PWMI in different domains
(including vocational skills, communication skills, making friends, punctuality,
grooming, and cognitive skills). Proactive follow-up will help address
challenges (including interpersonal problems with staff/colleagues, medicine
side-effects, motivation, and other behavior issues) in liaison with PMKVY
center staff. Ongoing support by MHP will help improve employment
outcomes.[30]
Conclusion
PMKVY is the flagship program for skills training of unemployed youth of the country.
The program can help skill and employ PWMI aged 18 to 35 years. MHP need to liaise
with the PMKVY center in their locality.
Authors: Tom Burns; Jocelyn Catty; Thomas Becker; Robert E Drake; Angelo Fioritti; Martin Knapp; Christoph Lauber; Wulf Rössler; Toma Tomov; Jooske van Busschbach; Sarah White; Durk Wiersma Journal: Lancet Date: 2007-09-29 Impact factor: 79.321