Pauline Bakibinga1, Lyagamula Kisia2, Martin Atela3,4, Peter M Kibe1, Caroline Kabaria1, Isaac Kisiangani1, Catherine Kyobutungi1. 1. African Population and Health Research Center, Nairobi, Kenya. 2. African Population and Health Research Center, Nairobi, Kenya l.kkisia@gmail.com. 3. Peterhouse, University of Cambridge, Cambridge, UK. 4. Research & Policy Unit, Partnership for African Social and Governance Research, Nairobi, Kenya.
The study triangulated information from different sources (focus group discussions, in-depth interviews and key informant interviews) to enhance the validity of the results.Structured and urban poor participatory approaches were used to obtain feedback from different stakeholders and validate the findings.Most of the themes mentioned by the participants correspond very well with those found in the literature.The study was conducted in urban poor settlements, limiting the applicability of the results to the study area or similar settings.
Introduction
In many low-income and middle-income countries, common barriers to accessing quality healthcare include geographical access, availability, affordability and acceptability of services.1–3 These barriers result in high levels of health inequities in countries and are thus major drivers of poor health outcomes and a significant challenge to health systems. The ongoing COVID-19 pandemic has exacerbated health inequalities.4 5 If these countries are to ‘build back better’ and get their health systems goals back on track, renewed commitments to reduce health inequalities, especially for vulnerable populations, are necessary.Kenya has invested in several initiatives to reduce health inequalities and improve access to adequate care for its population.6 7 Key among these initiatives is Universal Health Coverage (UHC), meant to anchor government health investment efforts to reduce health inequities. However, these initiatives rarely benefit the urban poor, who make up over two-thirds of Kenya’s growing urban population.8 9 Despite their physical proximity to the national government and public and private services, slum areas are disadvantaged and expose residents to health, social and financial vulnerabilities.10 Past research has shown that many slum residents of Nairobi, Kenya’s capital, experience poor health outcomes, including higher maternal and child morbidity and mortality compared with other urban and rural areas.9 10Based on this evidence, the government of Kenya and its partners made critical investments such as the Slum Upgrading Programme11 the Reproductive Health Voucher (RH-OBA)12 to respond to the needs of the urban poor. The RH-OBA and Free Maternity care policy showed an increase in facility-based deliveries in public hospitals and highlighted the impact of cost as a barrier to healthcare utilisation, particularly by women.13–15 However, audits of these programmes identify many persistent challenges. For example, a review of the Reproductive Health Voucher programme in two slums revealed that 22% of the intended beneficiaries did not use the vouchers.13 Similarly, recent data on the Free Maternity Care programme showed that many disadvantaged groups are not benefitting from the services.16 Some of the challenges are related to how the programmes are implemented, while others are ingrained in broader societal and health system structural challenges.17 18 Solutions, which enhance access to care, should be informed by an in-depth understanding of the barriers to access, as these are often context and population-specific and keep evolving.As Kenya makes more investments towards UHC, it is essential to understand and document current, and if any, persistent barriers to access to quality healthcare by the most disadvantaged population groups such as urban slum residents to identify measures to redress the inequities. Such an assessment needs to go beyond the current limitations in many studies on barriers to healthcare access that tend to focus on demand-side barriers.19 20 Instead, an integrated approach, bringing together demand and supply-side analyses, is likely to yield a holistic understanding of healthcare access challenges.1 21 Taking the unique context of urban slums in Kenya, this study explores persistent and current demand and supply-side barriers to optimum delivery and access to quality healthcare. The findings are used to identify opportunities that can be harnessed to reduce these barriers for better health and well-being in two urban slum communities in Nairobi, Kenya. The study draws on data collected as part of a multicountry study to assess current healthcare services in seven informal settlements in Africa and Asia to identify viable service delivery models relevant to the slum setting.22 The study explored preventive and curative healthcare services for all population groups in the urban slums.22With due consideration for the unique context of slums in Kenya (as elsewhere), this study used the Andersen Behavioural Model (ABM) to conceptualise the barriers to access to healthcare.23 24 The model describes predisposing, enabling and need factors that influence people’s decisions to use healthcare services. Predisposing factors are pre-existing socio-cultural characteristics of an individual; enabling factors serve as a means to accessing care, while the need factors refer to the immediate reason why healthcare is sought. The ABM has undergone several iterations, as presented by Andersen that modifications could be made to fit different purposes without distorting the original framework.
