Merethe Wenaas1, Helle Wessel Andersson2, Riina Kiik3, Anne Juberg3. 1. Møre og Romsdal Hospital Trust, Alesund, Norway. 2. St. Olav's University Hospital, Trondheim, Norway. 3. Norwegian University of Science and Technology, Trondheim, Norway.
Abstract
Background: People with substance use disorders (SUD) and concurrent mental health disorders often need prolonged, coordinated health and welfare services. Interprofessional team meetings are designed to tailor services to users' needs and should be based on interprofessional collaboration involving the user. Aims: To investigate service users' experiences with interprofessional team meetings and to identify potential barriers to successful user involvement. Methods: Semi-structured interviews with five male service users aged 27-36 years with concurrent substance use and psychiatric disorders, and observations of team meetings involving both users and relevant professionals. Users were interviewed shortly after commencing treatment and after the team meeting. A phenomenographical approach framed the data analysis. Results: Users described the interprofessional team meetings as less than useful, and perceived that lack of a targeted process and of information hindered their collaboration with professionals. Observations revealed that users were given a subordinate role in the meetings, which largely undermined their involvement. Three categories reflecting lack of information as a core obstacle to user involvement emerged from the data material: (i) unclear role responsibilities and unclear professional role functions, (ii) unclear practices regarding rules and routines, and (iii) absence of user knowledge. Conclusions: User involvement in team meetings may be improved by facilitating adequate information, clarifying role expectations, emphasising user knowledge, increasing professionals' awareness of the importance of collaboration, and by teaching skills that enhance user involvement.
Background: People with substance use disorders (SUD) and concurrent mental health disorders often need prolonged, coordinated health and welfare services. Interprofessional team meetings are designed to tailor services to users' needs and should be based on interprofessional collaboration involving the user. Aims: To investigate service users' experiences with interprofessional team meetings and to identify potential barriers to successful user involvement. Methods: Semi-structured interviews with five male service users aged 27-36 years with concurrent substance use and psychiatric disorders, and observations of team meetings involving both users and relevant professionals. Users were interviewed shortly after commencing treatment and after the team meeting. A phenomenographical approach framed the data analysis. Results: Users described the interprofessional team meetings as less than useful, and perceived that lack of a targeted process and of information hindered their collaboration with professionals. Observations revealed that users were given a subordinate role in the meetings, which largely undermined their involvement. Three categories reflecting lack of information as a core obstacle to user involvement emerged from the data material: (i) unclear role responsibilities and unclear professional role functions, (ii) unclear practices regarding rules and routines, and (iii) absence of user knowledge. Conclusions: User involvement in team meetings may be improved by facilitating adequate information, clarifying role expectations, emphasising user knowledge, increasing professionals' awareness of the importance of collaboration, and by teaching skills that enhance user involvement.
In current national health and welfare policy, coordinated services aim to improve
the general quality of care, including the treatment of substance use disorders
(SUD). The Norwegian government’s guidelines for coordinated services emphasise
the importance of good planning, information exchange and cooperation among
professionals to promote choice-based services that are flexible, effectively
targeted, and adequately adapted to the needs and wishes of service users (Norwegian Ministry of Health
and Care Services, 2008). To meet those guidelines, practitioners in
SUD services have established various models for collaboration, including some
that use interprofessional team meetings as a way of organising cooperation across
service levels and between users and professionals (Bjørkquist & Hansen, 2018). Although
the guidelines do not require the use of interprofessional team meetings, such
meetings are recommended by the Norwegian Directorate of Health and are therefore
common practice (Norwegian
Directorate of Health, 2012).The term interprofessional may be viewed as synonymous with several
other terms, including multidisciplinary,
interdisciplinary, and transdisciplinary
(Birkeland et al.,
2017; Reeves et
al., 2011). Some scholars have argued that the term
interprofessional, particularly in relation to team
meetings, implies a negotiated agreement between professionals who value the
expertise that different team members bring to patient care (Franklin et al., 2015). Reeves et al. (2011)
have defined interprofessional teamwork as a type of work
involving individuals from different professions who share a team identity and
work closely together in an integrated, interdependent manner to solve problems
and deliver services. In this article, the term “interprofessional team meetings”
refers to a work process consisting of high levels of communication, mutual
planning, and user involvement for long-term care delivery.User involvement is an increasingly important strategy in health and social care
policy and practice (Askheim et
al., 2017). It builds upon the principle that people who use services
are experts on their own treatment-related needs and on ways of improving the
services. According to Rance
and Treloar (2015), establishing a trusting, collaborative
relationship between professionals and users is a prerequisite for successfully
involving users in SUD treatment. Stemming from the model of empowerment, the
