Literature DB >> 34978025

Autistic Adults' Experiences of Diagnosis Disclosure.

Yunhe Huang1,2, Ye In Jane Hwang3, Samuel R C Arnold4,5, Lauren P Lawson6,2, Amanda L Richdale6,2, Julian N Trollor1,2.   

Abstract

As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts.
© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  Adults; Autism; Diagnosis; Mixed-methods; Stigma

Year:  2022        PMID: 34978025     DOI: 10.1007/s10803-021-05384-z

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  10 in total

1.  Educational Experiences and Needs of Higher Education Students with Autism Spectrum Disorder.

Authors:  Ru Ying Cai; Amanda L Richdale
Journal:  J Autism Dev Disord       Date:  2016-01

2.  Higher education experiences of students with autism spectrum disorder: challenges, benefits and support needs.

Authors:  Valérie Van Hees; Tinneke Moyson; Herbert Roeyers
Journal:  J Autism Dev Disord       Date:  2015-06

3.  "We will never be normal": The Experience of Discovering a Partner Has Autism Spectrum Disorder.

Authors:  Laura F Lewis
Journal:  J Marital Fam Ther       Date:  2017-04-10

4.  Employment activities and experiences of adults with high-functioning autism and Asperger’s Disorder.

Authors:  Susanna Baldwin; Debra Costley; Anthony Warren
Journal:  J Autism Dev Disord       Date:  2014-10

5.  Perspectives of University Students with Autism Spectrum Disorder.

Authors:  Anastasia H Anderson; Mark Carter; Jennifer Stephenson
Journal:  J Autism Dev Disord       Date:  2018-03

6.  Research Review: A systematic review and meta-analysis of sex/gender differences in social interaction and communication in autistic and nonautistic children and adolescents.

Authors:  Henry Wood-Downie; Bonnie Wong; Hanna Kovshoff; Samuele Cortese; Julie A Hadwin
Journal:  J Child Psychol Psychiatry       Date:  2020-11-02       Impact factor: 8.982

7.  Employer benefits from making workplace accommodations.

Authors:  Tatiana I Solovieva; Denetta L Dowler; Richard T Walls
Journal:  Disabil Health J       Date:  2010-04-24       Impact factor: 2.554

8.  The construction and validation of an abridged version of the autism-spectrum quotient (AQ-Short).

Authors:  Rosa A Hoekstra; Anna A E Vinkhuyzen; Sally Wheelwright; Meike Bartels; Dorret I Boomsma; Simon Baron-Cohen; Danielle Posthuma; Sophie van der Sluis
Journal:  J Autism Dev Disord       Date:  2011-05

9.  Cohort profile: the Australian Longitudinal Study of Adults with Autism (ALSAA).

Authors:  Samuel Arnold; Kitty-Rose Foley; Ye In Jane Hwang; Amanda L Richdale; Mirko Uljarevic; Lauren P Lawson; Ru Ying Cai; Torbjorn Falkmer; Marita Falkmer; Nick G Lennox; Anna Urbanowicz; Julian Trollor
Journal:  BMJ Open       Date:  2019-12-04       Impact factor: 2.692

Review 10.  Identifying the lost generation of adults with autism spectrum conditions.

Authors:  Meng-Chuan Lai; Simon Baron-Cohen
Journal:  Lancet Psychiatry       Date:  2015-11       Impact factor: 27.083

  10 in total
  1 in total

1.  Using the COM-B Model and Theoretical Domains Framework to Understand Workplace Disclosure Experiences, Influencers, and Needs Among Autistic Young Adults.

Authors:  Vanessa Tomas; Shauna Kingsnorth; Bonnie Kirsh; Evdokia Anagnostou; Sally Lindsay
Journal:  J Autism Dev Disord       Date:  2022-09-28
  1 in total

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