Literature DB >> 34554295

The use of social media among the pediatric colorectal community.

Marina L Reppucci1, Luis De La Torre2, Alberto Peña2, Laura Judd-Glossy2,3,4, Kaci Pickett5, Jill Ketzer2, Andrea Bischoff2.   

Abstract

PURPOSE: Pediatric colorectal conditions require complex medical care and can require lifelong support. Caregivers often seek medical information on the internet. The aim of this study was to characterize the use of three social media platforms for information sharing about pediatric colorectal conditions.
METHODS: A systematic study of Instagram, Facebook, and Twitter was performed using standardized search terms. Accounts with activity within the last year were included. Quantitative data were collected. Accounts were qualitatively assessed and assigned a functional category. Group differences were tested via Kruskal-Wallis test and Fisher's exact tests for continuous and categorical variables, respectively.
RESULTS: A total of 96 Instagram accounts, 57 Twitter accounts, 49 Facebook pages, and 45 Facebook groups were identified. Accounts originated from 24 countries and the greatest number of accounts was created in 2013. The most common source of information on Instagram was from personal accounts (74.0%), on Facebook was from support groups (45.7%), and on Twitter was from health care providers (35.1%), (p < 0.001). The most common functional categories on Instagram were personal story (69.8%), on Twitter were scientific information/medical research (57.9%), and on Facebook were supportive/story sharing (47.8%), (p < 0.001).
CONCLUSIONS: Social media serves as a source for medical information and allows for supportive communities for pediatric colorectal patients and their families to exist.
© 2021. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.

Entities:  

Keywords:  Anorectal malformation; Cloaca; Hirschsprung’s disease; Pediatric colorectal; Social media

Mesh:

Year:  2021        PMID: 34554295     DOI: 10.1007/s00383-021-05022-w

Source DB:  PubMed          Journal:  Pediatr Surg Int        ISSN: 0179-0358            Impact factor:   1.827


  20 in total

Review 1.  Social media and your practice: navigating the surgeon-patient relationship.

Authors:  Alexander S McLawhorn; Ivan De Martino; Keith A Fehring; Peter K Sculco
Journal:  Curr Rev Musculoskelet Med       Date:  2016-12

2.  Internet and social media use among patients with colorectal diseases (ISMAEL): a nationwide survey.

Authors:  A Sturiale; F Pata; V De Simone; G Pellino; P Campennì; E Moggia; M Manigrasso; M Milone; G Rizzo; R Morganti; J Martellucci; G Gallo
Journal:  Colorectal Dis       Date:  2020-08-02       Impact factor: 3.788

3.  Development of a multidisciplinary colorectal and pelvic health program: Program implementation and clinical impact.

Authors:  Candace C Style; Danielle M Hsu; Mariatu A Verla; Angela G Mittal; Paul Austin; Abhishek Seth; Jennifer E Dietrich; Oluyemisi A Adeyemi-Fowode; Jennifer L Bercaw-Pratt; Eric H Chiou; Bruno P Chumpitazi; Amaka Akalonu; Veronica A Victorian; Felicia R Denner; Alexandra N Borden; Marc A Levitt; Jag R Grooms; Gia G Frazier; Kristy L Rialon; Timothy C Lee
Journal:  J Pediatr Surg       Date:  2020-05-06       Impact factor: 2.545

4.  Analysis of patients' and caregivers' psychosocial functioning in colorectal conditions: comparison of diagnosis, gender, and developmental functioning.

Authors:  Laura Judd-Glossy; Merlin Ariefdjohan; Jill Ketzer; Stefanie Curry; Julie Schletker; Tiffany Edmonds; Amy Krause; Hope Simmons; Alberto Pena; Luis De La Torre; Andrea Bischoff
Journal:  Pediatr Surg Int       Date:  2021-01-09       Impact factor: 1.827

5.  Social media utilization in the cochlear implant community.

Authors:  Rajeev C Saxena; Ashton E Lehmann; A Ed Hight; Keith Darrow; Aaron Remenschneider; Elliott D Kozin; Daniel J Lee
Journal:  J Am Acad Audiol       Date:  2015-02       Impact factor: 1.664

6.  Social media use by patients with glaucoma: what can we learn?

Authors:  Freia McGregor; John E A Somner; Rupert R Bourne; Carol Munn-Giddings; Peter Shah; Vinette Cross
Journal:  Ophthalmic Physiol Opt       Date:  2013-10-31       Impact factor: 3.117

Review 7.  Association of Hirschsprung's disease and anorectal malformation: a systematic review.

Authors:  Alejandro D Hofmann; Prem Puri
Journal:  Pediatr Surg Int       Date:  2013-09       Impact factor: 1.827

8.  Prevalence of Health Misinformation on Social Media: Systematic Review.

Authors:  Victor Suarez-Lledo; Javier Alvarez-Galvez
Journal:  J Med Internet Res       Date:  2021-01-20       Impact factor: 5.428

9.  The role of social media in clubfoot: information sharing and social support.

Authors:  Gabriel Hanna; Brian D Batko; James Potter; Joseph Ippolito; Folorunsho Edobor-Osula
Journal:  J Child Orthop       Date:  2021-02-01       Impact factor: 1.548

Review 10.  Bowel management for the treatment of pediatric fecal incontinence.

Authors:  Andrea Bischoff; Marc A Levitt; Alberto Peña
Journal:  Pediatr Surg Int       Date:  2009-10-15       Impact factor: 1.827

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  2 in total

1.  Social media communities for patients and families affected by congenital pediatric surgical conditions.

Authors:  Marina L Reppucci; Luis De La Torre; Kaci Pickett; Lea Wehrli; Margo M Nolan; Jill Ketzer; Andrea Bischoff
Journal:  Pediatr Surg Int       Date:  2022-05-19       Impact factor: 2.003

2.  Considering the value of online support groups for colorectal conditions: perspectives from caregivers and adult patients.

Authors:  Laura Judd-Glossy; Merlin Ariefdjohan; Jill Ketzer; Kristina Matkins; Julie Schletker; Amy Krause; Hope Simmons; Alberto Pena; Luis De La Torre; Andrea Bischoff
Journal:  Pediatr Surg Int       Date:  2021-09-25       Impact factor: 2.003

  2 in total

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