| Literature DB >> 34935144 |
Deborah Ummel1,2,3, Mélanie Vachon2,3,4, Alexandra Guité-Verret2,3,4.
Abstract
Despite public health measures and collective efforts, millions of individuals have unfortunately died from COVID-19 complications worldwide, leaving several million family members at risk of developing bereavement complications. In the Canadian province of Quebec, where substantial deaths were associated with COVID-19, we established an online support community for bereaved caregivers who lost a loved one during the pandemic. We explain how we created a community that recognized pandemic grief and advocated for its wider acknowledgment. We discuss "compassionate communities," the theoretical underpinning of our initiative, as a means to foster solidarity, normalize finitude, create and maintain a safe social space through group sharing, and challenging capitalist principles. We then describe the eight areas of activities inspired by the Charter of Pallium Canada: education and training, hospices and nursing homes, media and social media, commemoration, celebrations, artistic practices and storytelling, marginalized populations, and review and evaluate. We propose that online communities constitute a powerful space for community members to gather and advocate for greater awareness of the inequities found in end-of-life care and bereavement services, to denounce abusive situations experienced by many individuals who died from COVID-19 complications, and to fight against the lack of recognition experienced by numerous caregivers.Entities:
Keywords: COVID-19; bereavement; compassionate communities; pandemic grief; research-creation
Mesh:
Year: 2021 PMID: 34935144 DOI: 10.1002/ajcp.12576
Source DB: PubMed Journal: Am J Community Psychol ISSN: 0091-0562