Literature DB >> 34847744

"It was surprisingly equivalent to the appointment I had in person": Advantages and disadvantages of synchronous telehealth for delivering primary care for autistic adults.

Lauren Harris1, Daniel Gilmore1, Christopher Hanks1, Daniel Coury2, Susan Moffatt-Bruce3, Jennifer H Garvin1, Brittany N Hand1.   

Abstract

LAY ABSTRACT: Autistic adults face many barriers to receiving quality primary health care like clinics that are far away and sensory sensitivities. Real-time telehealth visits, called "virtual visits," are live video chats between the patient and provider. Virtual visits may minimize barriers to care for autistic adults. We wanted to describe advantages and disadvantages of using virtual visits for delivering primary health care for autistic adults. We interviewed 7 autistic adults and 12 caregivers of autistic adults who receive primary care through one clinic. Autistic adults and caregivers said advantages to virtual visits were that (1) patients were more comfortable at home, (2) patients could get health care while avoiding physical contact with other people during the pandemic, and (3) virtual visits were similar to or better than in-person visits. The disadvantages included that (1) there could be technology problems like grainy video, (2) the doctor could not physically examine the patient (e.g. look in ears), and (3) patients sometimes participated less in the virtual visit than they would in person. Virtual visits may be beneficial for autistic adults by eliminating travel to the clinic and avoiding stressful sensory stimuli. We recognize that virtual visits may not work for all patients or in all situations. However, our study shows that primary care virtual visits may be beneficial for autistic adults during and beyond the pandemic.

Entities:  

Keywords:  autism spectrum disorders; health services; qualitative research; technology; telehealth

Mesh:

Year:  2021        PMID: 34847744      PMCID: PMC9149139          DOI: 10.1177/13623613211060589

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  25 in total

1.  "Respect the way I need to communicate with you": Healthcare experiences of adults on the autism spectrum.

Authors:  Christina Nicolaidis; Dora M Raymaker; Elesia Ashkenazy; Katherine E McDonald; Sebastian Dern; Amelia Ev Baggs; Steven K Kapp; Michael Weiner; W Cody Boisclair
Journal:  Autism       Date:  2015-04-16

2.  Provider barriers to telemental health: obstacles overcome, obstacles remaining.

Authors:  Elizabeth Brooks; Carolyn Turvey; Eugene F Augusterfer
Journal:  Telemed J E Health       Date:  2013-04-16       Impact factor: 3.536

3.  Delivering allied health services to regional and remote participants on the autism spectrum via video-conferencing technology: lessons learned.

Authors:  Genevieve Johnsson; Rachel Kerslake; Sarah Crook
Journal:  Rural Remote Health       Date:  2019-09-02       Impact factor: 1.759

4.  Patient Perceptions of Telehealth Primary Care Video Visits.

Authors:  Rhea E Powell; Jeffrey M Henstenburg; Grace Cooper; Judd E Hollander; Kristin L Rising
Journal:  Ann Fam Med       Date:  2017-05       Impact factor: 5.166

5.  Considerations for the Telehealth Systems of Tomorrow: An Analysis of Student Perceptions of Telehealth Technologies.

Authors:  Tyler Preston Bull; Alexis Roxanne Dewar; Donna M Malvey; James Leo Szalma
Journal:  JMIR Med Educ       Date:  2016-07-08

6.  Could autism spectrum disorders be a risk factor for COVID-19?

Authors:  Matheus Eugênio de Sousa Lima; Levi Coelho Maia Barros; Gislei Frota Aragão
Journal:  Med Hypotheses       Date:  2020-05-30       Impact factor: 1.538

7.  Parent Perspectives of an Occupational Therapy Telehealth Intervention.

Authors:  Anna Wallisch; Lauren Little; Ellen Pope; Winnie Dunn
Journal:  Int J Telerehabil       Date:  2019-06-12

8.  Telehealth as a Model for Providing Behaviour Analytic Interventions to Individuals with Autism Spectrum Disorder: A Systematic Review.

Authors:  Jenny Ferguson; Emma A Craig; Katerina Dounavi
Journal:  J Autism Dev Disord       Date:  2019-02

9.  Telehealth transformation: COVID-19 and the rise of virtual care.

Authors:  Jedrek Wosik; Marat Fudim; Blake Cameron; Ziad F Gellad; Alex Cho; Donna Phinney; Simon Curtis; Matthew Roman; Eric G Poon; Jeffrey Ferranti; Jason N Katz; James Tcheng
Journal:  J Am Med Inform Assoc       Date:  2020-06-01       Impact factor: 4.497

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  3 in total

1.  Expectations and Concerns about the Use of Telemedicine for Autism Spectrum Disorder: A Cross-Sectional Survey of Parents and Healthcare Professionals.

Authors:  Alessandra Gabellone; Lucia Marzulli; Emilia Matera; Maria Giuseppina Petruzzelli; Anna Margari; Orazio Valerio Giannico; Lucia Margari
Journal:  J Clin Med       Date:  2022-06-08       Impact factor: 4.964

2.  Brief Report: A Pilot Study Examining the Effects of PEERS® for Adolescents Telehealth for Autistic Adolescents.

Authors:  Elyse J Adler; Hillary K Schiltz; Danielle M Glad; Sarah A Lehman; Sara K Pardej; Rachel E Stanley; Amy V Van Hecke
Journal:  J Autism Dev Disord       Date:  2022-07-23

3.  Accessibility of Virtual Primary Care for Adults With Intellectual and Developmental Disabilities During the COVID-19 Pandemic: Qualitative Study.

Authors:  Avra Selick; Janet Durbin; Yani Hamdani; Jennifer Rayner; Yona Lunsky
Journal:  JMIR Form Res       Date:  2022-08-22
  3 in total

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