| Literature DB >> 34534371 |
Sarah Allen1, Suzanne Held2, Shauna Milne-Price3, Alma McCormick4, Du Feng5, Jillian Inouye6, Mark Schure2, Dottie Castille7, Rae B Howe4, Mikayla Pitts2, Shannen Keene8, Lorenda Belone9, Nina Wallerstein9.
Abstract
Báa nnilah is a chronic illness self-management program designed by and for the Apsáalooke (Crow) community. Arising from a collaboration between an Indigenous nonprofit organization and a university-based research team, Báa nnilah's development, implementation, and evaluation have been influenced by both Indigenous and Western research paradigms (WRPs). Báa nnilah was evaluated using a randomized wait-list control group design. In a WRP, contamination, or intervention information shared by the intervention group with the control group, is actively discouraged as it makes ascertaining causality difficult, if not impossible. This approach is not consonant with Apsáalooke cultural values that include the encouragement of sharing helpful information with others, supporting an Indigenous research paradigm's (IRP) goal of benefiting the community. The purpose of this paper is to address contamination and sharing as an area of tension between WRP and IRP. We describe how the concepts of contamination and sharing within Báa nnilah's implementation and evaluation are interpreted differently when viewed from these contrasting paradigms, and set forth a call for greater exploration of Indigenous research approaches for developing, implementing, and evaluating intervention programs in Indigenous communities. (Improving Chronic Illness Management with the Apsáalooke Nation: The Báa nnilah Project.: NCT03036189), ClinicalTrials. gov: NCT03036189).Entities:
Keywords: Contamination; Indigenous research methods; Randomized control trial; Sharing
Mesh:
Year: 2021 PMID: 34534371 PMCID: PMC8926935 DOI: 10.1002/ajcp.12552
Source DB: PubMed Journal: Am J Community Psychol ISSN: 0091-0562