| Literature DB >> 35289107 |
Toni Kelly1,2, Jennifer D Thompson3, Yolanda Surjan1, Marianne Rinks2, Helen Warren-Forward1.
Abstract
INTRODUCTION: Adaptive communication is an essential requirement to deliver quality patient-centred care. Determining patients' informational needs and acting on the needs are skills radiation therapists (RTs) employ daily with patients. Learning health literacy (HL) strategies to assist with the informational delivery provides RTs with options to improve patients' understanding of vital radiotherapy treatment information or tasks. This research investigates the lived experiences of RTs from the Illawarra and Shoalhaven Cancer Care Centres in Australia using HL strategies during patient interactions after undertaking HL training workshops.Entities:
Keywords: Cancer < General; Radiation Oncology < Discipline; Research-qualitative < General
Mesh:
Year: 2022 PMID: 35289107 PMCID: PMC9442295 DOI: 10.1002/jmrs.574
Source DB: PubMed Journal: J Med Radiat Sci ISSN: 2051-3895
Participant demographics.
| Participant | Gender |
Age Range (Years) | Professional Experience (Years) | Interview time (Minutes) |
|---|---|---|---|---|
| 1 | Male | 45–50 | 13 | 45.18 |
| 2 | Female | 20–25 | 4 | 60.27 |
| 3 | Male | 30–35 | 5 | 40.22 |
| 4 | Female | 40–45 | 18 | 18.45 |
| 5 | Female | 35–40 | 17 | 18.44 |
| 6 | Female | 40–45 | 21 | 25.52 |
Interview questions sample.
| Domain 1 |
How do you assess the health literacy of a patient you have just met, based only on the interaction? Can you describe your experiences when you have been interacting with a patient and determine that they do not understand the information you have provided them. When providing a patient handover to other health care professionals, can you describe the health literacy assessment you provide? |
| Domain 2 |
Can you describe your experiences when communicating with patients from specific age groups? Starting with children, young adults up to age 20 and patients over 70. Can you describe your experiences when communicating with patients where English is a second language? |
| Domain 3 |
The communication workshops introduced plain language as a method to improve your communication skills. What is your experience using plain language with patients and carers? The communication workshops introduced the teach‐back method as a way to check for patients’ understanding. What is your experience using the teach‐back method with patients and carers? What barriers do you think exist to deter you from using plain language when communicating with patients? What barriers do you think exist to deter you from using the teach‐back method when communicating with patients? |
| Domain 4 |
What additional learning support would you like to further improve your communication with patients or to assist with promoting health literacy in patients? |
Radiation therapist personal responses to HL.
| 3.1 As learners |
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| 3.2 Experience/Process |
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| 3.3 Emotions (self and patient) |
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3.4 Time |
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| 3.5 Team player |
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HL strategies used by radiation therapists
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4.1 Imparting information |
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4.2 Information handling |
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4.3 Language/communication methods |
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| 4.4 Teach back as a tool | ‘ |
Patient associated health literacy needs.
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5.1 Patient |
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5.2 Health Literacy |
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5.3 Time |
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| 5.4 Patient Carer |
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Tips for addressing patient‐related barriers when using HL strategies with patients.
| PATIENT‐RELATED BARRIERS | |
|---|---|
| Barrier | Option for a solution |
| Patient and carer (patient and adult child) with different level of HL | Ensure the patient’s informational needs are met first and then carefully adapt language and terminology to the carer without losing or offending the patient. |
| Patients who have high levels of anxiety may shutdown |
Identifying the issue through using emotional cues and be ready to be adaptable. Ask patients how much they want to know, how much detail, some want a lot, some do not want any. Asking them directly will allow that endpoint to be reached much sooner during conversations. Encouraging a carer or family member to act as an advocate to be a part of the session. |
| Effect of past trauma for patients undertaking treatment (especially in a hospital setting) |
Identifying the issue using emotional cues and be ready to be adaptable. Use active listening to determine where to pitch procedural information. Ask patients how much they want to know, how much detail, some want a lot, some do not want any. Asking them directly will allow a successful procedure to conclude much sooner during conversations. Do not ask about the past unless the patient raises it. Gauge the use of teach‐back, it may upset/antagonise them. |
| Patient fixated on one aspect of their treatment | Think about information sources the patient is fixed on and how it may relate to some of their questions. Questions allow people to learn new content and determine their level of understanding. |
| Patient decision makes RT support more difficult |
Respecting the patient’s decision is important. Sometimes we do not always have the full picture to understand patients’ motivations. If it helps, identify the issue to help the patient work through it. Keep attempting to use universal precautions approach to providing information. |
| Patient perception of plain language—the patient did not understand they had a cancer diagnosis | Beginning with ‘why are you here today?’ may provide a quick pathway to determine where to pitch your information. Use clear, plain language and teach‐back to ensure comprehension. |
Tips for addressing radiation therapist related barriers when using HL strategies with patients.
| Radiation therapist related barriers | |
|---|---|
| Barrier | Option for a solution |
| Timing and location of patient questions |
On a case‐by‐case basis, the radiation therapist (RT) is in control, to determine where or when is the best time or place to answer questions. Encourage questions during informational sessions or at the beginning or end of a procedure. Questions allow people to learn new content and determine their level of understanding. Invite questions. ‘what are your questions?’ Or ‘what questions do you have?’ open way of asking. When addressing the questions, check back in with the patient to determine if you have answered it correctly. There are no stupid questions, offer reassurance. |
| Inexperienced RT staff unable to manage patient HL needs | RT needs to complete communication and HL training to determine correct patient management. |
| Finding the right words when simplifying technical jargon | Connect new pieces of information to previous information. |
| RTs intimidated by educational or professional status of patients | RTs will be the expert, use universal precautions, adapt language and explanation by patients’ level of language and questions. Be ready to become more technical quickly when explaining concepts. |
| Using the teach‐back method is time intensive |
To be completely patient‐focussed takes time; time to provide clear explanations, build trust and rapport and check for understanding. Ensure appropriate time is allocated. Improved patient understanding may reduce future treatment times and repeated imaging long term. |