Literature DB >> 35113614

Open science in dementia care embedded pragmatic clinical trials.

Zachary G Baker1, Allison M Gustavson2, Lauren L Mitchell3, Joseph E Gaugler1.   

Abstract

Few dementia care interventions have been translated to healthcare contexts for those who need them. Embedded pragmatic clinical trials (ePCTs) are one design that can expedite the timeframe of research translation to clinical practice. As the National Institutes of Health (NIH) and other funders commit immense new resources to increasing the nation's capacity to conduct dementia care ePCTs, we call on psychologists to employ their extensive expertise in open science to improve the quality of dementia care ePCTs. This article provides several recommendations to enhance the transparency and reporting rigor of ePCTs in dementia care and other chronic disease contexts. We illustrate these recommendations in the context of a recent pilot pragmatic trial known as the Porchlight Project. Porchlight provided training to volunteers who serve clients and caregivers to help them provide more "dementia capable" support. Notably this trial did not include a special effort to make use of open science practices. We discuss the benefits and costs had the Porchlight Project incorporated open science principles. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

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Year:  2022        PMID: 35113614      PMCID: PMC8827495          DOI: 10.1037/pag0000644

Source DB:  PubMed          Journal:  Psychol Aging        ISSN: 0882-7974


  37 in total

1.  Evaluating the replicability of social science experiments in Nature and Science between 2010 and 2015.

Authors:  Colin F Camerer; Anna Dreber; Felix Holzmeister; Teck-Hua Ho; Jürgen Huber; Magnus Johannesson; Michael Kirchler; Gideon Nave; Brian A Nosek; Thomas Pfeiffer; Adam Altmejd; Nick Buttrick; Taizan Chan; Yiling Chen; Eskil Forsell; Anup Gampa; Emma Heikensten; Lily Hummer; Taisuke Imai; Siri Isaksson; Dylan Manfredi; Julia Rose; Eric-Jan Wagenmakers; Hang Wu
Journal:  Nat Hum Behav       Date:  2018-08-27

2.  Managing Clinical Knowledge for Health Care Improvement.

Authors:  E A Balas; S A Boren
Journal:  Yearb Med Inform       Date:  2000

3.  Dissemination and Implementation of Evidence-Based Dementia Care Using Embedded Pragmatic Trials.

Authors:  Laura N Gitlin; Rosa R Baier; Eric Jutkowitz; Zachary G Baker; Allison M Gustavson; Justine S Sefcik; Nancy A Hodgson; Sokha Koeuth; Joseph E Gaugler
Journal:  J Am Geriatr Soc       Date:  2020-07       Impact factor: 5.562

4.  Achieving Health Equity in Embedded Pragmatic Trials for People Living with Dementia and Their Family Caregivers.

Authors:  Ana R Quiñones; Susan L Mitchell; Jonathan D Jackson; María P Aranda; Peggye Dilworth-Anderson; Ellen P McCarthy; Ladson Hinton
Journal:  J Am Geriatr Soc       Date:  2020-07       Impact factor: 5.562

5.  Care to Plan: An Online Tool That Offers Tailored Support to Dementia Caregivers.

Authors:  Joseph E Gaugler; Mark Reese; Richard Tanler
Journal:  Gerontologist       Date:  2015-11-23

6.  Willingness to share research data is related to the strength of the evidence and the quality of reporting of statistical results.

Authors:  Jelte M Wicherts; Marjan Bakker; Dylan Molenaar
Journal:  PLoS One       Date:  2011-11-02       Impact factor: 3.240

7.  Dementia in low-income and middle-income countries: Different realities mandate tailored solutions.

Authors:  Cleusa Pinheiro Ferri; K S Jacob
Journal:  PLoS Med       Date:  2017-03-28       Impact factor: 11.069

8.  Readiness assessment for pragmatic trials (RAPT): a model to assess the readiness of an intervention for testing in a pragmatic trial.

Authors:  Rosa R Baier; Eric Jutkowitz; Susan L Mitchell; Ellen McCreedy; Vincent Mor
Journal:  BMC Med Res Methodol       Date:  2019-07-18       Impact factor: 4.615

9.  Improving the reporting of pragmatic trials: an extension of the CONSORT statement.

Authors:  Merrick Zwarenstein; Shaun Treweek; Joel J Gagnier; Douglas G Altman; Sean Tunis; Brian Haynes; Andrew D Oxman; David Moher
Journal:  BMJ       Date:  2008-11-11

10.  Towards a comprehensive model for understanding adaptations' impact: the model for adaptation design and impact (MADI).

Authors:  M Alexis Kirk; Julia E Moore; Shannon Wiltsey Stirman; Sarah A Birken
Journal:  Implement Sci       Date:  2020-07-20       Impact factor: 7.327

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