| Literature DB >> 35115355 |
Penny Xanthopoulou1, Ciara Thomas2, Jemima Dooley3.
Abstract
OBJECTIVE: To review and synthesise qualitative studies that have explored subjective experiences of people with lived experience of mental health-related illness/crisis (MHC), their families and first responders.Entities:
Keywords: mental health; qualitative research; schizophrenia & psychotic disorders; suicide & self-harm
Mesh:
Year: 2022 PMID: 35115355 PMCID: PMC8814746 DOI: 10.1136/bmjopen-2021-055393
Source DB: PubMed Journal: BMJ Open ISSN: 2044-6055 Impact factor: 2.692
Figure 1Population of interest, the phenomena of Interest and the Context. FR: first responder; MHC: mental health-related crisis.
Figure 2Preferred Reporting Items for Systematic Reviews and Meta-Analyses flow diagram of included and excluded studies. FR, first responder; GP, general practitioner; PMI, people with mental illness.
Summary of included studies
| Study | Country | Perspective | Study focus | Study design and methods | Sample size | CASP score |
| Adio | USA | Paramedics | Views of paramedics towards frequent emergency department users and underlying causes. | Mixed-methods design. | 16 Community Integrated Health Programme paramedics. | 9 out of 10 |
| Baker and Pillinger | USA | Family members | To understand how police interactions with PMIs can lead to deaths and families’ experiences. | Semi-structured interviews. | 16 family members of a citizen who died after police contact. | 9 out of 10 |
| Baker and Pillinger | UK | Family members | The police role in providing a de facto service for people undergoing mental health crises. | Semi-structured interviews. | 12 family members of a citizen who died after police contact. | 8 out of 10 |
| Bendelow | UK | PMI and companions | To investigate the complexities underlying the high rates of S136. | Mixed methods. Interviews and written accounts. | 37 people with lived experience of detention. | 8 out of 10 |
| Bohrman | USA | Police | Police officers assessment for mental illnesses and variation by location. | Semi-structured interviews. | 15 officers. | 9 out of 10 |
| Boscarato | Australia | PMI | Consumers’ experiences with formal crisis-response mechanisms—police-only and joint responses. | Exploratory study. Semi-structured interviews. | 11 mental health consumers. | 9 out of 10 |
| Bradbury | Australia | PMI, carers and service providers | To explore the lived experience of involuntary transport under the mental health act. | Cross-sectional, qualitative research design. Interviews. | 16 participants: 6 consumers, 4 carers 6 service providers. | 9 out of 10 |
| Brennan | Australia | Carers | Carers’ experiences of mental health crises and responses provided by police and mental health services. | Semi-structured interviews. | 9 carers for someone with a mental illness. | 9 out of 10 |
| Brink | Canada | PMI | How PMI perceive and interact with the police. | Participatory Action Research. | 60 people with lived experience. | 9 out of 10 |
| Booty | USA | Police | Officer attitudes pre-CIT and post-CIT training. | Mixed-methods study. | 14 Central District patrol officers. | 7 out of 10 |
| Callender | UK | Police | To compare the processes, experiences and perceptions of mental health street triage. | Semi-structured interviews. | 27 police and health service staff. | 9 out of 10 |
| Canada | USA | Police | Impact of CIT on police officers‘ response to mental illness calls. | Qualitative research design. | 216 officers. | 9 out of 10 |
| Cheng | USA | Family caregivers | Needs of family caregivers for early psychosis. | Semi-structured focus group interviews. | 20 family caregivers. | 9 out of 10 |
| Copeland and Heilemann | USA | Family caregivers | Mothers understanding of violence of their mentally ill, adult children. | Grounded theory methodology, open-ended interviews. | 8 mothers. | 9 out of 10 |