concept of user involvement concerns mobilising marginalised individuals and user
groups to apply their own capabilities and resources to solve their own problems
as well as influence the services that they receive (Bonfils & Askheim, 2014). To promote
user involvement, professionals need to strive to facilitate collaborative
relationships with users, especially if one recognises each user’s life history
and experiences as resources (Laitila et al., 2011).Despite sharpened scholarly focus on user involvement in care services, few studies
have focused on users’ experiences with interprofessional team meetings in SUD
services. To date, research has shown that service users with alcohol and drug use
problems want to be involved in their own services (Schulte et al., 2007). It has been
suggested that users of mental health and SUD services possess the most relevant
expertise on their own service needs (Laitila et al., 2011). The importance
of user involvement in SUD services has been further demonstrated by studies
reporting an association between user involvement, treatment satisfaction, and
treatment outcomes. For instance, one study reported that perceived patient
participation in SUD treatment was associated with patient satisfaction and
subsequent treatment outcomes (Brener et al., 2009). In line with this finding it has been
suggested that opportunities for user involvement in SUD treatment, including
interactions with staff, might have a positive influence on the therapeutic
alliance and treatment outcome (Rance & Treloar, 2015).Studies on user involvement in SUD treatment have identified factors that may prevent
the successful involvement of users, including some professionals’ stigmatising
and stereotyping attitudes towards substance-dependent individuals (Luoma et al., 2007),
lack of trust, lack of time (Patterson et al., 2009), and power imbalances between users and
professionals due to their hierarchical relationship (Goodhew et al., 2019). In particular,
it has been suggested that a general attitude may exist among professionals that
service users with substance use problems lack both skills and interest in
choosing interventions to meet their own needs (Bryant et al., 2008).Because most research on interprofessional team meetings in social and health
services has focused on collaboration between professionals, less is known about
users’ involvement in those meetings. This article examines the usefulness of
attending interprofessional team meetings from the service users’ perspective and
discusses how users with substance use problems can be involved in and influence
such meetings. Two research questions guided our analysis:What do service users with substance use problems experience in
their involvement in interprofessional team meetings?What are potential barriers to users’ successful involvement in
interprofessional team meetings?
Methods
Study setting
Our study was part of a larger qualitative follow-up study of 16 service
users during and after discharge from an inpatient treatment unit for
substance use disorders in central Norway. The Norwegian healthcare
system consists of two governmental levels. The hospitals, managed by
the specialist healthcare system, are responsible for inpatient and
outpatient treatment, whereas the municipalities are responsible for
providing primary healthcare and social services. The two service
levels cover a variety of disciplines and are governed by different
laws and regulations. The current data were based on team meetings
including professionals and service users representative of both
service levels.
Approval
The regional committee for medical and health research ethics approved
the study. All participants provided their written consent prior to
the interviews and observations, and all data were anonymised.
Informants and recruitment
A formal agreement was made with the unit’s management that the patient
coordinator would continuously inform the first author about newly
arrived inpatients over a six-month period in 2016. All newly admitted
inpatients were informed about the study and invited to participate by
the first author. Sixteen patients agreed to participate. To make the
amount of data manageable, we only used data from the first five
patients recruited to the study. With users’ consent, we invited their
professional contacts to participate. All informants received verbal
information about the study and were invited to participate at an
in-person meeting, via email, or over the phone. The informants
received no money or gifts for participating in the study.The informants were five men aged 27 to 36 years with comorbid substance
use and psychiatric disorders. All informants had been introduced to
illegal drugs during early adolescence and had developed substance use
problems at around the age of 14 to 17 years. They had low levels of
education and varying degrees of job experience. Two of them were
homeless. None had prepared a personal plan for future goals or
treatment measures. All informants received services from both
specialists and primary services, except for one who was in prison and
was thus receiving only primary services at the time of the
interview.The first author gained access to team meetings in various units and
conducted participatory observations during those meetings. Owing to
the geographical distance between the parties, three of the meetings
were video conferences, whereas the remaining two meetings were
conducted in person. The first author interviewed one of the
informants three times after two separate meetings but observed only
one of those meetings. Nevertheless, we have included both
post-meeting interviews in the results. Two of the meetings were held
in an early phase of treatment. One of the informants was no longer in
treatment, and the observation of his meeting was performed while he
was in prison. No one from the specialist health service attended that
meeting, although representatives from the prison, the welfare
service, and the municipality were present. In the remaining team
meetings, professionals from the specialist health service and several
municipality units were present.