Methods
Design and participants
The study used a qualitative approach. Healthcare users, providers and policy actors were purposively selected. Data were collected through 12 focus group discussions (FGDs) and 12 in-depth interviews (IDIs) with healthcare users representing persons living with physical disabilities (PLWD), younger (18–24 years old) and older (25+) women and men and 25 key informant interviews (KIIs) with healthcare providers (formal and informal), chemists and policy actors. The FGDs and IDIs were conducted in-person to seek perspectives from healthcare users on the provision of healthcare services in the community (table 1). While KIIs were conducted remotely via telephone interviews (table 2).
Table 1
Focus group discussion/in-depth interview participant characteristics
Site
Average age
Sex
Always lived (born) in the area
Needed healthcare in the month before the interview
Received healthcare in the 6 months before the interview
Clinical, psychology, community development, medical
8–17 years
0.5–15 years
Focus group discussion/in-depth interview participant characteristicsKey informant participant characteristics
Setting
The study was conducted in two urban slums, Korogocho and Viwandani, in Nairobi County, the capital city of Kenya. They are located 7–12 kilometres away from the Nairobi Central Business District and about 7 kilometres away from each other. Viwandani has an ethnically diverse migrant population mainly seeking economic opportunities in the surrounding industries, whereas Korogocho has a more settled population that has lived there over several generations.25 The slum areas in Nairobi are characterised by a polluted environment, overcrowding, poor infrastructure, poor sanitation, a marked absence of the public services and debilitating poverty.26–28 These conditions, which exacerbate morbidity and mortality, disproportionately affect vulnerable groups such as children and the elderly.26 29
Data collection procedures
Trained research assistants collected data in August 2019 and September 2020. The research assistants had prior experience conducting qualitative interviews, were familiar with the slum communities and were fluent in English and Kiswahili, the two most common languages spoken in the study areas. The research assistants had no prior interactions with participants. The FGDs and IDIs were conducted before the COVID-19 pandemic in a central location within the community convenient for all the participants. The selected locations also ensured privacy and minimum disruptions. Data collection procedures for KII participants were adapted to include remote telephone interviews during the COVID-19 period. Participants were contacted a few days before the interviews to select a date and time that was most convenient for them to participate in the interviews. Participants were also briefed and encouraged to position themselves in a place that ensured privacy and minimal disruptions. Interviews were conducted using a structured study guide. The interviews lasted between 30 and 60 min for IDIs and KIIs, and up to 90 min for FGDs. The FGDs consisted of 8–10 participants. All interviews were audio-recorded and complemented by handwritten notes.
Data management and analysis
Audio-recorded files were transcribed verbatim and translated into English (FGDs and IDIs). NVivo software (QRS International 2018) was used to code the data. The data were analysed using content analysis method through the stages suggested by Graneheim and Lundman.30 We applied a deductive component informed by the ABM23 24 approach and an inductive one allowing for the identification of new themes from the data.31 The ABM provided the main guiding framework of analysis, enabling us to code and sort the data and identify the categories, predisposing, enabling and need factors driving the barriers to access to quality healthcare services in the urban slums. Because the ABM is flexible, we were able to add factors specific to the slum context as a new level of vulnerability. At the same time, the inductive approach identified recommendations to improve access to quality healthcare. Two researchers identified themes from the coded data. Two other researchers independently reviewed the themes. All the authors agreed on the themes. Additional recommendations were identified during participatory workshops in December 2019, April and June 2021 convened by the research teams and attended by community representatives, health providers and policymakers. Data saturation was achieved during the analysis.
Patient and public involvement
Participants were involved in the reporting and dissemination of our research. Recommendations were identified during participatory workshops in December 2019, April and June 2021 convened by the research teams and attended by community representatives, health providers and policymakers.
Results
Participants
The total number of participants for FGDs and IDIs were 127 (66 women and 61 men) for both Korogocho and Viwandani (table 1). About half the participants had always lived in the slums. The majority had received some healthcare service in the 6 months before the interview. On average, the key informant participants had served in the communities for 11 years (table 2). Most of the healthcare providers had attained tertiary education. On the other hand, most alternative caregivers had only attained primary level education.Barriers identified are grouped according to the thematic areas in the ABM and are described below:
Predisposing factors
Cultural norms
Health seeking behaviours and beliefs informed by the cultural norms of some of the community members were identified as a barrier to timely access to healthcareThe late medical seeking behaviours and some people from certain cultures that believe in witchcraft are challenging. They wait and do other things until the last moment when they come to us to seek medical services.
