K Niedermann1, A K Rausch2, J Braun3, H Becker4, P Böhm5, R Bräm6, G Gilliam-Feld7, D Kiefer3, R Kurz8, M Schönfelder9, T Stamm10, U Kiltz3. 1. Department Gesundheit, Institut für Physiotherapie, Zürcher Hochschule für Angewandte Wissenschaften ZHAW, Katharina-Sulzer-Platz 9, 8401, Winterthur, Schweiz. karin.niedermann@zhaw.ch. 2. Departement Gesundheit, Institut für Physiotherapie, Zürcher Hochschule für Angewandte Wissenschaften, Winterthur, Schweiz. 3. Rheumazentrum Ruhrgebiet, Ruhr-Universität Bochum, Herne, Deutschland. 4. Schweizerische Polyarthritiker Vereinigung, Zürich, Schweiz. 5. Deutsche Vereinigung M. Bechterew, Schweinfurt, Deutschland. 6. Schweizerische Vereinigung M. Bechterew, Zürich, Schweiz. 7. Rheuma-Liga Nord-Rhein-Westfalen, Deutsche Rheumaliga, Essen, Deutschland. 8. Österreichische Vereinigung Morbus Bechterew, Wien, Österreich. 9. Österreichische Rheumaliga, Maria Alm, Österreich. 10. Institut für Outcomes Research, Medizinische Universität Wien, Wien, Österreich.
Abstract
BACKGROUND: Physical activity and exercise are beneficial for people with rheumatic diseases; however, recommendations for the management of rheumatoid arthritis (RA), spondyloarthritis (SpA) and hip- and knee osteoarthritis (HOA/KOA) are usually unspecific with respect to mode and dose of exercise. This is why the 2018 EULAR recommendations for physical activity in people with inflammatory arthritis and osteoarthritis were formulated. The recommendations consist of 4 overarching principles and 10 recommendations. These were also published as a lay version in the English language. AIM: Translation of the lay version into German and its linguistic validation in Austria, Germany and Switzerland. METHODS: A professional translation was reviewed by the authors, including people with, RA, SpA, HOA/KOA from the three German-speaking countries, which provided a prefinal lay version. Subsequently, eight interviews with people with RA, SpA, HOA/KOA were conducted in each country to evaluate understandability, wording, completeness and feasibility of the prefinal lay version. Finally, the authors, i.e. those with RA, SpA, and osteoarthritis, anonymously rated their agreement to the final lay version on a 0-10 scale. RESULTS: The professional translation was substantially revised by the authors and based on the interviews. Formulations were adapted to increase readability and understandability and specify statements. Comments that would have changed content or structure were not considered. Average agreement with the particular recommendations was between 10 (SD 0) and 7.6 (SD 1.67). DISCUSSION: For people with RA/SpA/HOA/KOA the EULAR physical activity recommendations should be available in their mother language. The final German lay version is valid and accepted across all three German-speaking countries. Thus, the physical activity recommendations can be provided to people with rheumatic diseases in an understandable and feasible way.
BACKGROUND: Physical activity and exercise are beneficial for people with rheumatic diseases; however, recommendations for the management of rheumatoid arthritis (RA), spondyloarthritis (SpA) and hip- and knee osteoarthritis (HOA/KOA) are usually unspecific with respect to mode and dose of exercise. This is why the 2018 EULAR recommendations for physical activity in people with inflammatory arthritis and osteoarthritis were formulated. The recommendations consist of 4 overarching principles and 10 recommendations. These were also published as a lay version in the English language. AIM: Translation of the lay version into German and its linguistic validation in Austria, Germany and Switzerland. METHODS: A professional translation was reviewed by the authors, including people with, RA, SpA, HOA/KOA from the three German-speaking countries, which provided a prefinal lay version. Subsequently, eight interviews with people with RA, SpA, HOA/KOA were conducted in each country to evaluate understandability, wording, completeness and feasibility of the prefinal lay version. Finally, the authors, i.e. those with RA, SpA, and osteoarthritis, anonymously rated their agreement to the final lay version on a 0-10 scale. RESULTS: The professional translation was substantially revised by the authors and based on the interviews. Formulations were adapted to increase readability and understandability and specify statements. Comments that would have changed content or structure were not considered. Average agreement with the particular recommendations was between 10 (SD 0) and 7.6 (SD 1.67). DISCUSSION: For people with RA/SpA/HOA/KOA the EULAR physical activity recommendations should be available in their mother language. The final German lay version is valid and accepted across all three German-speaking countries. Thus, the physical activity recommendations can be provided to people with rheumatic diseases in an understandable and feasible way.