Literature DB >> 35396151

Helping the Helpers - A research protocol for user-centered technology to aid caregiver management of medications for people with Alzheimer's disease and related dementias.

Nicole E Werner1, Noll L Campbell2, Malaz Boustani3, Aaron Ganci4, Richard J Holden5.   

Abstract

BACKGROUND AND
OBJECTIVE: Systematically supporting caregiver-assisted medication management through IT interventions is a critical area of need toward improving outcomes for people living with ADRD and their caregivers, but a significant gap exists in the evidence base from which IT interventions to support caregivers' medication tasks can be built. User-centered design can address the user needs evidence gap and provide a scientific mechanism for developing IT interventions that meet caregivers' needs. The present study employs the three phases of user-centered design to address the first two stages of the NIH Stage Model for Behavioral Intervention Development.
METHODS: We will conduct a three-phase study employing user-centered design techniques across three aims: Aim 1) assess the needs of ADRD caregivers who manage medications for people with ADRD (Stage 0); Aim 2) co-design a prototype IT intervention to support caregiver-assisted medication management collaboratively with ADRD caregivers (Stage IA); and Aim 3) feasibility test the prototype IT intervention with ADRD caregivers (Stage IB). DISCUSSION: Our user-centered design protocol provides a template for integrating the three phases of user-centered design to address the first two stages of the NIH Stage Model that can be used broadly by researchers who are developing IT interventions for ADRD caregivers.
Copyright © 2022 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Alzheimer's disease and related dementias; Caregivers; Dementia caregiving; Human-centered design; Medication management; Mobile app; User-centered design; mHealth

Mesh:

Year:  2022        PMID: 35396151      PMCID: PMC9308637          DOI: 10.1016/j.sapharm.2022.03.014

Source DB:  PubMed          Journal:  Res Social Adm Pharm        ISSN: 1551-7411


  50 in total

1.  Medication management concerns of ethnic minority family caregivers of people living with dementia.

Authors:  Robyn J Gillespie; Lindsey Harrison; Judy Mullan
Journal:  Dementia (London)       Date:  2013-05-23

2.  Comorbidity and polypharmacy in people with dementia: insights from a large, population-based cross-sectional analysis of primary care data.

Authors:  Fiona Clague; Stewart W Mercer; Gary McLean; Emma Reynish; Bruce Guthrie
Journal:  Age Ageing       Date:  2017-01-13       Impact factor: 10.668

3.  Reenvisioning Clinical Science: Unifying the Discipline to Improve the Public Health.

Authors:  Lisa S Onken; Kathleen M Carroll; Varda Shoham; Bruce N Cuthbert; Melissa Riddle
Journal:  Clin Psychol Sci       Date:  2014-01-01

4.  Medication management and adherence among cognitively impaired older adults.

Authors:  Victoria Cotrell; Katherine Wild; Theresa Bader
Journal:  J Gerontol Soc Work       Date:  2006

5.  Medication management: the perspectives of people with dementia and family carers.

Authors:  Christine While; Fleur Duane; Christine Beanland; Susan Koch
Journal:  Dementia (London)       Date:  2012-04-16

6.  Patient decision-making personas: An application of a patient-centered cognitive task analysis (P-CTA).

Authors:  Richard J Holden; Carly N Daley; Robin S Mickelson; Davide Bolchini; Tammy Toscos; Victor P Cornet; Amy Miller; Michael J Mirro
Journal:  Appl Ergon       Date:  2020-04-15       Impact factor: 3.661

7.  Community involvement and awareness raising for better development, access and use of medicines: The transformative potential of photovoice.

Authors:  Lourdes Cantarero-Arévalo; Amy Werremeyer
Journal:  Res Social Adm Pharm       Date:  2021-06-10

8.  From tasks to processes: the case for changing health information technology to improve health care.

Authors:  James M Walker; Pascale Carayon
Journal:  Health Aff (Millwood)       Date:  2009 Mar-Apr       Impact factor: 6.301

9.  A multi-centre survey among informal carers who manage medication for older care recipients: problems experienced and development of services.

Authors:  Felicity Smith; Sally-Anne Francis; Nicola Gray; Michael Denham; Jonathan Graffy
Journal:  Health Soc Care Community       Date:  2003-03

10.  Towards an understanding of the burdens of medication management affecting older people: the MEMORABLE realist synthesis.

Authors:  Ian Maidment; Sally Lawson; Geoff Wong; Andrew Booth; Anne Watson; Hadar Zaman; Judy Mullan; Jane McKeown; Sylvia Bailey
Journal:  BMC Geriatr       Date:  2020-06-05       Impact factor: 3.921

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