| Literature DB >> 34796401 |
Mille Guldager Christiansen1, Helle Pappot2,3, Charlotte Pedersen2, Mary Jarden4,3, Mansoor Raza Mirza2, Karin Piil2,5.
Abstract
PURPOSE: Due to the first COVID-19 outbreak and subsequent restrictions, standard practice for gynecological cancer quickly evolved to include additional digital consultations. Women with gynecological cancer have a high need for information and experience a high symptom burden. We aimed to explore the experiences and perspectives of the rapid implementation of digital consultations during COVID-19.Entities:
Keywords: COVID-19; Digital consultations; Gynecological cancer; Patient perspective; Telephone consultation; Video consultation
Mesh:
Year: 2021 PMID: 34796401 PMCID: PMC8601371 DOI: 10.1007/s00520-021-06651-6
Source DB: PubMed Journal: Support Care Cancer ISSN: 0941-4355 Impact factor: 3.603
Semi-structured interview guide
| Introduction | Presentation of the project and the purpose Framing the interview, refer to informed consent and anonymization |
| Technicalities | Did you join a VC or a TC? For VC: What was your experience in general and when using the MyChart application? Did you find MyChart guide useful and easy to understand? Did you experience any technical difficulties/challenges? Did you receive any support? From whom? How would you describe your technical skills? |
| The consultation | Where were you while the consultation was held? What was the purpose(s) of your consultation? Was a sufficient amount of time available for the consultation? How did you prepare for your consultation? What was your general experience from participating in a VC/TC? Was the VC/TC appropriate for you? Why? Why not? What would you highlight as being most important to you in relation to a TC/VC? Did it help you? Did you experience any disadvantages? How would you describe the quality of the dialogue with the clinician(s)? |
| Patient and relative | Did you get the opportunity to ask further questions? Describe how. Did you have any unresolved questions or concerns after the consultation? How did that affect you? Did you feel you were involved in your consultation? Describe how? How would you describe the atmosphere? Did your family participate in the consultation? Were they involved? How do you think they experienced the consultation? How did you feel after the consultation? Do you believe that TCs/VCs can replace face-to-face consultations in the future? Were you satisfied with the outcome of the consultation under the given COVID-19 circumstances? |
| COVID-19 situation | Have you been tested for COVID-19? How did the COVID-19 pandemic affect your everyday life as a patient? Did you need support to manage any symptoms (or other healthcare issues) during this period? Did you have any special needs or requirement during COVID-19? Did you take any special precautions to minimize contamination? Did you change your behavior in any way? How? Did you feel that the clinicians were able to address/meet your needs/requests? What kind of consultation would you prefer if things were back to normal everyday life? Please explain. |
| Concluding the interview | Do you believe that there are topics that would be inappropriate for you to discuss at a TC/VC? Would you recommend TC or VC to other patients? Why? Why not? If you would like to give us any advice to improve TC/VC, what would that be? Thank you for your time and participation in this study. |
VC video consultation, TC telephone consultation
Medical and demographic characteristics of patients
| Participants ( | Percent (%) | |
|---|---|---|
| Average age (range) | 53 (28–75) | |
| 20–29 | 1 | 3 |
| 30–39 | 3 | 9 |
| 40–49 | 10 | 32 |
| 50–59 | 8 | 25 |
| 60–69 | 8 | 25 |
| 70–79 | 2 | 6 |
| Primary site of cancer | ||
| Ovary | 16 | 50 |
| Cervix | 11 | 35 |
| Vulva | 4 | 12 |
| Vagina | 1 | 3 |
| Treatment status | ||
| Active oncological | 18 | 56 |
| Follow-up | 14 | 44 |
| Relationship status | ||
| In a relationship (living together) | 6 | 19 |
| Married | 14 | 43 |
| Single | 12 | 38 |
| Highest completed education* | ||
| Primary school | 1 | 3 |
| High school | 1 | 3 |
| Short education (<3 years) | 7 | 23 |
| Medium education | 13 | 42 |
| Higher education | 9 | 29 |
| Employment status | ||
| Employee | 8 | 25 |
| Self-employed | 1 | 3 |
| Unemployed | 2 | 6 |
| Sick leave | 10 | 32 |
| Other (partial sick leave) | 4 | 12 |
| Early pension | 2 | 6 |
| Retirement | 5 | 16 |
*Data missing (n = 1)