Data collection
An interview guide was developed with reference to literature on
interprofessional team meetings and user involvement. This literature
addresses the following major topics: the users’ understanding of the
purpose of the team meetings, the roles of the professionals during
the team meetings, and the users’ involvement and expectations for the
meetings. Field notes taken during the meetings were subsequently
reviewed in collaboration with the users. The field notes included
memos on meeting structure, the positioning of roles and
responsibilities, interaction in relation to the power balance,
communication, and relationships between participants.The first author conducted all interviews with the participating users
immediately after the meetings. The interviews lasted 15–60 minutes.
In the interviews, the first author endeavoured to establish a
dialogue in which she was open to the informant’s perceptions. The
process by which a researcher seeks to display an unbiased attitude
about the informant’s experiences can be understood as
bracketing (Creswell, 2013). However,
researchers may not be able to fully abandon preconceptions and
attitudes, thus data may be interpreted based on their knowledge of
theory and life experiences. In phenomenographical studies,
researchers focus on people’s reflections about their experiences with
and within the social world around them (Barnard et al., 1999; Creswell,
2013; Dahlgren & Fallsberg, 1991). In such research,
ethnographic methods emphasise collective meanings. Therefore, in
addition to semi-structured interviews, we used an ethnographic
approach to study the process of and communicational dynamics in team
meetings. Unarticulated knowledge and experiences were considered to
be as important to us as researchers as those verbalised by the
informants (Barnard
et al., 1999; Hilden & Middelthon,
2002).
Analysis
Transcripts from the audiotaped interviews and field notes were coded in
NVivo. In the process of establishing categories to answer the
research questions, we followed the steps of phenomenographical
analysis described by Dahlgren and Fallsberg
(1991). The goal of phenomenography is to identify the
diversity of experiences related to the phenomenon being explored
(Dahlgren
& Fallsberg, 1991). The approach distinguishes
between what can be observed as either a first-order or a second-order
perspective. The first-order perspective is concerned with facts and
directed at the phenomenon as it is. The second-order
perspective seeks to understand a person’s
perceptions of the phenomenon. The second-order perspective is studied
in phenomenography (Barnard et al., 1999). The process involves
identification of similarities and differences in informants’
statements, exploration of how the phenomenon occurs and has been
perceived by the informants, and grouping of identified statements and
perceptions into different descriptive categories. The categories that
emerge from this process thus represent the collective experience of
the informants with the phenomenon (Dahlgren & Fallsberg,
1991).In our phenomenographical analysis, we first attempted to get an overview
of the material. In the next round, statements that were significant
to the aim of the study were selected. The topics that emerged from
this round were the following: understanding of the purpose of the
team meeting, understanding of roles, sharing information, users’
knowledge, user involvement, rules and standardising, and users’
expectations. The topics were thereafter classified into three major
categories. As a last step, the data were conceptualised and discussed
in accordance with descriptions found in relevant literature on the
intentions of interprofessional team meetings.
Results
The service users’ experiences with attending interprofessional team meetings
and observations made during such meetings formed the basis for this study.
The analysis revealed that the informants perceived the purpose of the
meeting in different ways, depending on their previous experiences. However,
they all expected that the meetings would contribute to acceptable solutions
for their future life situations.Interestingly, although an unmet need for information was one of the users’
main motives for attending the meetings, insufficient information made it
difficult for them to have influence on their own health services. Within
this core category, the following three main obstacles for user involvement
were identified: (i) unclear role responsibilities and unclear professional
role functions, (ii) unclear practices regarding rules and routines, and
(iii) absence of user knowledge.
