| Literature DB >> 35579789 |
Debra L Reisinger1, Elesia Hines2, Christine Raches2, Qing Tang3, Cristina James2, Rebecca McNally Keehn2.
Abstract
The present study examines provider and caregiver satisfaction with telehealth evaluation of autism spectrum disorder (ASD) in young children during the coronavirus SARS-CoV-2 (COVID-19) pandemic. A telehealth model of ASD evaluation was implemented with 308 children ages 14 to 78 months between May 2020 to June 2021. Data were gathered from electronic health records, autism-specific telehealth diagnostic tools, and post-evaluation surveys. Overall, the majority of providers and caregivers were satisfied with telehealth ASD evaluation. Multiple variables were associated with ratings of satisfaction, differing by providers and caregivers. Findings have important implications for the feasibility and acceptability of telehealth ASD evaluations, in addition to key factors to consider in optimizing and sustaining telehealth evaluations beyond the COVID-19 pandemic.Entities:
Keywords: Autism spectrum disorder; Diagnostic evaluation; Satisfaction; Telehealth; Young children
Year: 2022 PMID: 35579789 PMCID: PMC9112250 DOI: 10.1007/s10803-022-05576-1
Source DB: PubMed Journal: J Autism Dev Disord ISSN: 0162-3257
Child characteristics and family demographics
|
| |
|---|---|
| Age in months, mean ± SD (range) | 37.9 ± 10.9 (14–78) |
| Sex, n (%) | |
| Male | 225 (73.05%) |
| Female | 83 (26.95%) |
| Race, n (%) | |
| White/Caucasian | 95 (68.35%) |
| Black/African American | 20 (14.39%) |
| More than one race | 15 (10.79%) |
| Other | 9 (6.47%) |
| Ethnicity, n (%) | |
| Not Hispanic or Latino | 118 (86.76%) |
| Hispanic or Latino | 18 (13.24%) |
| Household Income, n (%) | |
| <$40,000 | 61 (48.03%) |
| $40,000 - $74,999 | 35 (27.56%) |
| >$75,000 | 31 (24.41%) |
| Household Size, mean ± SD | 4.0 ± 1.1 |
| Insurance, n (%) | |
| Medicaid | 177 (58.03%) |
| Private Insurance | 109 (35.74%) |
| Medicaid and Private Insurance | 19 (6.23%) |
| ASD Diagnostic Outcomes, n (%) | |
| ASD Present | 170 (55.19%) |
| ASD Absent | 94 (30.52%) |
| ASD Unsure | 44 (14.29%) |
| Vineland-3, mean ± SD (range) | |
| Adaptive Behavior Composite | 71.9 ± 11.7 (44–115) |
| Communication | 66.7 ± 17.3 (27–124) |
| Daily Living Skills | 75.2 ± 14.6 (33–124) |
| Socialization | 74.1 ± 14.7 (26–128) |
| Motor Skills | 81.0 ± 14.1 (42–124) |
Note. ASD = autism spectrum disorder; ASD Present = an ASD diagnosis was given; ASD Absent = an ASD diagnosis was not given; ASD Unsure = the clinician was not sure about whether the child had ASD or not at the time of the evaluation; Vineland-3 scores are reported as standard scores (SS)
Provider and caregiver satisfaction item summary scores
| Mean | Not satisfied | Somewhat satisfied | Neutral | Satisfied | Very satisfied | |
|---|---|---|---|---|---|---|
| 1Clinician Satisfaction Ratings | ||||||
Please rate your satisfaction with the information obtained during the telehealth visit. | 4.2 (0.7) | 1 (0.35%) | 10 (3.48%) | 7 (2.44%) | 174 (60.63%) | 95 (33.10%) |
Please rate your overall satisfaction with the remote telehealth service you provided for this patient. | 4.2 (0.7) | 2 (0.70%) | 9 (3.14%) | 6 (2.09%) | 181 (63.07%) | 89 (31.01%) |
| 2Provider Satisfaction Ratings | ||||||
| Mean (SD) | Strongly disagree n (%) | Disagree n (%) | Neutral n (%) | Agree n (%) | Strongly Agree n (%) | |