Religious beliefs
Membership in some religious groups were flagged as a deterrent to seeking services from formal medical sources. Despite the health promotion and sensitisation activities conducted by community health volunteers and the availability of free maternity health services, some community members are not willing to take up any of the services driven by their religious beliefs.There was one incident that happened recently. A sick child died because their religion does not allow them to go to the hospital. They thought that when a child is prayed for, they would heal.
Enabling factors
Individual level
Poverty and unaffordable healthcare
Limited financial resources and the relatively high cost of care were highlighted as challenges, given that most community members earn very little money from their workplaces.It’s no easy. People struggle to get that money when they are sick. Most people do casual jobs or go to the industrial area to look for menial jobs. So the money in informal settlements is limited, people cannot afford so many things.Many residents do not have health insurance and/or are unable to make payments to cover their premiums due to poverty. As a result, they have to make out-of-pocket payments when they need to access healthcare services.You see, to pay for those services, people pay out of their pockets because most people in this area don’t have NHIF [referring to the National Health Insurance Fund].Sometimes our clients, especially those who come with emergency cases, usually fail to pay and then we just have to let them go because there is nothing much we can do about it so in a way it is reducing our income.
Interpersonal level
Attitudes and skills of healthcare workers
Poor attitudes and skills of healthcare workers were reported as impediments to access to quality healthcare by residents in both slums.I also want to say that not all of them [health workers] treat people with respect and if they don’t know how to handle people with disability, I am requesting the government to give them time to be trained on how they should handle PLWD.
Organisational level
Services available
Although several health facilities are available, many can only provide basic health services. In many instances, residents have to be referred to facilities outside the slums for laboratory, imaging and specialist services.The services we lack in this area of Korogocho and particularly at the public health facility are X-ray and laboratory services. It is imperative to have a lab because for a doctor to know what a patient is suffering from, they must go to a lab. So we have experienced health workers, but there are no tools. They should also stock drugs.We offer medicine for free; the only challenge comes when we want to get lab tests. The lab tests are a challenge because we don’t have a lab within, so we send our patients to Kenyatta hospital to be tested. We get the result after, so this requires patients to come back for diagnosis, something that can take hours or days.
Availability of health workers
The limited availability of healthcare workers is a major concern, especially in public health facilities. Due to the limited number of health workers, patients spend a lot of time in the facilities. As a result, some opt to consult and buy drugs from chemists in the slums.As a facility, the challenge we face is mostly the human resource. Sometimes we are overwhelmed when giving the services.We have been having shortages of human resources, so most of the time you would find that patient would access quality services the challenges would be in long queues so someone would come to the health facility and spend half the day before they get the service. You should also imagine that if we have one clinician who works 8 am to 5 pm and is going to see 120 patients, by the time they are seeing their 50th patient, the quality might not be the same as the first 10 patients this clinician served.You can go to that hospital and queue for a long time.
Operating hours of healthcare facilities
Operating hours of facilities coupled with the limited number of public facilities were identified as barriers to regular access to care. The hours do not favour people who work during the day. Each of the slums has one public health facility.Let’s say in public hospitals they operate from 8 AM to 4 or 5 PM, but they are not available during the weekends. They close, so you will have to go to private since they open every day.So let us say private facilities are okay because they operate 24 hours, but the public hospitals close at 4 PM and don’t open on weekends. They operate from Monday to Friday.
Community level
Poor infrastructure, insecurity and environmental hazards
The hazardous environment in the slums was highlighted as a challenge to accessing healthcare. Poor roads, insecurity and inadequate water and sanitation facilities are major concerns limiting access to care and exposing others to infections.The roads are in a bad state when it is raining. The other challenge is that the way houses are structured in this area are congested even sometimes it is very hard for an ambulance to access when you have a patient who is severely sick.The challenges we face when we are sick and need to go to hospital…you have to pass through those drainages and also at the same time you are afraid of thieves because the security is not good.As regards insecurity, healthcare users noted that women were more at risk of being mugged.The challenge with insecurity in this place is that the two health facilities we have are located in dangerous spots. Young boys hide in alleys and snatch your phone and bag. They usually target women. In addition, my home is far from those hospitals.
