| Literature DB >> 35175208 |
Pamela S Sinicrope1, Colleen D Young2, Ken Resnicow3, Zoe T Merritt4, Clara R McConnell5, Christine A Hughes1, Kathryn R Koller4, Martha J Bock1, Paul A Decker1, Christie A Flanagan4, Crystal D Meade5, Timothy K Thomas4, Judith J Prochaska6, Christi A Patten1.
Abstract
Social media provides an effective tool to reach, engage, and connect smokers in cessation efforts. Our team developed a Facebook group, CAN Quit (Connecting Alaska Native People to Quit smoking), to promote use of evidence-based smoking cessation resources for Alaska Native people living in Alaska, which are underused despite their effectiveness. Often separated by geography and climate, Alaska Native people prefer group-based approaches for tobacco cessation that support their culture and values. Such preferences make Alaska Native people candidates for social media-based interventions that promote connection. This viewpoint discusses the steps involved and lessons learned in building and beta-testing our Facebook group prototype, which will then be evaluated in a pilot randomized controlled trial. We describe the process of training moderators to facilitate group engagement and foster community, and we describe how we developed and tested our intervention prototype and Facebook group. All parts of the prototype were designed to facilitate use of evidence-based cessation treatments. We include recommendations for best practices with the hope that lessons learned from the CAN Quit prototype could provide a model for others to create similar platforms that benefit Alaska Native and American Indian people in the context of smoking cessation. ©Pamela S Sinicrope, Colleen D Young, Ken Resnicow, Zoe T Merritt, Clara R McConnell, Christine A Hughes, Kathryn R Koller, Martha J Bock, Paul A Decker, Christie A Flanagan, Crystal D Meade, Timothy K Thomas, Judith J Prochaska, Christi A Patten. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 17.02.2022.Entities:
Keywords: Alaska; Alaska Native; American Indian; Facebook; Quitline; Web 2.0; cancer prevention; cessation; mobile phone; smoking; social media
Mesh:
Year: 2022 PMID: 35175208 PMCID: PMC8895280 DOI: 10.2196/28704
Source DB: PubMed Journal: J Med Internet Res ISSN: 1438-8871 Impact factor: 7.076
Figure 1Overview of the CAN Quit (Connecting Alaska Native People to Quit Smoking) intervention prototype. CAN Quit is a 4-phase study. This figure highlights how phase 3 fits into the overall study design. RCT: randomized controlled trial.
Figure 2Example of Centers for Disease Control and Prevention Tips post and how it was refined for CAN Quit (Connecting Alaska Native People to Quit Smoking).
Figure 3CAN Quit (Connecting Alaska Native People to Quit Smoking) strategic community plan.
Moderator feedback on CAN Quit (Connecting Alaska Native People to Quit Smoking) beta test.
| Question and moderator feedback | Changes made | |
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| Maintaining communication among participants on multiple threads at one time. It can be easy to miss someone’s response if you are not diligent. | Study team monitors group and notifies moderators if they miss a post |
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| There were participants who shared personal experiences (eg, death of a child and struggles with other substances) with the group, and it was challenging to figure out how to best respond to these comments. There was also a participant who used our post to sell items on a personal FBa page. |
Consultation with the trainer (CY) before crafting a response Determine as a group the best way to handle more sensitive topics Added an additional refresher training in MIb principles (KR) and practices before RCTc |
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| Tracking each participant’s responses so you can easily reference prior conversations. This is important when building rapport with the participant. | Moderators maintain a spreadsheet tracking all members with notes to help them remember details and respond accordingly |
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| Connecting one person to another based on their personal experiences and actually getting a response or any dialogue between the two. | Feedback or reinforcement from the trainer (CY) on different tactics for connecting participants (ie, tagging, private messaging, and asking questions specific to interests or strengths of participants). |
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| Keep a log of your communication with each participant from when the group starts. This way you can easily reference this spreadsheet to see what topics have been discussed with this participant. This can be especially helpful in groups with more than one moderator. | N/Ad |
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| Be thoughtful in your responses; sometimes it can be difficult to not sound robotic over the computer. I think this is important in developing a connection with each participant and building trust. The MI tips we learned were very helpful in making sure we are professional but personable when moderating. | N/A |
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| We did a good job of posting new content with an interesting prompt every few days which helped the group stay active. | N/A |
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| We did a good job of refining our responses to each participant and knowing when to refer the Quitline. We do not want to refer the Quitline so often that we sound robotic but we want to encourage participants to use evidence-based smoking cessation programs. | Use MI skills training and created additional posts that discuss the Quitline and Tribal quitting resources |
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| We are working on generating quicker responses | Moderators share the responsibility of monitoring the Quitline |
aFB: Facebook.
bMI: motivational interviewing.
cRCT: randomized controlled trial.
dN/A: not applicable.
