Literature DB >> 35247583

Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and Approach.

Shena Gazaway1, Marie A Bakitas2, Ronit Elk3, Nwamaka D Eneanya4, J Nicholas Dionne-Odom2.   

Abstract

Qualitatively eliciting historically marginalized populations' beliefs, values, and preferences is critical to capturing information that authentically characterizes their experiences and can be used to develop culturally-responsive interventions. Eliciting these rich perspectives requires researchers to have highly effective qualitative interviewing guides, which can be optimized through community engagement. However, researchers have had little methodological guidance on how community member engagement can aid development of interview guides. The purpose of this article is to provide a series of steps, each supported by a case example from our work with African American family caregivers, for developing an interview guide through community engagement. We conclude by highlighting how involving historically marginalized community members in these early stages of research study development can build trust, research partnerships, and acknowledge their contribution to the development of new knowledge.
Copyright © 2022 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Qualitative methods; culturally responsive; interview guide development; stakeholder engagement

Mesh:

Year:  2022        PMID: 35247583      PMCID: PMC9133041          DOI: 10.1016/j.jpainsymman.2022.02.331

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   5.576


  25 in total

1.  End-of-Life Decision Making and Communication of Bereaved Family Members of African Americans with Serious Illness.

Authors:  Esther R Smith-Howell; Susan E Hickman; Salimah H Meghani; Susan M Perkins; Susan M Rawl
Journal:  J Palliat Med       Date:  2016-02       Impact factor: 2.947

2.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

Authors:  Allison Tong; Peter Sainsbury; Jonathan Craig
Journal:  Int J Qual Health Care       Date:  2007-09-14       Impact factor: 2.038

Review 3.  Systematic methodological review: developing a framework for a qualitative semi-structured interview guide.

Authors:  Hanna Kallio; Anna-Maija Pietilä; Martin Johnson; Mari Kangasniemi
Journal:  J Adv Nurs       Date:  2016-06-23       Impact factor: 3.187

4.  Reflexivity in Qualitative Research.

Authors:  Joan E Dodgson
Journal:  J Hum Lact       Date:  2019-03-08       Impact factor: 2.219

5.  Negotiating cross-cultural issues at the end of life: "You got to go where he lives".

Authors:  M Kagawa-Singer; L J Blackhall
Journal:  JAMA       Date:  2001-12-19       Impact factor: 56.272

6.  Family experience of palliative sedation therapy: proportional vs. continuous deep sedation.

Authors:  Kengo Imai; Tatsuya Morita; Masanori Mori; Naosuke Yokomichi; Toshihiro Yamauchi; Satoru Miwa; Satoshi Inoue; Akemi Shirado Naito; Kento Masukawa; Yoshiyuki Kizawa; Satoru Tsuneto; Yasuo Shima; Hiroyuki Otani; Mitsunori Miyashita
Journal:  Support Care Cancer       Date:  2022-01-18       Impact factor: 3.603

7.  Long-term care nurses' perceptions of a good death for people with dementia: A qualitative descriptive study.

Authors:  Katsumi Nasu; Hiroki Fukahori; Mitsunori Miyashita
Journal:  Int J Older People Nurs       Date:  2021-12-26       Impact factor: 2.115

8.  Developing and Testing the Feasibility of a Culturally Based Tele-Palliative Care Consult Based on the Cultural Values and Preferences of Southern, Rural African American and White Community Members: A Program by and for the Community.

Authors:  Ronit Elk; Linda Emanuel; Joshua Hauser; Marie Bakitas; Sue Levkoff
Journal:  Health Equity       Date:  2020-03-26

9.  Stakeholder-engaged process for refining the design of a clinical trial in home hospice.

Authors:  Jennifer Tjia; Margaret Clayton; Germán Chiriboga; Brooke Staples; Geraldine Puerto; Lynley Rappaport; Susan DeSanto-Madeya
Journal:  BMC Med Res Methodol       Date:  2021-04-30       Impact factor: 4.615

10.  Semistructured interviewing in primary care research: a balance of relationship and rigour.

Authors:  Melissa DeJonckheere; Lisa M Vaughn
Journal:  Fam Med Community Health       Date:  2019-03-08
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