| Literature DB >> 34982328 |
Taylor Harrell1, Elizabeth A Howell2, Amy Balbierz3,4,5, Luz Guel6, Juan Pena7, Teresa Janevic3,4,7, Ksenia Gorbenko3,8.
Abstract
BACKGROUND/Entities:
Keywords: Emergency department; Health disparities; Maternal health; Medicaid-insured; Postpartum
Mesh:
Year: 2022 PMID: 34982328 PMCID: PMC8724640 DOI: 10.1007/s10995-021-03282-5
Source DB: PubMed Journal: Matern Child Health J ISSN: 1092-7875
Moderator guide
| Construct | Question examples |
|---|---|
| Warm-up | Think back to your first few days after delivering your baby 1. If you could paint a picture of yourself and how you were feeling, what sticks out the most? 2. Were there any major problems you encountered in the first weeks after your delivery? |
| Psychological well-being | 1. How were you feeling emotionally after coming home from the hospital? 2. Did you feel prepared to deal with any difficulties you faced? |
| Social support | 1. What kind of supports do you have at home? 2. In what ways are family/friends helpful? In what ways were they not helpful? |
| Healing after childbirth | 1. Did you have any major health issues after you had your child? Please tell us about those issues 2. Did any of you go to the Emergency Room for care during this period for your own health? If yes, please let us know why |
| Barriers to care | 1. If you had to visit your doctor prior to your scheduled postpartum visit, how easy was it to schedule an appointment able to see your ob/midwife? 2. Was there anything that prevented you from receiving care when you first had symptoms? |
| Patient education | 1. What key things did your doctor or midwife do that helped you understand and take care of yourself physically and emotionally? |
| Wrap up | 1. If you were going to make one recommendation to a new mom to help her during the first months postpartum what would that be? |
Demographic characteristics of the study participants (N = 18)
| Participant characteristics | Participants (n = 18) |
|---|---|
| Age | |
| Below 30 | 5 |
| 30+ | 10 |
| Primary language | |
| English | 8 |
| Spanish | 4 |
| Other | 3 |
| Race | |
| Black or African American | 10 |
| Asian | 1 |
| White | 1 |
| Declined to Answer | 3 |
| U.S. origin (Y) | 8 |
| Hispanic (Y) | 7 |
| Married/living with partner (Y) | 6 |
| Highest education level | |
| High school graduate or GED | 4 |
| Some college or above | 11 |
| First pregnancy (Y) | 7 |
| Parity | |
| One | 7 |
| More than one | 8 |
| Employed (Y) | 8 |
| Annual income | |
| Less than $45,000 | 6 |
| More than $45,000 | 2 |
| I don’t remember/don’t know | 7 |
| ER visits (Y) | 5 |
Based on 15 responses. Three missing information
List of focus group themes and subthemes
| Themes and sub-themes | |
|---|---|
| 1. Lack of access to and communication with medical team | |
| 1.1 Rotating providers | |
| 1.2 Trouble building trusting relationships | |
| 1.3 Racism & bias | |
| 2. Lack of preparation for postpartum period | |
| 2.1 Fear | |
| 2.2 Health education | |
| 2.3 Difficulty retaining information | |
| 3. Importance of social support to postpartum success | |
| 3.1 Identifying a close support person | |
| 3.2 Role of partner | |
| 3.3 Unmet expectations | |
| 4. Participant recommendations for improving quality of care | |
| 4.1 Enhancing health education | |
| 4.2 Engaging caregivers | |
| 4.3 Support groups | |
| 4.4 Listen to women |
Lack of access to and communication with medical team
| Sub-theme 1.1: Rotating providers | |
|---|---|
i. The truth is I was attended more or less by five or six midwives. It would have been nice to have just one doctor until the end for delivery ii. Maybe if we had one doctor, it would be easier for us to contact that one doctor, communication would be better for us and treatment could be sooner because that doctor knows about our health conditions and what’s going on with us iii. Everyone that I had met through the clinic…were really great and helpful and I liked them but I never felt like I had a team of people watching. I don’t know who I could’ve called in an emergency. I didn’t feel that I had a specific doctor to reach out to to ask questions. So my reaction was to just go to the emergency room instead of calling the clinic first |
Lack of preparation for postpartum period
| Subtheme 2.1: Fear | |
|---|---|
i. This was the first time out of all of my pregnancies that I ever experienced preeclampsia or any other type of complication. I usually had a normal pregnancy, no complications at all. So this was a very scary experience for me ii. When it happened it felt like a death sentence and it was quite confusing and scary because I had no idea that a pregnancy could lead to heart failure |
Importance of social support to postpartum success
| Subtheme 3.1: Identifying a close support person | |
|---|---|
i. you… think you know everything but you don’t know. So if you have someone that really wants to help you, talk to that person and see whatever help that they can give to you ii. There’s really not a book [on] how to be a parent. I feel like the support system is very very important in order to raise a child, have a child, and take care of the child. Even if you went to classes, it is very difficult. So have a good support system |
Participant recommendations for improving quality of care
| Subtheme 4.1: Enhancing health education | |
|---|---|
i. …maybe, even if it is a very severe case like the one I had, maybe if those things would have been listed, maybe my husband would have read it and kept it ii. Pay attention to moms postpartum. Providing resources or information right before you give birth or while they are in the hospital, ‘this is what you need to be careful of.’ A list of things that you could use or that may use could be life changing. Critical for mom iii. Come up with the right kind of resources, whether it's pamphlets, whether it is [an] online app |