BACKGROUND: The goal of a clinical quality registry is to deliver immediate gains in survival and quality of life by delivering timely feedback to practitioners, thereby ensuring every patient receives the best existing treatment. We are developing an Australian Brain Cancer Registry (ABCR) to identify, describe, and measure the impact of the variation and gaps in brain cancer care from the time of diagnosis to the end of life. METHODS: To determine a set of clinical quality indicators (CQIs) for the ABCR, a database and internet search were used to identify relevant guidelines, which were then assessed for quality using the AGREE II Global Rating Scale. Potential indicators were extracted from 21 clinical guidelines, ranked using a modified Delphi process completed in 2 rounds by a panel of experts and other stakeholders, and refined by a multidisciplinary Working Group. RESULTS: Nineteen key quality reporting domains were chosen, specified by 57 CQIs detailing the specific inclusion and outcome characteristics to be reported. CONCLUSION: The selected CQIs will form the basis for the ABCR, provide a framework for achievable data collection, and specify best practices for patients and health care providers, with a view to improving care for brain cancer patients. To our knowledge, the systematic and comprehensive approach we have taken is a world first in selecting the reporting specifications for a brain cancer clinical registry.
BACKGROUND: The goal of a clinical quality registry is to deliver immediate gains in survival and quality of life by delivering timely feedback to practitioners, thereby ensuring every patient receives the best existing treatment. We are developing an Australian Brain Cancer Registry (ABCR) to identify, describe, and measure the impact of the variation and gaps in brain cancer care from the time of diagnosis to the end of life. METHODS: To determine a set of clinical quality indicators (CQIs) for the ABCR, a database and internet search were used to identify relevant guidelines, which were then assessed for quality using the AGREE II Global Rating Scale. Potential indicators were extracted from 21 clinical guidelines, ranked using a modified Delphi process completed in 2 rounds by a panel of experts and other stakeholders, and refined by a multidisciplinary Working Group. RESULTS: Nineteen key quality reporting domains were chosen, specified by 57 CQIs detailing the specific inclusion and outcome characteristics to be reported. CONCLUSION: The selected CQIs will form the basis for the ABCR, provide a framework for achievable data collection, and specify best practices for patients and health care providers, with a view to improving care for brain cancer patients. To our knowledge, the systematic and comprehensive approach we have taken is a world first in selecting the reporting specifications for a brain cancer clinical registry.
Authors: Adelheid Wöhrer; Thomas Waldhör; Harald Heinzl; Monika Hackl; Johann Feichtinger; Ulrike Gruber-Mösenbacher; Andreas Kiefer; Hans Maier; Reinhard Motz; Angelika Reiner-Concin; Bernd Richling; Carmen Idriceanu; Michael Scarpatetti; Roland Sedivy; Hans-Christian Bankl; Wolfgang Stiglbauer; Matthias Preusser; Karl Rössler; Johannes Andreas Hainfellner Journal: J Neurooncol Date: 2009-06-28 Impact factor: 4.130
Authors: Astrid K Gnekow; Daniela Kandels; Cornelis van Tilburg; Amedeo A Azizi; Enrico Opocher; Tore Stokland; Pablo Hernaiz Driever; A Y N Schouten-van Meeteren; Ulrich W Thomale; Martin U Schuhmann; Thomas Czech; John Robert Goodden; Monika Warmuth-Metz; Brigitte Bison; Shivaram Avula; Rolf-D Kortmann; Beate Timmermann; Torsten Pietsch; Olaf Witt Journal: Klin Padiatr Date: 2019-05-20 Impact factor: 1.349
Authors: Gail Darling; Richard Malthaner; John Dickie; Leigh McKnight; Cindy Nhan; Amber Hunter; Robin S McLeod Journal: Ann Thorac Surg Date: 2014-04-26 Impact factor: 4.330
Authors: Alvin R Cabrera; John P Kirkpatrick; John B Fiveash; Helen A Shih; Eugene J Koay; Stephen Lutz; Joshua Petit; Samuel T Chao; Paul D Brown; Michael Vogelbaum; David A Reardon; Arnab Chakravarti; Patrick Y Wen; Eric Chang Journal: Pract Radiat Oncol Date: 2016-03-31