| Literature DB >> 35328988 |
Elżbieta Szlenk-Czyczerska1, Marika Guzek2, Dorota Emilia Bielska3, Anna Ławnik4, Piotr Polański5, Donata Kurpas6.
Abstract
The World Health Organization defines quality of life as a person's perception of his or her life situation in relation to the culture and value system in which he or she lives, in relation to and with respect to his or her functioning assumptions, expectations, and standards set by environmental conditions. Meeting the expectations of patients with CVD is one of the factors that positively influences their health status and leads to better diagnostic and treatment outcomes. The aim of this study was to answer three main questions related to patients with chronic cardiovascular disease: (1) What is their quality of life? (2) Are patients' expectations about the quality of care provided by primary health care physicians/nurses met (and at what level)? (3) Is there a correlation between patients' quality of life and their expectations of primary health care physicians/nurses? The study involved 193 Polish CVD patients who were cared for at home by a family nurse practitioner working in primary health care facilities. Data were collected from March 2016 to January 2017. The WHOQOL-BREF Quality of Life Questionnaire and the Author Interview Questionnaire were used for the study. Data analysis was based on the Spearman correlation coefficient test. There was a statistically significant association between patients' expectations of the physician regarding information about the course of the disease and quality of life in the following domains: environmental r = 0.20, p = 0.006, psychological: r = 0.18, p = 0.015, physical: r = 0.18, p = 0.013, and social: r = 0.16, p = 0.025. Patients who did not expect the nurse to be courteous, understanding, or interested were found to have higher quality of life scores in psychological (r = -0.17, p = 0.023) and physical (r = -0.15, p = 0.044) domains. There was a statistically significant relationship between expectations of care from nurses regarding intimacy during care activities and the level of satisfaction with one's own health (r = -0.15, p = 0.038) and quality of life (r = -0.14, p = 0.045), as well as quality of life in the domains of physical (r = 0.21, p = 0.004), social (r = 0.19, p = 0.010), and psychological (r = 0.16, p = 0.024). There is a need to define the expectations of patients with chronic cardiovascular disease in primary care, as lack of expectations of a physician/nurse continues to be associated with lower quality of life in all domains.Entities:
Keywords: chronic cardiovascular disease; expectations; patients; quality of life level
Mesh:
Year: 2022 PMID: 35328988 PMCID: PMC8949918 DOI: 10.3390/ijerph19063300
Source DB: PubMed Journal: Int J Environ Res Public Health ISSN: 1660-4601 Impact factor: 3.390
Sociodemographic data of patients with CVD (n = 193 *).
| Variable |
| M | SD | Q. 25% | Me | Q. 75% | Min | Max | SW Test |
|---|---|---|---|---|---|---|---|---|---|
| Age | 193 | 70.50 | 16.90 | 62.00 | 74.00 | 84.00 | 18.00 | 100.00 | |
| Duration | 187 * | 11.44 | 7.95 | 5.00 | 10.00 | 15.00 | 1.00 | 36.00 | |
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| Gender | Women | 131 | 68.2 | χ2—25.52 | |||||
| Men | 61 | 31.8 | |||||||
| Total | 192 * | 100 | |||||||
| Education | Primary | 59 | 31.2 | χ2—128.3 | |||||
| Vocational | 48 | 25.4 | |||||||
| Secondary without Matura exam | 48 | 25.4 | |||||||
| Secondary with Matura exam | 10 | 5.3 | |||||||
| Postsecondary | 4 | 2.1 | |||||||
| BA | 19 | 10.1 | |||||||
| MA | 1 | 0.5 | |||||||
| Total | 189 * | 100 | |||||||
| Staying | Yes | 88 | 47.3 | χ2—0.54 | |||||
| No | 98 | 52.7 | |||||||
| Total | 186 | 100 | |||||||
| Place of residence | Urban | 117 | 60.6 | χ2—8.71 | |||||
| Rural | 76 | 39.4 | |||||||
| Total | 193 | 100 | |||||||
| Financial situation | Very good (above PLN 3001 per person in the family) | 5 | 2.7 | χ2—175.88 | |||||
| Good (from PLN 2001–3000 per person in family) | 47 | 25.7 | |||||||
| Average (from PLN 1001–2000 per person in family) | 100 | 54.6 | |||||||
| Bad (from PLN 501–1000 per person in family) | 30 | 16.4 | |||||||
| Very bad (up to PLN 500 per person in family) | 1 | 0.5 | |||||||
| Total | 183 * | 100 | |||||||
Legend: n—group quantity; %—percentage; M—mean; SD—standard deviation; Q. 25%—first quartile; Me—median; Q. 75%—third quartile; Min.—minimum; Max.—maximum; p—calculated level of significance for standard test Shapiro–Wilk; BA—bachelor’s degree; MA—Master’s degree; χ2—test statistic Chi2; df—degrees of freedom * The figures in column n do not sum up to 193 due to missing data.