Policy level
Inadequate financial resources
The governments low budget allocations and erratic reimbursement of the countries National Health Insurance Scheme—NHIF—is a barrier to health planning and service delivery.We have the health service fund that comes through the county that is one of our main funding and then the grants that come in from donors or through the government as well and the NHIF reimbursement that is usually given to those facilities that are NHIF accredited. But to be honest, the funds have not been quite adequate. Also, we have been having challenges with NHIF reimbursements. They delay, so you find like now there are some facilities that have not been paid for many months and they have been offering these services, so they are really struggling to see how to continue offering services.
Limited involvement in decision-making and political interference
The limited involvement of policy actors in decisions that directly affect the communities they serve is a critical challenge affecting health service delivery.Of course, sometimes what you would really want is not what comes on the ground. Sometimes you can prioritise something, maybe finish up a block, and then, due to political interference, you find some other work started alongside. Yet, those funds would have gone to a more prioritised initiative.Some of the decisions take long while we are not involved in other decisions, and when we make decisions, you find that whatever you have decided on has not been acted upon.
Accountability mechanisms
Mechanisms to enable community members and health providers to contribute to decisions related to their healthcare, such as suggestion boxes, health facility committees and other stakeholder forums, exist. However, these are not adequately used. This was highlighted by community members during the feedback sessions and confirmed by policymakers.We have barazas (community meetings) during which we share our experiences and suggestions on health and other matters like security. But what we say does not matter. Those private facilities are personal businesses. You cannot tell them what to do.The public is willing to give information, but what we have noticed is that they give information, and it’s not acted on. When you call them again, they tell you that you are wasting our time as we gave you suggestions which have not been implemented.The contributions we make take a long time because they involve many people after the meeting. When we attend the meetings, we have different stakeholders whom those chairing the meeting need to discuss what has been shared by the participants. That is the part that will take time before concrete decisions are reached.
Need factors
Community members related that the main reasons for seeking primary healthcare were respiratory conditions, injuries and care for pregnant women and children. This was confirmed by the health providers, who also added that chronic health conditions were reasons for seeking care by slum residents. Korogocho and Viwandani differ in some of their characteristics. Korogocho is home to the largest dumpsite in Nairobi City County (Dandora), hence more prone to infectious diseases related to poor hygiene.The common illnesses in Korogocho are diarrhoeal diseases, such as cholera and the rest. We also have cases of pneumonia and other respiratory tract infections because of the dumpsite that is just close to the hospital.The common illnesses are diarrhoea, pneumonia, accidents, and TB nowadays. The others are diabetes and hypertension.KII healthcare provider (male), Viwandani
The COVID-19 pandemic
Following the declaration of the global pandemic and the national restrictions to curb the spread of the disease that followed, the challenges above were heightened. Detailed analyses of the impact of the pandemic on healthcare access have been reported and published elsewhere.4 32 In addition to reduced access to care due to fear and curfews, community members lost their means of livelihood, making it harder for them to pay for healthcare directly or keep up to date with their health insurance premiums. Furthermore, policy actors reported that the supply of essential medicines was disrupted and available resources reallocated to respond to the pandemic crisis.We have had to balance here and there, especially since the COVID-19 pandemic started. We didn’t have a budget allocated for it, so we had to pool the resources to procure extra masks, gloves, sanitisers, things that were not required in large numbers before. So that affected our finances.
Recommendations to reduce healthcare access barriers
Several suggestions were made to address the barriers and improve health service utilisation at different levels and by different stakeholders. Recommendations included community, provider and system-level responses to address the identified barriers. The recommendations are cross-cutting and applicable to different levels. At the community level, members and their leaders strongly called for financial and risk protection, including access to affordable health insurance and more economic opportunities and health education to improve health-seeking were made.For health services to be better, the government should consider reducing the amount of money people pay for the NHIF card so that everybody can afford to pay. There are those people who are not employed, and they need that card, but because they have a low income, they can’t afford it.Provider level suggestions included increasing the number of public health facilities, the variety of health services and health workers’ numbers and their skills, and equipping facilities with the necessary equipment and regular drug supplies.For us to have better health services, a hospital should be constructed near us. The hospital should have enough drug stocks, have qualified nurses and doctors and operate 24 hours because a person can get sick anytime.While system-level suggestions included regulating the health providers’ work with more regular quality checks, more funding for health initiatives and better and effective decision-making processes.I think building the policies from the bottom–up would also be important rather than a top–down kind of an approach. Because we have some policies cascaded from up and implementing is challenging. The devising of these policies and involvement from bottom–up would be important.
