Amy Jo Lisanti1,2, Nadya Golfenshtein2,3, Bradley S Marino4, Liming Huang2, Alexandra L Hanlon5, Alicia J Lozano5, Martha A Q Curley1,6, Barbara Medoff-Cooper1,2. 1. Research Institute, Children's Hospital of Philadelphia, Philadelphia, PA, USA. 2. Department of Family and Community Health, 16142School of Nursing, University of Pennsylvania, Philadelphia, PA, USA. 3. 26748Haifa University, Haifa, Israel. 4. Department of Pediatric Cardiology, Cleveland Clinic Children's, Cleveland, OH, USA. 5. Center for Biostatistics and Health Data Science, Department of Statistics, 1757Virginia Tech, Blacksburg, VA, USA. 6. 22508Nursing and Clinical Care Services, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Abstract
Background: The World Health Organization acknowledges quality of life (QOL) as subjectively perceived overall well-being by the individual and recognizes it as an essential construct for overall health and wellness. The purpose of this study was to examine the association of infant, environmental, and parental factors with the QOL of mothers of infants at four months post-hospital discharge from cardiac surgery. Methods: Secondary analysis of prospectively collected data from the REACH randomized clinical trial of telehealth home monitoring. The sample included mothers (n = 148) of infants with congenital heart disease who provided data at four months post-discharge. Ten imputations were generated using fully conditional specification methods to address missing data and were combined. All analyses were performed on the imputed data. Mothers' QOL was the main outcome of the analysis, as measured by the Ulm Quality of Life Inventory for Parents. Predictors on QOL were identified based on the World Health Organization QOL framework which recognizes the multidimensional domains influencing QOL that include personal factors, environmental factors, and physical factors related to disease and functioning. Results: The treatment and control groups did not differ on any study variable, thus data were collapsed and analyzed together. Final multivariable model found that the combination of dyadic adjustment, social support, parenting stress, and post-traumatic stress symptoms explained approximately three-quarters of the variance in QOL scores. Conclusions: QOL for mothers of infants with congenital heart disease is largely influenced by psychosocial factors. Future research targeted toward improving maternal QOL should include psychosocial interventions that address social networks and stress.
Background: The World Health Organization acknowledges quality of life (QOL) as subjectively perceived overall well-being by the individual and recognizes it as an essential construct for overall health and wellness. The purpose of this study was to examine the association of infant, environmental, and parental factors with the QOL of mothers of infants at four months post-hospital discharge from cardiac surgery. Methods: Secondary analysis of prospectively collected data from the REACH randomized clinical trial of telehealth home monitoring. The sample included mothers (n = 148) of infants with congenital heart disease who provided data at four months post-discharge. Ten imputations were generated using fully conditional specification methods to address missing data and were combined. All analyses were performed on the imputed data. Mothers' QOL was the main outcome of the analysis, as measured by the Ulm Quality of Life Inventory for Parents. Predictors on QOL were identified based on the World Health Organization QOL framework which recognizes the multidimensional domains influencing QOL that include personal factors, environmental factors, and physical factors related to disease and functioning. Results: The treatment and control groups did not differ on any study variable, thus data were collapsed and analyzed together. Final multivariable model found that the combination of dyadic adjustment, social support, parenting stress, and post-traumatic stress symptoms explained approximately three-quarters of the variance in QOL scores. Conclusions: QOL for mothers of infants with congenital heart disease is largely influenced by psychosocial factors. Future research targeted toward improving maternal QOL should include psychosocial interventions that address social networks and stress.
Entities:
Keywords:
congenital heart disease; infants; maternal stress; mothers; quality of life; social support
Authors: Pamela H Mitchell; Lynda Powell; James Blumenthal; Jennifer Norten; Gail Ironson; Carol Rogers Pitula; Erika Sivarajan Froelicher; Susan Czajkowski; Marston Youngblood; Marc Huber; Lisa F Berkman Journal: J Cardiopulm Rehabil Date: 2003 Nov-Dec Impact factor: 2.081
Authors: Saad Khoshhal; Khaled Al-Harbi; Ibrahim Al-Mozainy; Saeed Al-Ghamdi; Adnan Aselan; Mohammad Allugmani; Sherif Salem; Dina El-Agamy; Hany Abo-Haded Journal: Health Qual Life Outcomes Date: 2019-12-16 Impact factor: 3.186