Fred B Ketchum1, Jessica Monsees2, Alice J Kim3, Tim Schmachtenberg2, Amy Kind4,5,6, Manish Shah7,8, Wolfgang Hoffmann2,9, Jochen René Thyrian2, Andrea Gilmore-Bykovskyi4,5,6,10. 1. Department of Neurology, University of Wisconsin-Madison, Madison, Wisconsin, USA. 2. German Center for Neurodegenerative Diseases (DZNE), Greifswald, Germany. 3. Department of Psychology, University of Southern California, Los Angeles, California, USA. 4. Division of Geriatrics and Gerontology, Department of Medicine, School of Medicine & Public Health, University of Wisconsin-Madison, Madison, Wisconsin, USA. 5. Geriatric Research Education and Clinical Center, William S. Middleton Memorial Veterans Hospital, Madison, Wisconsin, USA. 6. Center for Health Disparities Research, University of Wisconsin, Madison, Wisconsin, USA. 7. BerbeeWalsh Department of Emergency Medicine, University of Wisconsin-Madison, Madison, Wisconsin, USA. 8. Department of Population Health Sciences, University of Wisconsin-Madison, Madison, Wisconsin, USA. 9. Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany. 10. Madison School of Nursing, University of Wisconsin, Madison, Wisconsin, USA.
Abstract
OBJECTIVE: To identify barriers and facilitators to the use of formal dementia services among underserved and minority groups (UMG) in the United States and Germany. METHOD: Semi-structured qualitative interviews with caregivers (N = 18) of persons with dementia in the United States and Germany. Data were analyzed using thematic analysis. RESULTS: Caregivers described their experiences in three stages of seeking, initiating, and utilizing care, and different factors served to hinder or enable the use of care services in each stage. The most important factors included limited knowledge about dementia, challenges interacting with healthcare systems, and how closely formal services met the expectations and needs of caregivers, particularly with regard to accommodating cultural or ethnic/racial identity. Caregivers preferred interacting with service care providers who shared a similar identity to receive information or services. CONCLUSION: Barriers and facilitators to using dementia care services vary by stage of engaging services and may be shared across different healthcare contexts. Targeting specific barriers and strengthening facilitators could help reduce disparities in dementia care among UMG.
OBJECTIVE: To identify barriers and facilitators to the use of formal dementia services among underserved and minority groups (UMG) in the United States and Germany. METHOD: Semi-structured qualitative interviews with caregivers (N = 18) of persons with dementia in the United States and Germany. Data were analyzed using thematic analysis. RESULTS: Caregivers described their experiences in three stages of seeking, initiating, and utilizing care, and different factors served to hinder or enable the use of care services in each stage. The most important factors included limited knowledge about dementia, challenges interacting with healthcare systems, and how closely formal services met the expectations and needs of caregivers, particularly with regard to accommodating cultural or ethnic/racial identity. Caregivers preferred interacting with service care providers who shared a similar identity to receive information or services. CONCLUSION: Barriers and facilitators to using dementia care services vary by stage of engaging services and may be shared across different healthcare contexts. Targeting specific barriers and strengthening facilitators could help reduce disparities in dementia care among UMG.
Entities:
Keywords:
Dementia; caregiving; health disparities; social support
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