| Daggenvoorde | The Netherlands | PMI and families | Lived experiences of patients with a psychotic or bipolar disorder and their families of a mobile crisis team. | Phenomenological study design. Interviews. | 10 patients and 10 family members. | 9 out of 10 |
| Davey | New | Police | E-learning for police with regard to people experiencing mental distress. | Semi-structured telephone interviews. | 24 police staff. | 9 out of 10 |
| DeJean | Canada | Paramedics | Paramedics views on appropriate versus inappropriate ambulance use. | Constructivist grounded theory methodology. Interviews. | 19 paramedics. | 9 out of 10 |
| Dougall | Canada | Police | Lived experiences of frontline police personnel of a mid-sized police service. | Exploratory study, heuristic phenomenology. Semi-structured interviews. | 7 police officers, 4 communicators and 3 administrators. | 10 out of 10 |
| Dyer | UK | Police | Implementation of Cleveland Police’s pilot ST service. | Exploratory design. Interviews and retrospective analysis of case notes. | 16 stakeholders, case notes and administrative data. | 7 out of 10 |
| Erdner and Piskator | Sweden | Police | Police officers’ experiences of committing individuals with mental illness to the hospital for treatment. | Semi-structured interviews. Qualitative content analysis. | 7 police officers. | 9 out of 10 |
| Ferguson | Australia | PMI | Men’s experiences of ambulance care for mental health and/or alcohol and other drug problems. | Exploratory qualitative approach. | 30 men. | 9 out of 10 |
| Ford-Jones | Canada | Paramedics | Mental health and psychosocial calls encountered by paramedics in the community. | Case study. Interviews. | 10 paramedic management/educators and 5 directors/physicians. | 9 out of 10 |
| Ford-Jones and Daly | Canada | Paramedics | Paramedic service practices that are connecting patients to mental health and psychosocial programming. | Qualitative interviews and observations. | 36 paramedics, | 9 out of 10 |
| Gerson | USA | Family members | Experiences of families seeking treatment for young people with recent-onset psychosis. | Qualitative open-ended interviews. | 14 particpants-13 interviews (one pair). | 9 out of 10 |
| Gibbs and Haas | Australia | PMI | Experiences of autistic people who had interacted with police. | Mixed-methods design. Questionnaire and interviews. | 12 autistic adults. | 9 out of 10 |
| Girard | France | PMI and police | Mental health team and police responding to persons who are homeless with serious psychiatric disorders. | Mixed qualitative and quantitative methods. Focus group. Minutes of meetings. | 40 PMI (interactions). Focus groups: 12 police officers. | 9 out of 10 |
| Godfredson | Australia | Police | Contact between the police and people experiencing mental illness. | Survey. Thematic analyses of open-ended responses. | 3534 police officers. | 8 out of 10 |
| Goodall | UK | PMI | Process of being detained under S136 of the Mental Health Act (1983, 2007). | Semi-structured interviews. | 15 people detained under S136 of the Mental Health Act. | 9 out of 10 |
| Green | USA | Police | Police involvement with suspects who have a mental illness. | Mixed methods. Qualitative structured and semi-structured interviews. | 11 police officers. | 7 out of 10 |
| Gregory and Thompson | UK | PMI | Personal experiences of a service user through a mental health crisis. | Auto-ethnography and interviews. Reflective narrative. | 1 service user. | 7 out of 10 |
| Haas and Gibbs | Australia | PMI and parents | Impact that autistic characteristics on interactions with police. | Interviews, content analysis. | 12 autistic adults and 19 parents. | 9 out of 10 |
| Hanafi | USA | Police | To evaluate the effectiveness of CIT training for police officers. | Qualitative focus group study. | 25 officers. | 9 out of 10 |
| Herrington and Pope | Australia | Police, NSW Health and NGO representatives | Evaluate the success of the Mental Health Intervention Team. | A multi-phased, mixed-methods design. Interviews, observations. | 56 interview participants. | 7 out of 10 |
