Van M Ta Park1,2, Oanh L Meyer3, Janice Y Tsoh2,4, Alka M Kanaya2,5, Marian Tzuang1, Bora Nam1, Quyen Vuong6, Joon Bang7, Ladson Hinton8, Dolores Gallagher-Thompson9,10, Joshua D Grill11. 1. Department of Community Health Systems, School of Nursing, University of California San Francisco, San Francisco, California, USA. 2. Asian American Research Center on Health (ARCH), University of California San Francisco, San Francisco, California, USA. 3. Department of Neurology, School of Medicine, University of California Davis, Sacramento, California, USA. 4. Department of Psychiatry, University of California San Francisco, San Francisco, California, USA. 5. Department of Medicine, University of California San Francisco, San Francisco, California, USA. 6. International Children Assistance Network, Milpitas, California, USA. 7. National Asian Pacific Center on Aging, Seattle, Washington, USA. 8. Department of Psychiatry and Behavioral Sciences, University of California Davis, Davis, California, USA. 9. Stanford University School of Medicine, Stanford, California, USA. 10. Optimal Aging Center, Los Altos, California, USA. 11. Institute for Memory Impairments and Neurological Disorders, University of California Irvine, Irvine, California, USA.
Abstract
INTRODUCTION: Clinical research focused on aging, Alzheimer's disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs' participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE's launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research.
INTRODUCTION: Clinical research focused on aging, Alzheimer's disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs' participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE's launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research.
Authors: Benjamin Kasenda; Erik von Elm; John You; Anette Blümle; Yuki Tomonaga; Ramon Saccilotto; Alain Amstutz; Theresa Bengough; Joerg J Meerpohl; Mihaela Stegert; Kari A O Tikkinen; Ignacio Neumann; Alonso Carrasco-Labra; Markus Faulhaber; Sohail M Mulla; Dominik Mertz; Elie A Akl; Dirk Bassler; Jason W Busse; Ignacio Ferreira-González; Francois Lamontagne; Alain Nordmann; Viktoria Gloy; Heike Raatz; Lorenzo Moja; Rachel Rosenthal; Shanil Ebrahim; Stefan Schandelmaier; Sun Xin; Per O Vandvik; Bradley C Johnston; Martin A Walter; Bernard Burnand; Matthias Schwenkglenks; Lars G Hemkens; Heiner C Bucher; Gordon H Guyatt; Matthias Briel Journal: JAMA Date: 2014-03-12 Impact factor: 56.272
Authors: Jihad S Obeid; Catherine A McGraw; Brenda L Minor; José G Conde; Robert Pawluk; Michael Lin; Janey Wang; Sean R Banks; Sheree A Hemphill; Rob Taylor; Paul A Harris Journal: J Biomed Inform Date: 2012-11-10 Impact factor: 6.317
Authors: Rema Raman; Yakeel T Quiroz; Oliver Langford; Jiyoon Choi; Marina Ritchie; Morgan Baumgartner; Dorene Rentz; Neelum T Aggarwal; Paul Aisen; Reisa Sperling; Joshua D Grill Journal: JAMA Netw Open Date: 2021-07-01
Authors: S Walter; T B Clanton; O G Langford; M S Rafii; E J Shaffer; J D Grill; G A Jimenez-Maggiora; R A Sperling; J L Cummings; P S Aisen Journal: J Prev Alzheimers Dis Date: 2020
Authors: Van Ta Park; Janice Y Tsoh; Marcelle Dougan; Bora Nam; Marian Tzuang; Quyen N Vuong; Joon Bang; Oanh L Meyer Journal: J Med Internet Res Date: 2022-08-09 Impact factor: 7.076