Literature DB >> 35362339

"[I] don't wanna just be like a cog in the machine": Narratives of autism and skilled employment.

Dora M Raymaker1, Mirah Sharer1, Joelle Maslak2, Laurie E Powers1, Katherine E McDonald3, Steven K Kapp4, Ian Moura1,2, Anna Furra Wallington2, Christina Nicolaidis1,5.   

Abstract

LAY ABSTRACT: Autistic people are less likely to be employed than the general population. Autistic people with skilled training (e.g. training for jobs in acting, plumbing, science, or social work) might be even less likely to get a good job in their field. Little is known about the experiences of autistic people in skilled employment or what employment success means to them. We interviewed 45 autistic people with skilled training in a wide range of fields, 11 job supervisors, and 8 topic experts. We asked them about their experiences, what they felt helped them to be successful at work, and what employment success means to them. Participants talked about the high stakes of disclosure, taking unconventional pathways to careers, disconnects with service and support systems, mental health challenges from trauma and burnout, the autistic advantages in the workplace, and complex dimensions of discrimination. Participants said success meant opportunities for growth, good work/life balance, financial independence, sense of community, and feeling valued, accepted, and like their work had meaning. Things that helped them be successful included flexible, accepting workplaces, supportive and respectful supervisors, and direct communication. What we learned suggests that an individualized, wholistic approach to autism employment intervention that considers both employers and employees and employee mental health could be useful. We also recommend more research into disclosure and destigmatizing disability at work.

Entities:  

Keywords:  adults; autism; community based participatory research; employment; employment services; qualitative research; vocational/labor force participation

Year:  2022        PMID: 35362339      PMCID: PMC9525447          DOI: 10.1177/13623613221080813

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  23 in total

1.  Community-based participatory research: policy recommendations for promoting a partnership approach in health research.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Educ Health (Abingdon)       Date:  2001

2.  Employment for adults with autism spectrum disorders: A retrospective review of a customized employment approach.

Authors:  Paul Wehman; Valerie Brooke; Alissa Molinelli Brooke; Whitney Ham; Carol Schall; Jennifer McDonough; Stephanie Lau; Hannah Seward; Lauren Avellone
Journal:  Res Dev Disabil       Date:  2016-02-06

Review 3.  The relationship between job satisfaction and health: a meta-analysis.

Authors:  E B Faragher; M Cass; C L Cooper
Journal:  Occup Environ Med       Date:  2005-02       Impact factor: 4.402

4.  The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants.

Authors:  Christina Nicolaidis; Dora Raymaker; Steven K Kapp; Amelia Baggs; E Ashkenazy; Katherine McDonald; Michael Weiner; Joelle Maslak; Morrigan Hunter; Andrea Joyce
Journal:  Autism       Date:  2019-04-03

Review 5.  Employment programmes and interventions targeting adults with autism spectrum disorder: A systematic review of the literature.

Authors:  Darren Hedley; Mirko Uljarević; Lauren Cameron; Santoshi Halder; Amanda Richdale; Cheryl Dissanayake
Journal:  Autism       Date:  2016-08-18

6.  Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers' Perspective.

Authors:  Jessica Dreaver; Craig Thompson; Sonya Girdler; Margareta Adolfsson; Melissa H Black; Marita Falkmer
Journal:  J Autism Dev Disord       Date:  2020-05

7.  Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.

Authors:  Christina Nicolaidis; Dora Raymaker; Katherine McDonald; Sebastian Dern; Elesia Ashkenazy; Cody Boisclair; Scott Robertson; Amanda Baggs
Journal:  Prog Community Health Partnersh       Date:  2011

8.  Engagement in vocational activities promotes behavioral development for adults with autism spectrum disorders.

Authors:  Julie Lounds Taylor; Leann E Smith; Marsha R Mailick
Journal:  J Autism Dev Disord       Date:  2014-06

9.  The long-term impact of employment on mental health service use and costs for persons with severe mental illness.

Authors:  Philip W Bush; Robert E Drake; Haiyi Xie; Gregory J McHugo; William R Haslett
Journal:  Psychiatr Serv       Date:  2009-08       Impact factor: 3.084

10.  "Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew": Defining Autistic Burnout.

Authors:  Dora M Raymaker; Alan R Teo; Nicole A Steckler; Brandy Lentz; Mirah Scharer; Austin Delos Santos; Steven K Kapp; Morrigan Hunter; Andee Joyce; Christina Nicolaidis
Journal:  Autism Adulthood       Date:  2020-06-10
View more
  1 in total

1.  Using the COM-B Model and Theoretical Domains Framework to Understand Workplace Disclosure Experiences, Influencers, and Needs Among Autistic Young Adults.

Authors:  Vanessa Tomas; Shauna Kingsnorth; Bonnie Kirsh; Evdokia Anagnostou; Sally Lindsay
Journal:  J Autism Dev Disord       Date:  2022-09-28
  1 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.