Literature DB >> 35305543

ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families.

Shana R Cohen1, Jessica Miguel2, Jessica Trejos2.   

Abstract

To understand the ASD diagnosis and treatment pathways for US families, N = 38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families.
© 2022. The Author(s).

Entities:  

Keywords:  ASD diagnosis; Autism spectrum disorder; Mexican-heritage families; Multiple case study design

Year:  2022        PMID: 35305543     DOI: 10.1007/s10803-022-05512-3

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  45 in total

1.  Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents.

Authors:  Shana R Cohen; Jessica Miguel
Journal:  J Autism Dev Disord       Date:  2018-06

2.  Adverse health effects of restrictive migration policies: building the evidence base to change practice.

Authors:  Kayvan Bozorgmehr; Rosa Jahn
Journal:  Lancet Glob Health       Date:  2019-03-06       Impact factor: 26.763

3.  Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders.

Authors:  Deborah K Anderson; Jessie W Liang; Catherine Lord
Journal:  J Child Psychol Psychiatry       Date:  2013-12-09       Impact factor: 8.982

Review 4.  Standards for Interprofessional Collaboration in the Treatment of Individuals With Autism.

Authors:  Kristin S Bowman; Victoria D Suarez; Mary Jane Weiss
Journal:  Behav Anal Pract       Date:  2021-05-03

5.  Prevalence and Characteristics of Autism Spectrum Disorder Among 4-Year-Old Children in the Autism and Developmental Disabilities Monitoring Network.

Authors:  Deborah L Christensen; Deborah A Bilder; Walter Zahorodny; Sydney Pettygrove; Maureen S Durkin; Robert T Fitzgerald; Catherine Rice; Margaret Kurzius-Spencer; Jon Baio; Marshalyn Yeargin-Allsopp
Journal:  J Dev Behav Pediatr       Date:  2016-01       Impact factor: 2.225

Review 6.  Parents' voices: 'why and how we advocate'. A meta-synthesis of parents' experiences of advocating for their child with autism spectrum disorder.

Authors:  K Boshoff; D Gibbs; R L Phillips; L Wiles; L Porter
Journal:  Child Care Health Dev       Date:  2016-07-22       Impact factor: 2.508

7.  Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder.

Authors:  Meghan M Burke; Sandra Magaña; Marlene Garcia; Maria P Mello
Journal:  J Autism Dev Disord       Date:  2016-07

8.  Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014.

Authors:  Jon Baio; Lisa Wiggins; Deborah L Christensen; Matthew J Maenner; Julie Daniels; Zachary Warren; Margaret Kurzius-Spencer; Walter Zahorodny; Cordelia Robinson Rosenberg; Tiffany White; Maureen S Durkin; Pamela Imm; Loizos Nikolaou; Marshalyn Yeargin-Allsopp; Li-Ching Lee; Rebecca Harrington; Maya Lopez; Robert T Fitzgerald; Amy Hewitt; Sydney Pettygrove; John N Constantino; Alison Vehorn; Josephine Shenouda; Jennifer Hall-Lande; Kim Van Naarden Braun; Nicole F Dowling
Journal:  MMWR Surveill Summ       Date:  2018-04-27

9.  Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012.

Authors:  Deborah L Christensen; Kim Van Naarden Braun; Jon Baio; Deborah Bilder; Jane Charles; John N Constantino; Julie Daniels; Maureen S Durkin; Robert T Fitzgerald; Margaret Kurzius-Spencer; Li-Ching Lee; Sydney Pettygrove; Cordelia Robinson; Eldon Schulz; Chris Wells; Martha S Wingate; Walter Zahorodny; Marshalyn Yeargin-Allsopp
Journal:  MMWR Surveill Summ       Date:  2018-11-16

10.  Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years--Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012.

Authors:  Deborah L Christensen; Jon Baio; Kim Van Naarden Braun; Deborah Bilder; Jane Charles; John N Constantino; Julie Daniels; Maureen S Durkin; Robert T Fitzgerald; Margaret Kurzius-Spencer; Li-Ching Lee; Sydney Pettygrove; Cordelia Robinson; Eldon Schulz; Chris Wells; Martha S Wingate; Walter Zahorodny; Marshalyn Yeargin-Allsopp
Journal:  MMWR Surveill Summ       Date:  2016-04-01
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