Literature DB >> 35392191

Who's included? The role of the Clinical Research Nurse in enabling research participation for under-represented and under-served groups.

Kelly Beer1, Melanie Gentgall2, Nicola Templeton3, Claire Whitehouse4, Nicola Straiton5.   

Abstract

Background: There is a global call for more inclusive clinical research that is representative of all populations, particularly those historically under-represented or under-served. A lack of broad representation results in disproportionate health outcomes and limits the applicability and translation of research findings. Aim: Identify and describe barriers to participation across the research lifecycle and consider the role of the Clinical Research Nurse (CRN) in promoting inclusivity, including for Aboriginal and Torres Strait Islander Peoples within Australia. Discussion: Review of recent literature and best practice identified barriers to research participation across the research process; at system, participant and practitioner levels. This discussion paper explores the role of the CRN; acting as enablers, facilitators and navigators, to mitigate participation barriers.
Conclusion: With their comprehensive understanding of the research process, clinical care pathways, reflective practices and participant-centred approaches, CRNs are uniquely positioned to advocate for greater equity in access to clinical research and to motivate stakeholders across the research enterprise to embed inclusive approaches in the design, conduct and dissemination of research. Implications for Practice: An in-depth understanding of the research process, self, and cultural norms of the populations they serve is essential for CRNs to effectively advocate for equity in access to research.
© The Author(s) 2022.

Entities:  

Keywords:  Australia; community-based participatory research; cultural diversity; health equity; health services accessibility; nurses’ role

Year:  2022        PMID: 35392191      PMCID: PMC8980581          DOI: 10.1177/17449871221077076

Source DB:  PubMed          Journal:  J Res Nurs        ISSN: 1744-9871


  29 in total

1.  The New South Wales Adult Health Survey 2002.

Authors: 
Journal:  N S W Public Health Bull       Date:  2003

2.  Enrolling Minority and Underserved Populations in Cancer Clinical Research.

Authors:  Sherrie F Wallington; Chiranjeev Dash; Vanessa B Sheppard; Tawara D Goode; Bridget A Oppong; Everett E Dodson; Rhonda N Hamilton; Lucile L Adams-Campbell
Journal:  Am J Prev Med       Date:  2015-10-21       Impact factor: 5.043

3.  Under-representation of minority ethnic groups in research--call for action.

Authors:  Sabi Redwood; Paramjit S Gill
Journal:  Br J Gen Pract       Date:  2013-07       Impact factor: 5.386

4.  Clinical research benefits go viral via Twitter.

Authors:  Claire L Gibbs; Abby Greaves; Michael Keeling; Allan Gaw; Fiona O'Neill
Journal:  Nurs Times       Date:  2015 May 6-12

5.  Health Literacy among Medically Underserved: The Role of Demographic Factors, Social Influence, and Religious Beliefs.

Authors:  Shannon M Christy; Clement K Gwede; Steven K Sutton; Enmanuel Chavarria; Stacy N Davis; Rania Abdulla; Chitra Ravindra; Ida Schultz; Richard Roetzheim; Cathy D Meade
Journal:  J Health Commun       Date:  2017-11-10

6.  Facilitators and barriers to implementation of a pragmatic clinical trial in Aboriginal health services.

Authors:  Hueming Liu; Tracey-Lea Laba; Luciana Massi; Stephen Jan; Tim Usherwood; Anushka Patel; Noel E Hayman; Alan Cass; Anne-Marie Eades; Chris Lawrence; David P Peiris
Journal:  Med J Aust       Date:  2015-07-06       Impact factor: 7.738

Review 7.  Strategies addressing barriers to clinical trial enrollment of underrepresented populations: a systematic review.

Authors:  Caren Heller; Joyce E Balls-Berry; Jill Dumbauld Nery; Patricia J Erwin; Dawn Littleton; Mimi Kim; Winston P Kuo
Journal:  Contemp Clin Trials       Date:  2014-08-15       Impact factor: 2.226

8.  Broadening Eligibility Criteria to Make Clinical Trials More Representative: American Society of Clinical Oncology and Friends of Cancer Research Joint Research Statement.

Authors:  Edward S Kim; Suanna S Bruinooge; Samantha Roberts; Gwynn Ison; Nancy U Lin; Lia Gore; Thomas S Uldrick; Stuart M Lichtman; Nancy Roach; Julia A Beaver; Rajeshwari Sridhara; Paul J Hesketh; Andrea M Denicoff; Elizabeth Garrett-Mayer; Eric Rubin; Pratik Multani; Tatiana M Prowell; Caroline Schenkel; Marina Kozak; Jeff Allen; Ellen Sigal; Richard L Schilsky
Journal:  J Clin Oncol       Date:  2017-10-02       Impact factor: 44.544

9.  Clinical trials in a remote Aboriginal setting: lessons from the BOABS smoking cessation study.

Authors:  Julia V Marley; Tracey Kitaura; David Atkinson; Sue Metcalf; Graeme P Maguire; Dennis Gray
Journal:  BMC Public Health       Date:  2014-06-10       Impact factor: 3.295

10.  Research nurses rising to the challenges of COVID-19.

Authors:  Fiona Maxton; Philip Darbyshire; David R Thompson
Journal:  J Clin Nurs       Date:  2020-10-06       Impact factor: 4.423

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