Unclear role responsibilities and unclear professional role
functions
Despite the fact that the users and some of the professionals did not
know each other, the meetings began with only a short presentation of
the participants. Thus, little information was available about the
service user’s background and service needs, and what the individual
professional could contribute to the meeting. Several of the service
users interpreted the service providers’ lack of insight into their
case as lack of competence.Arne wanted to get started with education, and to get some advice
regarding this. He was not satisfied with the answers that were given:Simon shared Arne’s experiences. In a post-meeting
interview, Simon expressed somewhat ironically that if the service
user does not have a good insight into their own case, the
practitioners will not be able to provide any help:In line with the services users’ experiences of
professionals’ unclear roles, competencies and responsibilities, the
field notes from observations revealed that the services users were
encouraged to figure out solutions on their own, without taking into
account their capacity to do so.None of the professionals [who attended the meetings] knew
anything about my rights regarding education.They [professionals] have become better and better at helping
me, because I am getting better and better at knowing what
I am entitled to or not!We use Arne’s case as an example: In his team meeting, the caseworker
from The Norwegian Labour and Welfare Administration (NAV) encouraged
Arne to tell about his background and his perceived current
challenges. The caseworker wanted him to tell a little more about his
drug profile. Arne responded by listing the drugs he has been using
and proudly said it was exactly one month since he took drugs the last
time. Never, since first taking drugs at age 14, had he abstained from
drugs for that long. He reminded the team that he was now 28 years
old, which meant he had been using drugs for 14 years. The caseworker
encouraged Arne to find out on his own what rights he might have
regarding education. However, as Arne pointed out, for persons with a
long substance use career it can be difficult to get an overview of
what services are available and how to contact them:Adding to the uncertainty around the professionals’
functions and responsibilities were answers like “not yet” and “wait
and see”. These answers often occurred as a response to questions
asked by the service users, but were often unaccompanied by further
explanations. One of the service user informants, Simon, asked for
outpatient treatment. He said in the meeting that he intended to meet
the required conditions for work assessment allowance. The caseworker
replied that Simon would “not yet” be given such an allowance because
he had previously broken agreements related to his activity plan.
Instead, he was informed by the caseworker that he would receive the
minimal benefit. The caseworker encouraged Simon to stop thinking
about the allowance. The phrase “not yet” can be regarded as a
normative but arbitrary statement drawn from practices that are not
related to legal provisions and definitions of formal roles. Simon was
encouraged to contact the Labour and Welfare Administration for an
explanation of the decision. In the meeting, we observed the following
on how Simon responded to the temporary denial:Nevertheless, Simon seemed to understand that it is
difficult to make decisions that require financial resources in the
team meetings. He accepted that the professionals were not able to
answer every question during the meetings and that final answers had
to be given later. However, the following comment he made after the
meeting indicated that he was disillusioned:According to the informants Victor and John, the tendency
to get few answers, the lack of decision-making, and the lack of
solutions to their problems at team meetings caused their cases to
progress slowly, if at all. Victor’s comment on this was as follows:John was generally pessimistic about the outcomes of the meetings:I hope that they [the professionals] understand that I have a
drug problem (…) they said I had to figure it out myself,
but where should I start looking for answers? I feel like
a shuttlecock!Simon shows frustration and says that then the path is short
to selling drugs. That is quick cash and something he can
fix in a short time. Basic cash benefit is not enough to
live on, Simon claims. The caseworker replies that many
have managed this before him. (Field notes)I get no help. They [the professionals] know very little.
After all, it’s always the people [the leaders] above them
who decide.I feel very uncertain not knowing. I don’t get a definite yes
or no. It’s hard to plan, when it’s like this: “No, we’ll
see what happens!”It [the meeting] was as expected: I didn’t get any wiser, and
not much came out of it other than that I should get a job
as soon as possible.
Unclear practice regarding rules and routines
The user participants’ utterances in the meetings exposed a dynamic that
was predominantly rule-oriented and underpinned by justifications of
the caseworkers’ actions. For instance, we observed that users
struggled to argue for their point of view against professional
decisions, since the professionals referred to rules and conditions
that were often unknown to the users. This made the practices appear
unclear to the users.As suggested by Simon in relation to the first category, the
responsibility for making informed choices rested on the service user
and his or her capacity to stay updated on the rules.Another phenomenon addressed in the post-meeting interviews that may
illustrate rule orientation, was service users’ belief that the
content of the meeting was predetermined or standardised. In the
following excerpts both Simon and John suggested that the
professionals conducted the meetings in a routinised way and let them
progress in an “automatic” manner:Yes, they [the professionals] probably read from a script.The meetings are routines to the professionals!Rules asserted by the professionals and the service users’ own
conceptions of what was best for them often ran counter to each other.
