| Literature DB >> 34846356 |
Ivy Benjenk, Zeina Saliba1, Neel Duggal2, Asmaa Albaroudi3, Jacqueline Posada1, Jie Chen3.
Abstract
ABSTRACT: In response to COVID-19 mitigation policies, mental health and social service agencies have had to rapidly change their operations, creating challenges for patients with serious mental illness (SMI). This study aimed to explore the experiences of adults with SMI navigating these altered systems during the pandemic. In-depth interviews were conducted with 20 hospitalized adults with SMI in the fall of 2020; they were coded using thematic analysis. Most participants found the new systems effective at meeting their essential needs. However, several reported significant unmet needs, including inability to access mental health care and public benefits. These participants lacked identification documents, housing, and/or a personal device. Although none of the participants used telemedicine before COVID-19, most reported no or minimal problems with telemental health. Those reporting difficulties did not have personal devices, were receiving audio-only services, or viewed telemedicine as less personal or too distracting.Entities:
Mesh:
Year: 2021 PMID: 34846356 PMCID: PMC8614196 DOI: 10.1097/NMD.0000000000001389
Source DB: PubMed Journal: J Nerv Ment Dis ISSN: 0022-3018 Impact factor: 2.254
Characteristics of Study Participants
| Characteristic | Categories | |
|---|---|---|
| Age | 20–29 | 4 (20) |
| 30–39 | 3 (15) | |
| 40–49 | 3 (15) | |
| 50–59 | 5 (25) | |
| 60–69 | 4 (20) | |
| 70 and over | 1 (5) | |
| Sex | Male | 11 (55) |
| Female | 9 (45) | |
| Race | N.H. White | 5 (25) |
| N.H. Black | 15 (75) | |
| Housing | Homeless | 7 (35) |
| Employment | Employed | 2 (10) |
| Unemployment unrelated to COVID-19 pandemic | 4 (20) | |
| Unemployment related to COVID-19 pandemic | 3 (15) | |
| Disabled/retired | 11 (55) | |
| Outpatient mental health providers | Has at least one active provider | 13 (65) |
| Recent lapse in treatment | 4 (20) | |
| Has not received recent mental health treatment | 3 (15) | |
| Mental health diagnostic category | Mood disorder or trauma disorder | 10 (50) |
| Psychotic disorder | 10 (50) | |
| Substance use | Self-reported substance use disorder | 4 (20) |
| COVID-19 concerns | Previously diagnosed with COVID-19 | 2 (10) |
| Personal device | Does not having a functioning personal device | 5 (25) |
N.H. indicates non-Hispanic.
Barriers to Engagement With Telemedicine
| Less personal | “You're not having no face-to-face, no visual with them. No looking at them eye-to-eye. You can learn a lot about a person from the way they sit in a chair or talk or look at you eye-to-eye.” |
| Poorer quality | “If you are looking at a person, you have a tendency to be more honest with them, then over the phone, you know what I'm saying? I'm speaking for myself. I cannot speak for everybody else. When you can see a person's demeanor, look at it the way they sitting or whatever, you can tell something's going on with them, compared to just talking to the telephone.” |
| Too many distractions | “I was doing therapy and we were seeing each other, but then we got to COVID and we had to do virtual. And when I was going virtual with her, she was talking to her family in the background, arguing with her [partner]. And I'm this cannot be real, no way. How are you going back and forth with him. Tell him to leave. You're at work. So, I just hung up and stopped going. So that interrupted a lot…I do not like the zoom thing. I really do not. It does not benefit me. I'd rather be close contact with somebody, but I know we cannot do that in a lot of places...During the Zoom, I'll probably be on my phone. When notifications pop, I'm paying attention to that.” |
| Difficulty establishing new relationships | “My psychiatrist left in January, which was really hard for me. It was before we knew about COVID, but COVID was sort of happening. He left in January and I got a new psychiatrist. I have a meeting with her on the phone once a month for med management…I've never met her…She keeps asking what's your social security number? How old are you? What's your date of birth? And she does not know very much about me.” |
| Lack of privacy | “Oftentimes I would have to wake up my partner and be like, ‘Hey, I have an appointment in like 5 minutes. Can you skedaddle?’…When you are in a doctor's office, like with your psychiatrist or something, and it's very clear that this is us and it's not anyone else listening in on us. And to have the possibility of someone could be like sitting in the other room and like listening to your conversation, it's like very weird to have that like element to a doctor's appointment.” |
| Provider uses telephone | “[The attending physician] asked the question to the resident. ‘You mean to tell me you have been treating her all this time and you have never seen her face.’ So, [the attending physician] was a little perturbed by that. And she said, next time it has to be tele, because you have to be able to see a person to read their face and their body language. And that's when I said no more of that. Let me go to [another mental health clinic].” |
Unmet Needs During the COVID-19 Pandemic
| Mental health care | “I'm really just trying to get my doctors and stuff, but everybody wants to do Zoom or on phone meetings and it's making it more of a pain for me, because I do not have a phone right now and i'm trying to get one, but I cannot without identification.” |
| Medication | “I went there one day and they said, ‘you do not have your ID, you do not have your birth certificate, so we cannot help you out.’ I begged him. I was like, ‘man, I really need my medication. You know me. I've been here numerous times.’ They just do not want to help you.” |
| Cellphone | “Assurance Wireless has taken me through the ringer because one case worker applied for one at one shelter. Then I got moved to another shelter. So, they are telling me I already have a phone and I never received the first phone. I'm just through with the phone calls, the interviews, I'm just, I'm done. You know, it's been real difficult.” |
| Internet | “I used to be able to sit on the computer [at the library] for 5 hours a day. Now, I cannot even get a computer for 15 minutes. I'm pretty sure it messes up my family. I cannot check in with them and see how they are doing.” |
| Food | “It is hard. I get food stamps, but a lot of places that used to serve do not even serve anymore…Even the shelter van, does not come around as often anymore…You have to pick up the phone and actually call them before they would come pick you up. Normally, they would just drive around the city and if they see you. They do not even do that anymore…Before this started, you had people coming down to [the] park on Saturdays and Sundays. They would come down there, set up a tent, and pass out food. You had different people coming all day long with food, clothes, shoes, whatever. They barely do that anymore…There are still some places that still do things. You just gotta be there, and if you do not, you are just gonna miss out. You just got to have more of a plan. If you do not, then you are going to miss out.” |
| Housing | “I was supposed to go to transitional housing. That is how it usually works after you are discharged from rehab, but because of COVID, there are no beds. They are only allowing one patient to a room and they only allow a new person in every 14 days because of quarantine. So, I left rehab and went back to looking for different places to stay and I was on a waiting list for a bed. I wound up missing my move-in date, because they emailed me and I do not have a phone or a computer. I had someone from [a soup kitchen] call for me the next day and they said that they already gave away my bed.” |
| Financial assistance | “I cannot do nothing without my social…[I tried to get unemployment] and they were like, you have to send your social. I was like, I do not have it. They were like, oh we cannot, and they closed [my unemployment claim]. Yeah. I was just putting in the little times. I thought they would at least come through, but nope, it ain't work. I could not get food stamps. I tried to go to [a program] for the family, to help you get your own apartment. I could not do that.” |