| Literature DB >> 34798949 |
Jonathan S Hausmann1, Elissa R Weitzman2.
Abstract
The advent of social media has revolutionized and empowered communities of people living with rare diseases. Social media has enabled families of children with similar pediatric rheumatic diseases (PRDs) to meet regardless of geographic distance, allowing them to support each other and join together to advocate on behalf of their children. Researchers have also leveraged social media to learn about the health of patients and their communities. This article reviews the promises and perils of social media related to health, focusing on its potential use to support research and care of children with PRD.Entities:
Keywords: Digital technology; Patient support organizations; Pediatric rheumatology; Research; Self-help groups; Social media
Mesh:
Year: 2022 PMID: 34798949 PMCID: PMC8630809 DOI: 10.1016/j.rdc.2021.09.005
Source DB: PubMed Journal: Rheum Dis Clin North Am ISSN: 0889-857X Impact factor: 2.670