In one observation, when Morten stated that he would quit treatment
before the scheduled time and apply for a job, the other team members
strongly advised him to complete the treatment programme and to apply
for an employment scheme after completion of treatment. After the
meeting, Morten reflected:By this comment Morten seemed to believe that if he did
not follow the rules, he could be sanctioned for violating the terms
of treatment. Implicitly, it seemed that he had been told that he
could not choose “from the top shelf”, but should accept measures that
were already available to him. The representatives from the system did
not show willingness to aim for individually tailored solutions,
despite the fact that this is emphasised in the national guidelines
for health services.There’s no point in saying what I’m thinking; they only refer
to a set of rules anyway.As was the case with information regarding professionals’ mandates or
competences, language barriers also seemed to exist regarding rules or
requirements. In several observations we noted that welfare case
workers used expressions such as “fulfil the terms” and “satisfy the
conditions” without any further explanation or elaboration. This
caused the service users to have problems with understanding the
rationale behind the professionals’ decisions or advice.
Absence of user knowledge
A lack of user experience-based knowledge was illustrated in the case of
Morten, who wanted a “decent job” right away instead of following the
advice from the professionals to complete the treatment programme and
then apply for an employment scheme. His caseworker, as a rationale
for that advice, argued that he had to be realistic and reminded him
of his history with drug use, implying that “realism” was something
that had nothing do to with service users’ experience. Thus,
professional knowledge became the dominant form of knowledge, which
prevented collaboration with users on setting and achieving goals. A
comment from Victor in a post-meeting interview illustrated that
service users may communicate strategically, because they fear the
consequences of speaking up:Contrary to what the user informants said that they hoped
for prior to the meetings, namely to gain insight and knowledge to
help their continued rehabilitation, the data from post-meeting
interviews suggested that their expectations regarding the outcomes of
the team meetings was significantly lowered after having seen how the
meetings functioned. The service users experienced that the
responsibility for comprehending crucial information rested upon
themselves.I don’t express what I feel! (…) [because] a caseworker from
welfare services said, “Those [service users] who are
arrogant and rude go to the bottom of the pile!”According to the findings, the service users also withheld information
for several reasons. The many service providers that were present at
the meeting could overwhelm them. At times up to five professionals
from different units participated. To Morten, becoming the centre of
attention elicited his personal shortcomings. He expressed his unease
in the following way:According to information from the individual interviews,
all user informants had specific, basic needs for security and
belonging related to work, income, and in some cases housing
assistance, which provided a certain quality of life and sense of
safety. The users said that they aimed to receive sufficient help with
finding solutions, yet they felt incompetent in defining and
expressing their needs and did not know exactly what they could ask
for. Arne put it this way:To John, asking for help in the meeting was not an option:Victor, in contrast, felt more at ease with being
proactive in the meeting, despite the lack of demand for his concerns:One of the follow-up questions in the post-meeting
interview was about how the user’s experiences were received and
appreciated: “Did you experience that you were included to contribute
with your experiences and user knowledge in the meeting?” Some of the
answers disclosed relatively realistic expectations:Although all informants clearly stated that they wanted
to be involved in their own case, how they could
influence their case remained unclear. Morten drew attention to this
issue in the interview by stating:It seemed that the service users had to be familiar with
the professionals’ language in order to express their needs or to get
appropriate information. Morten stated the implications of this as follows:It is a paradox that although the meetings were often
presented as “the user’s meetings”, it seemed that the users’
competence were not very visible.I don’t like meetings that are about me.I’m not a professional and don’t know what I need help
with.No, I expect this [job, aftercare, economy etc.] to be
addressed by them; they [professionals] have a checklist
that they use at such meetings.Nobody asked or wondered, but I said how I felt, and they
showed understanding for it – but zero solution
orientation.Arne: I felt I was being listened to. I did not expect
everything to be arranged after one meeting.How to influence? I do not know how…I do not have a clue
about that.They should use plain language that everyone knows. I have to
look up words online that I don’t understand.
Discussion
The main aims of our study were to investigate service users’ experiences with
their involvement in interprofessional team meetings and to identify
potential barriers to successful user involvement in those meetings.
Although user involvement is understood as the core of recovery (Storm & Edwards,
2013), the current data indicated that users perceived the
interprofessional team meetings to be less than useful, and that their
involvement was largely undermined. Lack of information seemed to be a major
challenge for the users’ ability to participate in their own services. The
empirical data from our study indicated that in particular, three different
aspects related to lack of information constituted obstacles to user
involvement, as discussed in the following sub-sections.