Beta tester feedback on CAN Quit (Connecting Alaska Native People to Quit Smoking) beta test.
| Improvement areas (themes) | Representative quotes | Solutions implemented by team |
| Clarify group purpose |
“Have mental or behavioral health programs ready” “I felt unsure if I was supposed to use the site to access the quit helpline through FBa, because my region doesn’t use the Quitline for assistance in quitting anymore” |
Additional welcome posts created that clarify group purpose as well as the Quitline and Tribal Quitting resources Moderators incorporated feedback to reinforce FB page purpose and the quitting resources |
| Provide incentives or games |
“It would be great to get the rural communities involved and offer some sort of Photo, Video or Art contest that included a drawing, a photo or video that helps people quit smoking or talk about the negative effects of smoking. It would draw more people in and get people to participate in the efforts toward Tobacco Prevention and keep them busy toward something positive. If we could include a prize for 1st, 2nd and 3rd also!” “Maybe some fun trivia games to get people wanting to look at the page.” “Do more instead of just post posters. I mean we all can brainstorm in a different way and play along as we go?” |
Team implemented “polls” where participants could vote on what values are important to them and write in additional values Will add incentives for future groups |
| How to improve posts |
“Could use less medical type photos. More of our own pictures to help support each other” “I think more should be put into it. More involvements” “More videos that include rural areas would be a great idea” “Posts being more clear about regional resources would be nice” “Make more posts” |
More rural posts will be used in the randomized controlled trial More posts relating to Alaska Native values were created using Alaska Native imagery (eg, people, families, communities, and activities) New post and discussion prompt posted to the group every 2 days Combined posts and video links to increase participant engagement Creation of interactive posts like the FB poll Developed a moderator spreadsheet to track posts to ensure full variety of topics and types of posts (eg, urban, rural, photo or text, and video) will be addressed |
| Moderators make group more interactive |
“Maybe encourage more people to post more often to gain connection.” “Find ways to make it more interactive.” |
Moderators will tag participants to increase participation on individual posts Moderators individually welcome all new members on the welcome post and encourage them to interact. Prompted new members to introduce themselves and their reasons for wanting to quit. Moderators connect members to interact who express similar experiences or concerns Provided additional training to moderators that focused on health communication and ways of increasing interaction Developed follow-up questions that may be asked on the original post to encourage discussion |
aFB: Facebook.
Recommendations for creating a successful social media group to promote use of evidence-based smoking cessation resources for Alaska Native people.
| Recommendation | Description |
| Select moderators who can relate to your group | We chose moderators with expertise in smoking cessation (TTSa) who also shared similar Alaska Native ancestry and cultural values. This approach is effective with building rapport among group participants and moderators. |
| Build upon existing skills of your moderators | Beyond training as TTS, our moderators received 20 additional hours of training in strategic web-based community management and health behavior change. We recommend training be scenario-based, experiential, and use actual posts for moderating practice. |
| Build community engagement | Our moderators shared that getting to know group participants made it easier to respond to their posts, reinforce quitting messages, and provide support. Train moderators to react, tag, and instant message participants to respond when they post. They should acknowledge active participants while also checking in with inactive participants, inviting them back to the group. |
| Use existing resources for content | We evaluated and adapted existing, evidence-based content already created by the CDCb and ANTHCc, with their permission. This was both cost and time effective. We recommend using or refining existing high-quality content whenever possible, seeking necessary permissions. |
| Adapt content for cultural fit | We used an iterative theory-based process of qualitative and quantitative feedback from both participants and stakeholders to adapt our content and be responsive to the evolution of the participants and the group. We recommend using a conceptual framework with community and stakeholder input. |
| Design content that highlights your goals | Our goal was to promote use of evidence-based resources. We found it important to include links to the Alaska Quitline or Tribal cessation resources on all content. We suggest including a call to action with each post. |
| Include a wide variety of content and organize it into an easily searched library | It is difficult to predict how participants will communicate and what will motivate them to engage in the group. Having an organized library with a variety of content allows moderators flexibility to select content that is responsive to an ongoing conversation or that meets the needs or interests of group participants to maintain engagement. |
| Balance content with conversation | We used content that fit concerns and conversations happening within the group. We believe the key to success lies in fostering group engagement through conversation with moderators and with each other. It is necessary to create a community of talkers, not readers. |
| Support moderators to handle emotional communication | We provided 20 hours of MId and web-based community management training to prepare moderators to support group participants who share sensitive information. We recommend training also include a plan for moderators to seek additional support. |
| Groom group participants to be moderators | Once our group was underway, we saw some participants were very engaged, not only with moderators but also with other group participants. Consider inviting and training former group participants to volunteer as peer mentors or moderators. |
aTTS: trained tobacco specialist.
bCDC: Centers for Disease Control and Prevention.
cANTHC: Alaska Native Tribal Health Consortium.
dMI: motivational interviewing.