| I felt the telehealth provider was engaged and part of the visit. | 4.9 (0.4) | 1 (0.71%) | 18 (12.77%) | 122 (86.52%) | ||
| I was able to communicate my concerns to the telehealth provider during the visit. | 4.9 (0.4) | 1 (0.71%) | 17 (12.06%) | 123 (87.23%) | ||
| I felt the telehealth provider was able to collect important information about my child. | 4.6 (0.7) | 3 (2.13%) | 8 (5.67%) | 34 (24.11%) | 96 (68.09%) | |
| The information I received through the telehealth appointment will help me make decisions for next steps in my child’s support plan. | 4.7 (0.6) | 3 (2.13%) | 3 (2.13%) | 32 (22.70%) | 103 (73.05%) | |
| I felt the equipment used during the telehealth visit was not distracting and did not take away from the effectiveness of the visit. | 4.4 (0.9) | 1 (0.71%) | 6 (4.26%) | 17 (12.06%) | 30 (21.28%) | 87 (61.70%) |
| My telehealth visit was just as private as an in-person evaluation. | 4.7 (0.7) | 2 (1.42%) | 3 (2.13%) | 3 (2.13%) | 20 (14.18%) | 113 (80.14%) |
| Telehealth made it easier and more convenient for me to visit with a provider. | 4.4 (1.0) | 4 (2.84%) | 5 (3.55%) | 16 (11.35%) | 28 (19.86%) | 88 (62.41%) |
| I am likely to recommend telehealth to others. | 4.3 (1.0) | 1 (0.71%) | 9 (6.38%) | 19 (13.48%) | 33 (23.40%) | 79 (56.03%) |
| I am interested in participating in future telehealth visits at this clinic. | 4.3 (0.9) | 2 (1.42%) | 2 (1.42%) | 25 (17.73%) | 32 (22.70%) | 80 (56.74%) |
| Overall, I am satisfied with my telehealth experience. | 4.6 (0.8) | 1 (0.71%) | 4 (2.84%) | 11 (7.80%) | 25 (17.73%) | 100 (70.92%) |
Note. 1 N=287; Items rated on Likert scale (1 = Not satisfied; 5 = Very satisfied); 2 N=141; Items rated on Likert scale (1 = Strongly Disagree; 5 = Strongly Agree
Caregiver satisfaction in relation to child demographics, diagnostic outcomes, and telehealth evaluation factors
| Variable | n | Mean (SD) |
| β |
|
|
|---|---|---|---|---|---|---|
| Age | 0.01 | 1.64 | 0.103 | |||
| Sex | 3.87 | 0.052 | ||||
| Male | 100 | 4.5 (0.6) | ||||
| Female | 41 | 4.7 (0.5) | ||||
| Race | 4.70 | 0.392 | ||||
| Black/African American | 20 | 4.7 (0.5) | ||||
| White/Caucasian | 95 | 4.5 (0.6) | ||||
| More than one race | 15 | 4.6 (0.5) | ||||
| Other | 9 | 4.8 (0.4) | ||||
| Ethnicity | 0.63 | 0.431 | ||||
| Hispanic or Latino | 18 | 4.7 (0.4) | ||||
| Not Hispanic or Latino | 118 | 4.6 (0.6) | ||||
| Vineland-3 | ||||||
| Adaptive Behavior Composite | -0.01 | -2.77 | 0.008* | |||
| Communication | -0.01 | -3.01 | 0.004* | |||
| Daily Living Skills | -0.01 | -2.33 | 0.023* | |||
| Socialization | -0.01 | -2.33 | 0.024* | |||
| Motor Skills | < 0.01 | -0.48 | 0.634 | |||
| Household Income | 0.57 | 0.568 | ||||
| <$40,000 | 61 | 4.6 (0.6) | ||||
| $40,000 - $74,999 | 35 | 4.5 (0.6) | ||||
| >$75,000 | 31 | 4.5 (0.6) | ||||
| Household Size | -0.05 | -1.22 | 0.223 | |||
| Insurance | 1.12 | 0.329 | ||||
| Medicaid | 80 | 4.6 (0.6) | ||||
| Private Insurance | 51 | 4.5 (0.6) | ||||
| Medicaid and Private Insurance | 80 | 4.6 (0.6) | ||||
| Travel Time Saved | 1.05 | 0.371 | ||||
| Less than one hour | 34 | 4.6 (0.5) | ||||
| One to two hours | 51 | 4.4 (0.7) | ||||
| Three to four hours | 43 | 4.6 (0.5) | ||||
| Five or more hours | 13 | 4.7 (0.6) | ||||
| Diagnosis Provided | 1.12 | 0.293 | ||||
| Yes | 130 | 4.5 (0.6) | ||||
| No | 4 | 4.2 (0.8) | ||||