| Holmes | UK | PMI | Missing people with mental health issues and police response. | Qualitative semi-structured interview and free-text narratives. | 45 formerly missing adults with mental health issues. | 7 out of 10 |
| Keefe | USA | Paramedics | Paramedics’ experiences and perceptions regarding behavioural health emergencies. | Qualitative in-depth interviews. | 25 paramedics. | 8 out of 10 |
| Krayer | UK | Police; statutory and third sector organisations | Perceptions about joint working between mental health, social care and police services with regard to antisocial behaviour. | Multimethod sequential qualitative study. Police logs; interviews; focus groups. | 55 statutory and third sector organisations; 60 cases-narrative police logs. | 9 out of 10 |
| Lamb and Tarpey | UK | Police | UK police officers views on their experience of working with people with mental health difficulties. | Social constructionist perspective. Interviews. | 10 police officers | 7 out of 10 |
| Lane | UK | Police | Forum members discourses on individuals experiencing mental health difficulties. | Discursive psychology and critical discourse analysis. | 75 threads—discussion forum for members of the police force. | 9 out of 10 |
| Livingston | Canada | PMI | Experiences of PMI of their interactions with the police. | Semi-structured interviews. | 60 PMI. | 8 out of 10 |
| Mahmuda | Canada | PMI (frequent users) | Frequent users’ experiences regarding EMS. | A grounded theory approach. | 10 participants. | 8 out of 10 |
| Marsden | UK | Police | UK police officers' experiences of their involvement in mental healthcare. | Qualitative methods. | 15 police officers. | 9 out of 10 |
| McCann | Australia | Paramedic | Paramedics’ experience of caring for patients with non-medical emergency-related mental health and/or AOD problems. | Framework method. | 73 paramedics. | 10 out of 10 |
| McGuinness | Ireland | PMI | Impact of involuntary hospital admission to a mental health centre and illuminate their lived experience of involuntary admission. | Interpretative phenomenological analysis. | 6 participants. | 10 out of 10 |
| McKenna | Australia | Police, carers, paramedics, MH staff | Perceptions of stakeholders on behavioural escalation service utilisation of people in mental health crisis. | Exploratory research design. | 17 people (advisors, ED staff, police, ambulance officers). | 9 out of 10 |
| McLean and Marshall | UK | Police | Challenges when policing mental ill-health and use of mental health triage in England and Wales. | Interpretative phenomenological analysis. | 9 police officers. | 9 out of 10 |
| Morgan and Paterson | UK | Police | Police officers views of working with people with mental health difficulties and their experience of training to equip them for this. | Human rights framework. | 7 police officers. | 7 out of 10 |
| Myers | USA | PMI | Real-time decision-making between first hospital admission for early psychosis and treatment engagement or drop-out. | Prospective, longitudinal, ethnographic study. Open-ended, person-centred interviews. | 37 people who experienced involuntary admission. | 8 out of 10 |
| Ogloff | Australia | Police | Association among mental disorder, police shootings and other injuries, and police interactions with victims of crime. | Mixed methods. Semi-structured interviews. | 25 police officers. | 9 out of 10 |
| Olasoji | Australia | Carers | Experiences of carers as they access mental health services and as they engage with service/health providers? | A qualitative descriptive approach. Focus groups. | 19 carers of patients (ie, family members). | 10 out of 10 |
| Osafo | Ghana | Police | Views of the police on persons who attempt suicide and the law criminalising the act. | Qualitative approach. Semi-structured in-depth interviews. | 18 officers. | 9 out of 10 |