Discussion
We explored current barriers to access to quality healthcare in two urban slums, highlighting several challenges that urban slum residents encounter in their pursuit of quality healthcare. We identified the predisposing, enabling and need factors that negatively impact the way residents of urban slums access healthcare. In addition to these, we noted that existing barriers were worsened by the COVID-19 pandemic. Across different population and stakeholder groups there was agreement that a combination of factors perpetuated health inequalities and limited access to healthcare. This was shown through the interaction of individual and family socioeconomic status (such as poverty and lack of health insurance), with community factors (such as poor infrastructure, limited availability of health facilities and insecurity) and health system factors (such as limited facility opening hours and health providers’ attitudes and skills, limited public health resources). It is also important to note that high levels of prevailing poverty contribute to high crime rates seen in the environment. This in turn prevents community members from going to health facilities and health providers shunning employment in these areas. The role of gender in limiting access to healthcare was evident under the nature of the environment, where insecurity played a role in preventing women from accessing health services. Insecurity has been reported in previous studies in the study sites as a major barrier to access and utilisation of maternal and child health services in the slums.33 The mentioning of non-communicable diseases such as hypertension and diabetes in one of the sites, Viwandani, reiterates the growing evidence on the burden of chronic conditions among the urban poor in this setting and similar settings.34 35Previous studies in the slums and other underserved areas in Kenya have identified similar barriers at individual and community levels.19 20 36 In our study, context-specific barriers to quality healthcare in the slums included heightened insecurity, poor infrastructure and poor sanitation and hygiene. These are in line with findings by other studies done in slum settings.9 10 In the 20009 and 201210 Nairobi Cross-Sectional Slum Surveys the hazardous environment in the slums characterised by the near absence of the public sector, limited access to healthcare and water and sanitation services, among others. As such, these challenges persist despite two decades of targeted investments in initiatives to reduce inequalities in the slums.An important challenge to tackling the barriers to access to quality healthcare in our context is policy formulation and key stakeholder engagement in that process. Service providers and other key stakeholders reported their inability to respond to the needs of the communities as most of the decisions about caregiving and services were made higher up, with significant implications on how limited health system resources are managed. It appears that devolution of health services through the 2010 constitution has not resulted in the much-needed empowering reforms at the subnational level or translated into effective care delivery for the most vulnerable, who are also the majority. Thus, bureaucracy and ineffective accountability mechanisms continue to entrench health inequalities that devolving health was to help resolve.37 38 In a devolved health system, it is necessary to pay attention to health managers’ abilities to assess population health needs and respond to them. In addition, the barriers reported regarding the limited use of existing accountability mechanisms need further attention to ensure that the mechanisms work for the greater good of the urban slum residents. For example, a recent systematic review demonstrated that inadequate human resources for health and limited funding of county health initiatives are a persistent barrier dating from the pre-devolution era.38The identified challenges reinforce the need to understand and respond to social determinants of health. Tackling these challenges requires multisectoral innovations, rather than the current siloed approach. This is also in line with the recommendations made by study participants to address existing gaps. Multisectoral strategies are needed to address individual, community and system-level barriers to quality healthcare in this slum settings to ensure health access for all.
Limitations
The nature of the study resulted in information from this setting and based on perspectives thus might not necessarily be applicable in other settings. Interviews conducted in Kiswahili may have resulted in loss of meaning during translation. However, we triangulated information from different sources (FGDs, IDIs and KIIs) and sought feedback from various stakeholders who validated the results. Furthermore, our results resonate with findings from other low-resource settings.
Conclusion
Despite many targeted interventions to improve the health and well-being of the urban poor, many slum residents are still unable to receive quality healthcare because of persistent and new barriers due to the COVID-19 pandemic. Multisectoral innovations are needed to reduce existing service delivery gaps.
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