Unclear role responsibility
One major finding was that the users lacked knowledge about the
professionals’ roles and functions at the meetings, and that they were
uncertain of what to expect from the services and support systems.
This finding might indicate that the roles of the professionals and
tasks of their services are either too similar or too vague.
Consequently, the professional roles may become vague and the
continuity in the teams may be weakened (Belling et al., 2011; McNeil et al.,
2013; Mitchell et al., 2008).It seemed that the caseworkers had not got to know the users before
commencing the team meetings. This is in contrast to the
recommendation of Rance and Treloar (2015), who emphasise the importance
of user engagement and service user–staff relationships in service
delivery and treatment outcomes. Moreover, it has been suggested that
supportive professionals may contribute to reducing uneven power
relations, thereby providing the users with a stronger negotiating
position (Hansen,
2019).Another main finding of the current study was that when the preconditions
for a good communication climate were absent from team meetings, the
use of sanctions and bureaucratic terminology increased. We observed
that professionals became preoccupied with their own roles and
professional limitations, and as a result they concluded meetings too
quickly without ever including the users. This finding is consistent
with the results of Hansen (2007) suggesting
that professionals in teams were more concerned with setting limits
for their own interventions than with contributing to comprehensive,
coordinated service provision. Conflict between professionals may also
heighten the risk that decisions and clinical approaches become based
on professionals’ moral attitudes instead of their professional
discretion (Samet
et al., 2001). The current finding, suggesting that
service users perceived a lack of information and adequate answers
from the meetings, could also be a consequence of their limited
knowledge on professional mandate and the negative attitudes that
users with SUD are frequently confronted with (Fischer & Neale,
2008).The current data also suggested that the participants in the meetings had
a poor understanding of their respective responsibilities, and that
they did not attempt to clarify the role or responsibilities of the
other team members. We observed how the users were expected to make
many arrangements by themselves and to behave according to the rules.
Although some professionals may have considered these requirements to
be ways of facilitating user involvement, such a belief did not appear
to be justified in the observed meeting context. In light of our
findings, it makes sense to apply the concept of responsibilisation,
which has become a dominant discourse in public health services in the
last decade (Juhila et al., 2016). In the literature this discourse
has been linked to neoliberalism, where the customer is viewed as
responsible and rational and possessing the same authority as in the
market model (Tritter, 2009; Trnka & Trundle, 2014).
Moreover, the individual is supposed to make choices that maximise his
or her wellbeing and quality of life (Juhila et al., 2016). Such
notions are at the core of the discourse of responsibilisation.
Responsibilisation has some inherent paradoxes. On the one hand,
individuals are expected to take responsibility for their lives. On
the other hand, they have to adapt to the demands that services impose
upon them and to threats hanging over them, including the loss of
social benefits. That dynamic does not confer total freedom of choice,
especially not for individuals whose life situations may mean that
they are marginalised and dependent upon the help that they
receive.User involvement can thus be understood as a multi-tool grounded in the
modern health discourse. The services need to be both cost-effective
and targeted, and individual responsibility is demanded from the user
(Johansen
& Solbjør, 2012). From that standpoint, collaborative
models of involvement have tended to legitimate existing provisions
instead of challenging them (Rhodes & Nocon, 1998).
By facilitating user involvement, and by giving the users
responsibility for their own problems, service users become active
co-producers of their own services and also share the responsibility
for the results (Ekendahl et al., 2020; Johansen & Solbjør,
2012).
Absence of adequate information and answers
The informants stated that the meetings were organised in an automated,
standardised way, and that they rarely received concrete answers. It
seemed to them that their engagement in making significant decisions
was ignored and that collaboration, if any, did not contribute to new
knowledge. The users tended to lack adequate information about
alternative measures that were available to them. Thus, to the extent
that any decisions were made at the meetings, the users had little
ability to have any influence on the decision-making process. This
finding is in line with previous research suggesting that when users
lack information about the purpose of meetings or the functions of
individual providers, their involvement is decreased (Horlait et al.,
2018).Some users in the current sample had no previous experience with
interprofessional team meetings, thus did not know how to behave in
these meetings. Managing multi-party situations, including meeting
different professional groups and multi-party conversations, may
require communication skills and adequate experience (Kvarnström et al.,
2009). Professional codes and terminology can be
difficult for users to understand and may give them a sense of
alienation. For example, the participants in our study demonstrated
different understandings of the term “satisfactory conditions”, and we
observed that users in the meetings struggled to understand rules
cited by the professionals. Laitila et al. (2011) have
emphasised that users may need adequate, comprehensible information to
become involved, and that the information should be repeated and
provided in an understandable form. Terminology used by professionals
without any explanation only increases the asymmetry and distance
between parties (Ekeland, 2014). If the team lacks a patient orientation
and instead allows rule-based practices to dominate, then those
practices will not capture or be able to cope with variations in the
users’ needs (Ekeland, 2014). If users are perceived only as cases by
professionals, then their own knowledge becomes worthless, and they
risk becoming or remaining passive users (Askheim et al., 2017).