The distribution of WHOQOL-BREF variables in the research group (n = 193 *).
| Variable | Categories |
| % | |
|---|---|---|---|---|
| Number of Points on the Scale | Evaluation | |||
| WHOQOL-BREFQoL Perception | 1 | Very dissatisfied | 73 | 39.5 |
| 2 | Dissatisfied | 68 | 36.8 | |
| 3 | Neither satisfied nor dissatisfied | 5 | 2.7 | |
| 4 | Satisfied | 11 | 5.9 | |
| 5 | Very satisfied | 28 | 15.1 | |
| Total | 185 * | 100.0 | ||
| WHOQOL-BREFHealth Perception | 1 | Very dissatisfied | 45 | 24.3 |
| 2 | Dissatisfied | 63 | 34.1 | |
| 3 | Neither satisfied nor dissatisfied | 10 | 5.4 | |
| 4 | Satisfied | 4 | 2.2 | |
| 5 | Very satisfied | 63 | 34.1 | |
| Total | 185 * | 100.0 | ||
| WHOQOL-BREFPhysical Domain | (0–5) | Dissatisfied | 3 | 1.6 |
| (5–10) | Rather dissatisfied | 50 | 26.6 | |
| (10–15) | Rather satisfied | 103 | 54.8 | |
| (15–20) | Satisfied | 32 | 17.0 | |
| Total | 188 * | 100.0 | ||
| WHOQOL-BREFPsychological Domain | (0–5) | Dissatisfied | 2 | 1.1 |
| (5–10) | Rather dissatisfied | 44 | 23.4 | |
| (10–15) | Rather satisfied | 112 | 59.6 | |
| (15–20) | Satisfied | 30 | 16.0 | |
| Total | 188 * | 100.0 | ||
| WHOQOL-BREFSocial Relations Domain | (0–5) | Dissatisfied | 1 | 0.5 |
| (5–10) | Rather dissatisfied | 35 | 18.6 | |
| (10–15) | Rather satisfied | 101 | 53.7 | |
| (15–20) | Satisfied | 51 | 27.1 | |
| Total | 188 * | 100.0 | ||
| WHOQOL-BREFEnvironmental Domain | (0–5) | Dissatisfied | 1 | 0.5 |
| (5–10) | Rather dissatisfied | 9 | 4.8 | |
| (10–15) | Rather satisfied | 126 | 67.0 | |
| (15–20) | Satisfied | 52 | 27.7 | |
| Total | 188 * | 100.0 | ||
Legend: n—group quantity; %—percentage. * The figures in column n do not sum up to 193 due to missing data.
The assessment of QoL according to the WHOQOL-BREF (n = 193 *).
| Variable |
| M | SD | Min | Q. 25% | Me | Q. 75% | Max | Wilcoxon Test | Quade Test | ||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| V |
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| WHOQOL-BREF | 185 * | 2.21 | 1.41 | 1 | 1 | 2 | 2 | 5 | 898 |
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| WHOQOL-BREF | 185 * | 2.88 | 1.64 | 1 | 2 | 2 | 5 | 5 | ||||||
| WHOQOL-BREF | 188 * | 11.78 | 3.39 | 4.57 | 9.71 | 12 | 13.86 | 19.43 |
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| WHOQOL-BREF | 188 * | 11.81 | 2.93 | 4 | 10 | 11.33 | 14 | 19.33 |
| 0.81 | - | - | ||
| WHOQOL-BREF | 188 * | 13.02 | 3.24 | 4 | 10.67 | 13.33 | 16 | 20 |
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| - | ||
| WHOQOL-BREF | 188 * | 13.26 | 2.47 | 4.5 | 11.5 | 13.5 | 15 | 19.43 |
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| 0.65 | ||
Legend: PD—WHOQOL-BREF physical domain; PsD—WHOQOL-BREF psychological domain; SRD—social relationship domain; ED—environmental domain; n—group quantity; M—mean; SD—standard deviation; Q. 25%—first quartile; Me—median; Q. 75%—third quartile; Min.—minimum; Max.—maximum; Wilcoxon test: V—value of test statistic; p—calculated significance level; Quade test of multiple comparisons: p—calculated significance level of the Quade test for each pair of variables (domains). Calculated significance levels of p which value was less than 0.05 are highlighted in bold. * The figures in column n do not sum up to 193 due to missing data.
