Literature DB >> 34798949

The Promises and Perils of Social Media for Pediatric Rheumatology.

Jonathan S Hausmann1, Elissa R Weitzman2.   

Abstract

The advent of social media has revolutionized and empowered communities of people living with rare diseases. Social media has enabled families of children with similar pediatric rheumatic diseases (PRDs) to meet regardless of geographic distance, allowing them to support each other and join together to advocate on behalf of their children. Researchers have also leveraged social media to learn about the health of patients and their communities. This article reviews the promises and perils of social media related to health, focusing on its potential use to support research and care of children with PRD.
Copyright © 2021 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Digital technology; Patient support organizations; Pediatric rheumatology; Research; Self-help groups; Social media

Mesh:

Year:  2022        PMID: 34798949      PMCID: PMC8630809          DOI: 10.1016/j.rdc.2021.09.005

Source DB:  PubMed          Journal:  Rheum Dis Clin North Am        ISSN: 0889-857X            Impact factor:   2.670


  36 in total

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Authors:  Nicholas A Christakis; James H Fowler
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Authors:  Nicole E Kogan; Leonardo Clemente; Parker Liautaud; Justin Kaashoek; Nicholas B Link; Andre T Nguyen; Fred S Lu; Peter Huybers; Bernd Resch; Clemens Havas; Andreas Petutschnig; Jessica Davis; Matteo Chinazzi; Backtosch Mustafa; William P Hanage; Alessandro Vespignani; Mauricio Santillana
Journal:  Sci Adv       Date:  2021-03-05       Impact factor: 14.136

8.  Health department use of social media to identify foodborne illness - Chicago, Illinois, 2013-2014.

Authors:  Jenine K Harris; Raed Mansour; Bechara Choucair; Joe Olson; Cory Nissen; Jay Bhatt
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2014-08-15       Impact factor: 17.586

9.  Improvement of medication adherence in adolescents and young adults with SLE using web-based education with and without a social media intervention, a pilot study.

Authors:  Lisabeth V Scalzi; Christopher S Hollenbeak; Emily Mascuilli; Nancy Olsen
Journal:  Pediatr Rheumatol Online J       Date:  2018-03-14       Impact factor: 3.054

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Journal:  Soc Sci Med       Date:  2019-09-18       Impact factor: 4.634

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