Structural frameworks of user involvement
Our study revealed that although users wanted to influence their cases,
they had difficulties in doing so. One reason may be that
professionals and users have a different understanding and valuation
of user involvement (Rise et al., 2013). Another
factor that may counteract user involvement is that encouraging users
to become proactive in their own treatment may be interpreted as an
attempt from the welfare service to partially escape responsibility
for its outcomes (Johansen & Solbjør, 2012). Today’s healthcare
systems are complex, fragmented, and continuously operating under
severe pressure, which are conditions that are suggested to counteract
functional teams. For example, different organisational and systemic
factors, such as legal frameworks, financing systems, political
missions and information technologies, may hinder the establishment of
common goals (San
Martín-Rodríguez et al., 2005). Furthermore, diverse
values, multiple interpretations of appropriate treatment, and
overlapping or new roles in the team may create distance and
fragmentation between the parties involved (San Martín-Rodríguez et al.,
2005).Barriers to introducing user involvement may include paternalistic
approaches taken by staff (Laitila et al., 2011).
There may also be lack of time and cultural understanding (Patterson et al.,
2009). Autonomous professionals are required to empower
users to act against oppressive practices, while in reality,
non-autonomous professionals may face challenges and perhaps find it
impossible to facilitate the self-empowerment of users (Larsen &
Sagvaag, 2018).In line with results reported in other studies (Liljegren, 2013; Sommerseth &
Dysvik, 2008), all professionals in our study, including
medical doctors, social workers and primary healthcare staff, held the
same level of authority. Owing to the lack of evident team management,
the teams were rather reluctant to make final decisions. A flat
managerial structure may constrain discussion and the exchange of
information, as well as prevent the implementation of new practices
(Bulling
& Berg, 2018). Moreover, some users may be unwilling
or unmotivated to participate and instead rely upon professionals to
make decisions for them (Fischer & Neale, 2008;
Laitila et
al., 2011).
Strengths and limitations
A particular strength of the study was the combination of interviews and
participant observations, which allowed a researcher to be present in
the context that the users referred to during the interviews. The
phenomenographic design included a pragmatic approach that captured
the complexity of users’ opinions as products of relational knowledge.
The informants were given the opportunity to reflect on their thoughts
and perceptions, and how they experienced their presence in the
meeting context together with professional actors.The study had some important limitations. We used a convenience sample
procedure to gather data. However, as the purpose was not to
generalise or evaluate but to gain deeper insight into the various
dynamics that may hinder users’ involvement in team meetings, we
believe that the sample size was large enough for the aims of the
study.The first author was doing the research in an environment she was
familiar with, as she has clinical experience from SUD treatment. This
could, from one perspective, entail “going native”. On the other hand,
her acquaintance with the system, the user population and their jargon
could also prevent misunderstandings and thus enhance communicative
validity.
Conclusion
The current study suggests that service users may not receive the answers and
information necessary to become fully involved in team meetings. If the team
meeting fails to create a reflective culture, and if user-based knowledge is
not considered, there may be no opportunity to create a common understanding
of the task, and the work of the team may stagnate.Initiatives to improve user involvement and raise awareness about collaboration
skills in interprofessional team meetings may clarify expectations regarding
the roles and functions of all members present at meetings, especially those
of the professionals. Collaboration skills training should thus be part of
professional development. Additionally, user involvement in
interprofessional collaboration needs to be anchored at the managerial
level, and should be considered a high-priority task in service delivery.
Above all, a view on collaboration not as a mere fact, but rather as a
continuous, flexible process is needed.
Authors: Catherine M Franklin; Jean M Bernhardt; Ruth Palan Lopez; Ellen R Long-Middleton; Sheila Davis Journal: Health Serv Res Manag Epidemiol Date: 2015-03-16