The expectations of CVD patients towards a PHC physician or nurse (n = 193 *).
| Variable | Categories |
| % | Chi2 Test |
|---|---|---|---|---|
| Expectations towards | None of the below | 76 | 39.4 | χ2—8.71 |
| Higher availability in case of a necessity | 117 | 60.6 | ||
| Total | 193 | 100 | ||
| None of the below | 122 | 63.2 | χ2—13.48 | |
| Informing about course | 71 | 36.8 | ||
| Total | 193 | 100 | ||
| None of the below | 89 | 46.1 | χ2—1.17 | |
| Courtesy, showing understanding and interest | 104 | 53.9 | ||
| Total | 193 | 100 | ||
| None of the below | 156 | 80.8 | χ2—73.37 | |
| Providing privacy during examinations | 37 | 19.2 | ||
| Total | 193 | 100 | ||
| Expectations towards | None of the below | 164 | 85 | χ2—94.43 |
| Higher manual skills in nursing activities | 29 | 15 | ||
| Total | 193 | 100 | ||
| None of the below | 87 | 45.1 | χ2—1.87 | |
| Higher availability in case of a necessity | 106 | 54.9 | ||
| Total | 193 | 100 | ||
| None of the below | 104 | 53.9 | χ2—1.17 | |
| Courtesy, showing understanding and interest | 89 | 46.1 | ||
| Total | 193 | 100 | ||
| None of the below | 160 | 82.9 | χ2—83.57 | |
| Providing privacy in nursing activities | 33 | 17.1 | ||
| Total | 193 | 100 | ||
| Does the consciousness of the nurse’s presence and their visits make you feel safer in the course of your disease? | Yes | 133 | 71.5 | χ2—134.23 |
| No | 7 | 3.8 | ||
| No opinion | 46 | 24.7 | ||
| Total | 186 * | 100 | ||
| Do the nursing visits improve your mental well-being? | Yes | 121 | 66.5 | χ2—103.86 |
| No | 10 | 5.5 | ||
| No opinion | 51 | 28 | ||
| Total | 182 * | 100 | ||
| If “yes”, why? | None of the below | 117 | 60.6 | χ2—8.71 |
| I always feel better | 76 | 39.4 | ||
| Total | 193 | 100 | ||
| None of the below | 144 | 74.6 | χ2—46.76 | |
| I have more strength to fight the disease and its symptoms | 49 | 25.4 | ||
| Total | 193 | 100 | ||
| None of the below | 162 | 83.9 | χ2—88.92 | |
| I am full of hope | 31 | 16.1 | ||
| Total | 193 | 100 |
Legend: n—group quantity; %—percentage; χ2—test statistic Chi2; df—degrees of freedom. * The figures in column n do not sum up to 193 due to missing data.
The correlation between expectations of a PHC physician and the level of the QoL.
| Variable | WHOQOL-BREF | |||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| QoL Perception | Health | Physical | Psychological Domain | Social Relations | Environmental Domain | |||||||
| What are your expectations towards a PHC physician? | ||||||||||||
| r |
| r |
| r |
| r |
| r |
| r |
| |
| Higher availability in case of a | −0.07 | 0.351 | −0.04 | 0.606 | 0.06 | 0.438 | 0.03 | 0.674 | 0.08 | 0.286 | −0.01 | 0.868 |
| Informing about the course of the disease | −0.04 | 0.538 | −0.13 | 0.068 | 0.18 | 0.013 | 0.18 | 0.015 | 0.16 | 0.025 | 0.20 | 0.006 |
| Courtesy, showing understanding and interest | 0.07 | 0.330 | −0.08 | 0.243 | 0.07 | 0.363 | 0.07 | 0.324 | 0.05 | 0.462 | 0.12 | 0.092 |
| Providing privacy during examinations | −0.18 | 0.014 | −0.32 | <0.001 | 0.27 | <0.001 | 0.21 | 0.003 | 0.14 | 0.048 | 0.23 | 0.002 |
Legend: r—Spearman’s correlation coefficient, r—at p ≤ 0.05.
The correlation between the expectations towards a family nurse and the level of the QoL.
| WHOQOL-BREF | ||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Variable | QoL Perception | Health | Physical | Psychological Domain | Social Relations | Environmental Domain | ||||||
| What are your expectations towards a family nurse? | ||||||||||||
| r |
| r |
| r |
| r |
| r |
| r |
| |
| Higher manual skills | −0.01 | 0.871 | −0.10 | 0.154 | 0.04 | 0.610 | −0.02 | 0.792 | 0.01 | 0.916 | −0.07 | 0.361 |
| Higher availability in case of a necessity | 0.00 | 0.974 | −0.06 | 0.375 | 0.07 | 0.370 | 0.08 | 0.251 | 0.02 | 0.771 | 0.00 | 0.962 |
| Courtesy, showing | 0.12 | 0.109 | 0.05 | 0.468 | −0.15 | 0.044 | −0.17 | 0.023 | −0.03 | 0.643 | −0.09 | 0.229 |
| Providing privacy during nursing activities | −0.14 | 0.045 | −0.15 | 0.038 | 0.21 | 0.004 | 0.16 | 0.024 | 0.19 | 0.010 | 0.13 | 0.067 |
Legend: r—Spearman’s correlation coefficient, r—at p ≤ 0.05.