| Oxburgh | UK | Police | Perceptions of police officers regarding mentally disordered suspects, support provided to MD suspects and current police training in MD. | Grounded Theory. Questionnaire consisting of a mixture of open and probing questions. | 35 police officers. | 9 out of 10 |
| Prener and Lincoln | USA | Paramedic | Experiences, beliefs and attitudes towards what EMS providers call ‘psych calls’. | Semi-structured observational method and interviews. | 4×12 hour observations | 9 out of 10 |
| Railey | USA | Police, carer and PMI | Law Enforcement Officers’s (LEOs)knowledge of Autism Spectrum Disorder (ASD), interactions between LEOs and individuals with ASD, and training needs. | Constructivist grounded theory approach (interviews and questionnaires). | 6 adults with ASD, 5 caregivers and 6 law enforcement officers. | 10 out of 10 |
| Rant and Bregar | Slovenia | Paramedic | Paramedics experience suicidal patients. | Qualitative case study, semi-structured interviews. | 10 paramedics. | 9 out of 10 |
| Rees | UK | Paramedic | Paramedics' perceptions and experiences of caring for people who self-harm. | Evolved Grounded Theory Methodology. Semi-structured interviews. | 11 paramedics. | 10 out of 10 |
| Roberts and Henderson | Australia | Paramedic | Paramedics use of resources to support practice and their role when dealing with patients displaying mental illness. | Mixed methods. Focus groups and survey (open questions). | 74 survey responders. Focus groups: 20 paramedics. | 9 out of 10 |
| Rolfe | UK | Paramedic | Paramedics managing patients experiencing mental health issues. | Qualitative. Observations and interviews. | 21 paramedics and 20 patients with mental illness. | 10 out of 10 |
| Ross | Australia | Police | Effectiveness of the masterplan in reducing suicides. | Mixed-methods design. | 8 police officers. | 9 out of 10 |
| Salerno and Schuller | Canada | Police | Interactions between adults with ASD and the police and exploring how individuals with ASD perceive these experiences. | Community-engaged research strategy and integrating both qualitative and quantitative research methods. | 35 adults with ASD. | 9 out of 10 |
| Schulenberg | Canada | Police | Dynamics of police and PMI encounters versus non-PMI. | Observation and sequential mixed-methods research design. | Data on 606 citizens (74 ride-alongs). | 8 out of 10 |
| Shaban | Australia | Paramedics | Paramedics accounting for their JDM with respect to mental illness in the emergency care setting. | Ethnographic methods. | 6 paramedics. | 9 out of 10 |
| Soares and Pinto da Costa | Portugal | Police | Police officers’ interactions in compulsory admissions and in the delivery of involuntary mental health treatment. | Qualitative research. In-depth semi-structured interviews. | 10 police officers. | 9 out of 10 |
| Sondhi | UK | PMI | Perceptions of the process for people who have been detained under S136 of the Mental Health Act 1983. | Qualitative design. Semi-structured interviews. | 58 people with lived experience detained under S136 and 4 carers. | 9 out of 10 |
| Spence and Millott | UK | Police | To explore police negotiators’ perceptions of preparation and coping responses related to suicide. | Qualitative design. Semi-structured interviews. | 16 police negotiators. | 9 out of 10 |
| Stokoe and Sikveland | UK | Police | Methods negotiators use to engage persons in crisis and initiate and maintain productive sequences of talk. | Qualitative design. Conversation analysis. | 14 negotiations, 31 hours of audio-recordings. | 9 out of 10 |
| Tully and Smith | USA | Police | Officer perception of preparedness after receiving CIT training. | Mixed-methods design. | 8 officers. | 9 out of 10 |
| van Steden | The Netherlands | Police | Officers and nurses perceptions of disorderly and confused people. | Qualitative design. Informal conversations, interviews, focus groups, group meetings. | 5 policy makers, 17 | 9 out of 10 |
