Literature DB >> 35046755

Ensuring the Reproductive Rights of Women with Intellectual Disability.

Nicole Agaronnik1, Elizabeth Pendo2, Tara Lagu3,4, Christene DeJong3, Aixa Perez-Caraballo3, Lisa I Iezzoni1,5.   

Abstract

BACKGROUND: Women with intellectual disability experience disparities in sexual and reproductive health care services.
METHODS: To explore perceptions of caring for persons with disability, including individuals with intellectual disability, we conducted open-ended individual interviews with 20 practicing physicians and three video-based focus group interviews with an additional 22 practicing physicians, which reached data saturation. Interviews were transcribed verbatim. We used conventional content analysis methods to analyse transcripts. RESULT: Physicians indicated that intellectual disability can pose challenges to providing sexual and reproductive health care. Observations coalesced around four themes: (1) communication; (2) routine preventive care; (3) contraception and sterilization; and (4) conception and parenthood. Observations raised concerns about equity of access to reproductive care for women with intellectual disability.
CONCLUSIONS: In our sample of physicians, we found attitudes that might compromise reproductive care for women with intellectual disability, suggesting that gaps remain in ensuring reproductive rights of women with intellectual disability.

Entities:  

Keywords:  health disparities; intellectual disability; reproductive health

Year:  2020        PMID: 35046755      PMCID: PMC8765596          DOI: 10.3109/13668250.2020.1762383

Source DB:  PubMed          Journal:  J Intellect Dev Disabil        ISSN: 1366-8250


  38 in total

1.  Barriers to providing maternity care to women with physical disabilities: Perspectives from health care practitioners.

Authors:  Monika Mitra; Lauren D Smith; Suzanne C Smeltzer; Linda M Long-Bellil; Nechama Sammet Moring; Lisa I Iezzoni
Journal:  Disabil Health J       Date:  2017-01-03       Impact factor: 2.554

2.  What's in a name? Qualitative description revisited.

Authors:  Margarete Sandelowski
Journal:  Res Nurs Health       Date:  2010-02       Impact factor: 2.228

3.  Combining individual interviews and focus groups to enhance data richness.

Authors:  Sylvie D Lambert; Carmen G Loiselle
Journal:  J Adv Nurs       Date:  2008-04       Impact factor: 3.187

4.  Exploring issues relating to disability cultural competence among practicing physicians.

Authors:  Nicole Agaronnik; Eric G Campbell; Julie Ressalam; Lisa I Iezzoni
Journal:  Disabil Health J       Date:  2019-02-01       Impact factor: 2.554

5.  Physical access barriers to care for diagnosis and treatment of breast cancer among women with mobility impairments.

Authors:  Lisa I Iezzoni; Kerry Kilbridge; Elyse R Park
Journal:  Oncol Nurs Forum       Date:  2010-11       Impact factor: 2.172

Review 6.  Sexuality issues and the voices of adults with intellectual disabilities: A systematic review of the literature.

Authors:  Michael Brown; Edward McCann
Journal:  Res Dev Disabil       Date:  2018-02-03

7.  A longitudinal assessment of adherence to breast and cervical cancer screening recommendations among women with and without intellectual disability.

Authors:  Xinling Xu; Suzanne W McDermott; Joshua R Mann; James W Hardin; Chelsea B Deroche; Dianna D Carroll; Elizabeth A Courtney-Long
Journal:  Prev Med       Date:  2017-04-25       Impact factor: 4.018

8.  Reproductive Cancer Treatment Hospitalizations of U.S. Women With Intellectual and Developmental Disabilities.

Authors:  Susan L Parish; Esther Son; Robyn M Powell; Leah Igdalsky
Journal:  Intellect Dev Disabil       Date:  2018-02

Review 9.  Sexual and reproductive health care for women with intellectual disabilities: a primary care perspective.

Authors:  Nechama W Greenwood; Joanne Wilkinson
Journal:  Int J Family Med       Date:  2013-12-12

10.  Prevalence of Disabilities and Health Care Access by Disability Status and Type Among Adults - United States, 2016.

Authors:  Catherine A Okoro; NaTasha D Hollis; Alissa C Cyrus; Shannon Griffin-Blake
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2018-08-17       Impact factor: 17.586

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  3 in total

1.  Clinician perspectives on the need for training on caring for pregnant women with intellectual and developmental disabilities.

Authors:  Nili Amir; Lauren D Smith; Anne M Valentine; Monika Mitra; Susan L Parish; Tiffany A Moore Simas
Journal:  Disabil Health J       Date:  2021-12-17       Impact factor: 2.554

2.  The Rule of Law for the Exercise of Marriage and Reproductive Rights for Women with Intellectual Disabilities in China.

Authors:  Zhengzong Huang; Baoxin Chen; Zehua Feng
Journal:  Risk Manag Healthc Policy       Date:  2022-05-25

Review 3.  Challenges in Providing Reproductive and Gynecologic Care to Women With Intellectual Disabilities: A Review of Existing Literature.

Authors:  Prakriti Singh Shrestha; Angela Ishak; Upasana Maskey; Purushottam Neupane; Sarosh Sarwar; Shreeya Desai; Faris Naffa; Claudia Maria Cuevas Lou; Miguel Diaz-Miret
Journal:  J Family Reprod Health       Date:  2022-03
  3 in total

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