| Provider Diagnostic Certainty | 5.23 | 0.024* | ||||
| Certain | 131 | 4.6 (0.6) | ||||
| Uncertain | 10 | 4.1 (0.8) | ||||
| Provider Preference for In-Person | 0.11 | 0.737 | ||||
| Yes | 87 | 4.5 (0.6) | ||||
| No | 47 | 4.6 (0.6) | ||||
| Caregiver Preference for Visit | 42.53 | < 0.001* | ||||
| Telehealth | 72 | 4.8 (0.3) | ||||
| In-Person | 66 | 4.3 (0.7) | ||||
| ASD Diagnostic Outcomes | 4.20 | 0.017* | ||||
| ASD Present | 78 | 4.7 (0.5) | ||||
| ASD Absent | 44 | 4.4 (0.7) | ||||
| ASD Unsure | 19 | 4.3 (0.5) | ||||
| TELE-ASD-PEDS Total Score | 0.03 | 2.49 | 0.014* | |||
| Technical Difficulties | 0.258 | |||||
| Yes | 22 | 4.7 (0.6) | ||||
| No | 112 | 4.5 (0.6) | ||||
| Setup Difficulties | 0.699 | |||||
| Yes | 32 | 4.5 (0.7) | ||||
| No | 102 | 4.5 (0.6) |
Note. *p < 0.05; ASD = autism spectrum disorder; SD = standard deviation
Provider satisfaction in relation to child demographics, socioeconomic variables, diagnostic outcomes, and telehealth visit factors
| Variable | n | Mean (SD) |
| β |
|
|
|---|---|---|---|---|---|---|
| Age | < 0.01 | -0.34 | 0.737 | |||
| Sex | 0.02 | 0.890 | ||||
| Male | 210 | 4.2 (0.6) | ||||
| Female | 77 | 4.2 (0.8) | ||||
| Race | 1.70 | 0.172 | ||||
| Black/African American | 18 | 3.9 (1.0) | ||||
| White/Caucasian | 91 | 4.2 (0.7) | ||||
| More than one race | 15 | 4.4 (0.5) | ||||
| Other | 8 | 4.3 (0.6) | ||||
| Ethnicity | 0.00 | 0.997 | ||||
| Hispanic or Latino | 18 | 4.3 (0.6) | ||||
| Not Hispanic or Latino | 111 | 4.2 (0.7) | ||||
| Vineland-3 | ||||||
| Adaptive Behavior Composite | < 0.01 | -1.23 | 0.221 | |||
| Communication | < 0.01 | -1.51 | 0.134 | |||
| Daily Living Skills | < 0.01 | -0.71 | 0.476 | |||
| Socialization | < 0.01 | -1.45 | 0.150 | |||
| Motor Skills | < 0.01 | -0.24 | 0.811 | |||
| Household Income | 0.32 | 0.726 | ||||
| <$40,000 | 57 | 4.2 (0.8) | ||||
| $40,000 - $74,999 | 35 | 4.3 (0.5) | ||||
| >$75,000 | 28 | 4.3 (0.7) | ||||
| Household Size | < 0.01 | 0.10 | 0.942 | |||
| Insurance | 0.29 | 0.748 | ||||
| Medicaid | 160 | 4.2 (0.7) | ||||
| Private Insurance | 107 | 4.3 (0.6) | ||||
| Medicaid and Private Insurance | 18 | 4.1 (0.8) | ||||
| Travel Time Saved | 0.20 | 0.897 | ||||
| Less than one hour | 34 | 4.1 (0.7) | ||||
| One to two hours | 50 | 4.3 (0.6) | ||||
| Three to four hours | 39 | 4.1 (0.8) | ||||
| Five or more hours | 11 | 4.3 (0.7) | ||||
| Diagnosis Provided | 22.28 | < 0.001* | ||||
| Yes | 275 | 4.2 (0.6) | ||||
| No | 12 | 3.5 (1.0) | ||||
| Provider Diagnostic Certainty | 56.80 | < 0.001* | ||||
| Certain | 264 | 4.3 (0.6) | ||||
| Uncertain | 23 | 3.4 (1.1) | ||||
| Provider Preference for In-Person | 159.72 | < 0.001* | ||||
| Yes | 176 | 3.9 (0.5) | ||||
| No | 111 | 4.8 (0.5) | ||||
| Caregiver Preference for Visit | 0.07 | 0.796 | ||||
| Telehealth | 67 | 4.2 (0.7) | ||||
| In-Person | 64 | 4.2 (0.7) | ||||
| ASD Diagnostic Outcomes | 29.13 | < 0.001* | ||||
| ASD Present | 156 | 4.4 (0.5) | ||||
| ASD Absent | 88 | 4.2 (0.6) | ||||
| ASD Unsure | 43 | 3.6 (0.9) | ||||
| TELE-ASD-PEDS Total Score | 0.03 | 3.79 | < 0.001* | |||
| Technical Difficulties | 7.38 | 0.007* | ||||
| Yes | 45 | 4.0 (0.8) | ||||
| No | 242 | 4.3 (0.6) | ||||
| Setup Difficulties | 25.43 | < 0.001* | ||||
| Yes | 45 | 4.0 (0.8) | ||||
| No | 228 | 4.3 (0.6) |
Note. *p < 0.05; ASD = autism spectrum disorder; SD = standard deviation