Martina Roes1,2, Franziska Laporte Uribe3,4, Viktoria Peters-Nehrenheim3, Carolien Smits5, Aud Johannessen6, Georgina Charlesworth7, Sahdia Parveen8, Nicole Mueller9, Catrin Hedd Jones10, René Thyrian11,12, Jessica Monsees11, Hürrem Tezcan-Güntekin13. 1. Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Witten, Germany. martina.roes@dzne.de. 2. Witten/Herdecke University, Stockumer Str. 12, 58453, Witten, Germany. martina.roes@dzne.de. 3. Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Witten, Germany. 4. Witten/Herdecke University, Stockumer Str. 12, 58453, Witten, Germany. 5. PharosDutch Centre of Expertise on Health Disparities, Radboud University, Zwolle, Overijssel, The Netherlands. 6. Faculty of Health and Social Sciences, Department of Health, Social and Welfare Studies, University of South-Eastern Norway, Campus Vestfold, Kongsberg, Norway. 7. Department of Molecular Neuroscience, Neurogenetics, UCL Institute of Neurology, University College London, London, UK. 8. Centre For Applied Dementia Studies, University of Bradford, Bradford, UK. 9. Department in Speech and Hearing Sciences, University College Cork, Cork, Ireland. 10. School of Health Sciences, Bangor University, Bangor, UK. 11. Deutsches Zentrum für Neurodegenerative Erkrankungen, Rostock/Greifswald, Germany. 12. Universitätsmedizin Greifswald, Greifswald, Germany. 13. Alice Salomon Hochschule Berlin, Berlin, Germany.
Abstract
BACKGROUND: Despite the care and support needs of migrants affected by dementia differing from the population of the country where they live now, most European countries do not provide specific strategies to address migration in their national dementia plans. The concept of intersectionality provides an innovative approach to dementia care perspectives and methodologies. OBJECTIVE: The aim is to define intersectionality and to provide examples of applying the concept to dementia care research, focusing on people with a migration background. METHODS: This article was conceptualized and discussed during virtual INTERDEM taskforce meetings in 2020/2021, while discussing identified literature on intersectionality, migration, and dementia care research. RESULTS: Using an intersectionality framework allows understanding of a person's lived experience by considering the dimensionality, co-occurrence and interlocking of factors (e.g., sex/gender, socioeconomic status, ethnicity, migration status, geographic location/place). CONCLUSION: Intersectionality can be applied as a conceptual and methodological approach to identify and address gaps in perspectives and in (dementia care) research to overcome the threat of ignorance, exclusion and discrimination.
BACKGROUND: Despite the care and support needs of migrants affected by dementia differing from the population of the country where they live now, most European countries do not provide specific strategies to address migration in their national dementia plans. The concept of intersectionality provides an innovative approach to dementia care perspectives and methodologies. OBJECTIVE: The aim is to define intersectionality and to provide examples of applying the concept to dementia care research, focusing on people with a migration background. METHODS: This article was conceptualized and discussed during virtual INTERDEM taskforce meetings in 2020/2021, while discussing identified literature on intersectionality, migration, and dementia care research. RESULTS: Using an intersectionality framework allows understanding of a person's lived experience by considering the dimensionality, co-occurrence and interlocking of factors (e.g., sex/gender, socioeconomic status, ethnicity, migration status, geographic location/place). CONCLUSION: Intersectionality can be applied as a conceptual and methodological approach to identify and address gaps in perspectives and in (dementia care) research to overcome the threat of ignorance, exclusion and discrimination.