Literature DB >> 34676309

Community-Engaged Research to Address Health Disparities of Indigenous Women With Disabilities.

Heather J Williamson1, Julie S Armin2, Ellen Stakely1, Bonny Nasimi1, Darold H Joseph1, Jon Meyers3, Julie A Baldwin1.   

Abstract

INTRODUCTION: To address health disparities among underserved populations, occupational therapists can participate in community-engaged research and practice to improve access to preventive health services.
METHODS: This study used grounded theory and participant observation approaches to identify lessons learned from a community-engaged research project to improve cancer screening rates for Indigenous women with an intellectual and/or developmental disability (IDD). Audio recordings of meetings with a community advisory board (AB) were analyzed with an inductive coding approach, and results were member checked with AB members. The AB members (N = 8) were involved in statewide Indigenous health, cancer, and disability activities. Six of the eight AB members identified as Indigenous.
RESULTS: Key themes highlighted within the Indigenous research framework included reflection, relationship building, project planning, and project execution. Results of this phase of the research project highlight the importance of codesigning research projects with Indigenous communities.
CONCLUSION: The findings have limited transferability to other research contexts. However, this study highlights the need for future research on best practices for occupational therapists to participate in community-engaged research projects to address health disparities in underserved populations, such as Indigenous women with IDD.

Entities:  

Year:  2021        PMID: 34676309      PMCID: PMC8528383          DOI: 10.3928/24761222-20201202-02

Source DB:  PubMed          Journal:  Ann Int Occup Ther        ISSN: 2476-1222


  27 in total

1.  Cervical and breast cancer-screening knowledge of women with developmental disabilities.

Authors:  Susan L Parish; Jamie G Swaine; Karen Luken; Roderick A Rose; Sarah Dababnah
Journal:  Intellect Dev Disabil       Date:  2012-04

2.  A Scholarship of Practice Revisited: Creating Community-Engaged Occupational Therapy Practitioners, Educators, and Scholars.

Authors:  Joy Hammel; Susan Magasi; Mansha Parven Mirza; Heidi Fischer; Katharine Preissner; Elizabeth Peterson; Yolanda Suarez-Balcazar
Journal:  Occup Ther Health Care       Date:  2015-08-13

3.  You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities.

Authors:  Katherine E McDonald; Erin Stack
Journal:  Disabil Health J       Date:  2016-01-03       Impact factor: 2.554

4.  Occupational Therapy's Role in Cancer Survivorship as a Chronic Condition.

Authors:  Mary Frances Baxter; Robin Newman; Sheila M Longpré; Katie M Polo
Journal:  Am J Occup Ther       Date:  2017 May/Jun

5.  Journal article reporting standards for qualitative primary, qualitative meta-analytic, and mixed methods research in psychology: The APA Publications and Communications Board task force report.

Authors:  Heidi M Levitt; Michael Bamberg; John W Creswell; David M Frost; Ruthellen Josselson; Carola Suárez-Orozco
Journal:  Am Psychol       Date:  2018-01

6.  The incidence of cancer in people with intellectual disabilities.

Authors:  Sheena G Sullivan; Rafat Hussain; Timothy Threlfall; Alan H Bittles
Journal:  Cancer Causes Control       Date:  2004-12       Impact factor: 2.506

7.  'You need to let your voice be heard': research participants' views on research.

Authors:  K E McDonald; C A Kidney; M Patka
Journal:  J Intellect Disabil Res       Date:  2012-02-01

8.  Surveillance of the adult cancer survivor.

Authors:  Jason Wilbur
Journal:  Am Fam Physician       Date:  2015-01-01       Impact factor: 3.292

Review 9.  American Cancer Society/American Society of Clinical Oncology Breast Cancer Survivorship Care Guideline.

Authors:  Carolyn D Runowicz; Corinne R Leach; N Lynn Henry; Karen S Henry; Heather T Mackey; Rebecca L Cowens-Alvarado; Rachel S Cannady; Mandi L Pratt-Chapman; Stephen B Edge; Linda A Jacobs; Arti Hurria; Lawrence B Marks; Samuel J LaMonte; Ellen Warner; Gary H Lyman; Patricia A Ganz
Journal:  CA Cancer J Clin       Date:  2015-12-07       Impact factor: 508.702

10.  Grounded theory research: A design framework for novice researchers.

Authors:  Ylona Chun Tie; Melanie Birks; Karen Francis
Journal:  SAGE Open Med       Date:  2019-01-02
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  1 in total

1.  Adapting a Cancer Screening Education Program for Native American Women with Disabilities.

Authors:  Julie S Armin; Heather J Williamson; Andria Begay; Jennifer Etcitty; Agnes Attakai; Kim Russell; Julie A Baldwin
Journal:  Int J Environ Res Public Health       Date:  2022-07-29       Impact factor: 4.614

  1 in total

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