| Wallace | Guyana | Police | Police officers’ attitude, response and interaction with PMI. | Mixed-methods design. | 9 participants responded to open-ended questions. | 9 out of 10 |
| Warrington | UK | People with suicidality | Repeated S136 detentions. | Mixed-methods design. | 6 participants. | 9 out of 10 |
| Watson | USA | PMI | Dimensions of how police encounters are experienced by consumers. | Qualitative design. In-depth semi-structured interviews. | 20 persons with mental illness. | 9 out of 10 |
| Watson and Wood | USA | Police | Examination of the CIT model. | Mixed-methods design. | 21 police officers. | 9 out of 10 |
| Wells and Schafer | USA | Police | Police officer perceptions of their contacts with the mentally ill and examine outcomes of an innovative police training programme. | Mixed-methods design. | 126 police officer respondents. | 9 out of 10 |
| White | UK | PMI | Experiences with law enforcement services, emergency departments and psychiatric services. | Author personal experience— narrative. | One personal account. | 9 out of 10 |
| Wood and Beierschmitt | USA | Police | Opportunities for police enhanced upstream engagement. | Mixed-methods design. | 22 police officers. | 9 out of 10 |
| Wood | USA | Police | Officer perspectives on the unmet needs of individuals and their families and the ways in which the mental health and social system environment constrain officers’ abilities to be responsive to them. | Qualitative design. Field notes describing observations and ride-along interviews. | 57 officers. | 7 out of 10 |
| Wood and Watson | USA | Police | The nature of encounters police have with persons affected by mental illness and the ways in which such encounters are resolved by police. | Qualitative design. Observations. | 31 ride-alongs. | 7 out of 10 |
| Young | Canada | Parent caregiver | Experiences of parent caregivers for adult children with schizophrenia. | Qualitative design. Interviews. | 12 parent participants | 7 out of 10 |
CASP, Critical Appraisal Skills Programme; CIT, Crisis Intervention Teams; ED, emergency department; EMS, Emergency Medical Services; EMT, emergency medical technician; MH, mental health; NGO, non-governmental organisation; NSW, New South Wales; PMI, people with mental illness; S136, Section 136; ST, Street Triage.
Themes and subthemes
| Theme | Subthemes | Studies exploring each subtheme |
| Acknowledging versus criminalising mental illness | Criminalisation and use of force versus recognition of behaviour relating to mental ill health. | 22–24, 26, 32, 34–35, 41, 45, 51, 53–54, 59, 63, 66, 81–83, 87, 90–97. |
| Accountability, cautiousness and confusion over procedure. | 17, 62–63, 65–67, 79, 82–83, 85, 93, 95. | |
| Legitimacy and stigma | Non-legitimacy of mental illness and impact on seeking help. | 23, 29, 45, 50, 53, 59, 62, 64–66, 79, 81–87, 89, 90–91, 93–95, 97. (Australia, Canada, Portugal, UK, USA) |
| Stigma and use of stereotypes. | 17, 23, 29, 34–35, 40, 51, 58–60, 62–63, 66, 71, 81–87, 92, 98. (Australia, Canada, The Netherlands, Portugal, Sweden, UK, USA) | |
| First responder capability and skills dealing with mental health crises | Training: impact and requirements. | 32, 35, 41–42, 50, 52, 56, 59, 62, 64–66, 70, 79, 81–87, 89, 93–96, 98. (Australia, Canada, Ghana, Guyana, The Netherlands, Portugal, UK, USA) |
| Interagency collaboration. | 22, 25–27, 34–36, 46, 53, 59, 63, 65–66, 81, 84, 89, 91, 93–94, 96–97. (Australia, Canada, France, Guyana, The Netherlands, New Zealand, UK, USA) | |
| The value of personal experience. | 50, 57, 62, 66, 74, 79, 83, 87, 93–94, 97 (Australia, Portugal, Slovenia, UK, USA) | |
| Impact of response on companions: involvement hindering versus facilitating response | Companions ignored, not informed and impact on them not recognised. | 23–25, 29, 33–35, 91, 93–98 (Australia, The Netherlands, USA, UK) |
| Companion involvement: hindering response versus leading to better outcomes. | 35, 45, 83–86, 94–95, 97, 98. (Australia Canada, USA, UK, Portugal, The Netherlands) |