Literature DB >> 35038135

Does ventilator use status correlate with quality of life in patients with early-onset scoliosis treated with rib-based growing system implantation?

Sarah Beth Nossov1, Alejandro Quinonez2, Justin SanJuan2, John P Gaughan3, Josh Pahys2, Amer Samdani2, Jack Flynn4, Oscar H Mayer4, Sumeet Garg5, Michael Glotzbecker6, John Smith7, Patrick J Cahill4.   

Abstract

PURPOSE: Pulmonary function and quality of life (QOL) are important outcome measures for patients with early-onset scoliosis (EOS) undergoing rib-based growing system (RBGS) implantation. The Assisted Ventilation Rating (AVR) measures ventilator requirements in this population. A higher, more severe, score implies negative changes in QOL. The EOS Questionnaire (EOSQ) is a validated outcome measure. Paired measurements for both ratings were compared to clarify correlation between ventilator status and QOL. Secondary analysis aimed at defining QOL between more broad subgroups defined by ventilator use.
METHODS: AVR and EOSQ scores were extracted from the Pediatric Spine Study Group database for patients 10 years of age and under. Instances were excluded if the time between AVR and EOSQ assessment was greater than 6 months. Scores were compared using Spearman correlation coefficient. Subgroup analysis included control for age, gender, and etiology. Secondary analysis was performed for broad functional grouping using ranked analysis of variance for repeated measures using median scores.
RESULTS: Two thousand five hundred and forty-two instances of paired EOSQ and AVR in 329 patients were analyzed. A statistically significant weak correlation between AVR and EOSQ was identified in Child's Health Related QOL and Family Impact sections, in nine subsets. Subgroup analysis showed little variation, except increased correlation in female patients to near moderate level. Analysis of variance for demonstrated decreased medians for all subdomains when comparing those mechanically ventilated to patients who did not require ventilation.
CONCLUSION: Ventilator status tracks with QOL were measured by EOSQ. A more severe AVR is negatively correlated with most domains of the EOSQ for patients with EOS who have undergone RBGS implantation. The strength of this correlation is weak, and so AVR alone may be insufficient to precisely determine QOL in this population. LEVEL OF EVIDENCE: Level-III, Retrospective.
© 2022. The Author(s), under exclusive licence to Scoliosis Research Society.

Entities:  

Keywords:  Assisted Ventilation Rating; Early-onset scoliosis; Insufficiency syndrome; Quality of life; Rib-based growing system; Thoracic

Mesh:

Year:  2022        PMID: 35038135     DOI: 10.1007/s43390-021-00470-9

Source DB:  PubMed          Journal:  Spine Deform        ISSN: 2212-134X


  9 in total

1.  Posterior spinal fusion versus anterior/posterior spinal fusion for adolescent idiopathic scoliosis: a decision analysis.

Authors:  Matthew A Davis
Journal:  Spine (Phila Pa 1976)       Date:  2009-10-01       Impact factor: 3.468

2.  The ethics of defining quality of life.

Authors:  Constance L Milton
Journal:  Nurs Sci Q       Date:  2013-04       Impact factor: 0.883

3.  Early onset scoliosis: current concepts and controversies.

Authors:  Nicholas D Fletcher; Robert W Bruce
Journal:  Curr Rev Musculoskelet Med       Date:  2012-06

Review 4.  Definitions of quality of life: a taxonomy.

Authors:  M Farquhar
Journal:  J Adv Nurs       Date:  1995-09       Impact factor: 3.187

5.  Measuring quality of life in children with early onset scoliosis: development and initial validation of the early onset scoliosis questionnaire.

Authors:  Jacqueline Corona; Hiroko Matsumoto; David P Roye; Michael G Vitale
Journal:  J Pediatr Orthop       Date:  2011-03       Impact factor: 2.324

6.  VEPTR: Are We Reducing Respiratory Assistance Requirements?

Authors:  Sarah B Nossov; Evan Curatolo; Robert M Campbell; Oscar H Mayer; Sumeet Garg; And Patrick J Cahill
Journal:  J Pediatr Orthop       Date:  2019-01       Impact factor: 2.324

Review 7.  Thoracic Insufficiency Syndrome.

Authors:  Oscar Mayer; Robert Campbell; Patrick Cahill; Gregory Redding
Journal:  Curr Probl Pediatr Adolesc Health Care       Date:  2015-12-30

8.  The Final 24-Item Early Onset Scoliosis Questionnaires (EOSQ-24): Validity, Reliability and Responsiveness.

Authors:  Hiroko Matsumoto; Brendan Williams; Howard Y Park; Julie Y Yoshimachi; Benjamin D Roye; David P Roye; Behrooz A Akbarnia; John Emans; David Skaggs; John T Smith; Michael G Vitale
Journal:  J Pediatr Orthop       Date:  2018-03       Impact factor: 2.324

9.  Health-related quality of life in early-onset-scoliosis patients treated with growth-friendly implants is influenced by etiology, complication rate and ambulatory ability.

Authors:  Anna K Hell; Lena Braunschweig; Jennifer Behrend; Heiko M Lorenz; Konstantinos Tsaknakis; Urs von Deimling; Kiril Mladenov
Journal:  BMC Musculoskelet Disord       Date:  2019-12-07       Impact factor: 2.362

  9 in total

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