Literature DB >> 34533383

The Ethical Implications of Using Social Media to Engage and Retain Justice-Involved Youth in Behavioral Health Research.

Christopher A Rodriguez1, Lakshmi Gopalakrishnan1, Margareth Del Cid1, Johanna B Folk1, Juliet Yonek1, Marina Tolou-Shams1.   

Abstract

Given its popularity among youth ages 13-17, social media is a promising avenue for engaging and retaining historically hard-to-reach youth in longitudinal research. Social media use in longitudinal research involving youth, however, has preceded development of best practices for ethical use. This article describes the ethical challenges and considerations of using social media to engage and retain youth within the context of a randomized controlled trial of a group-based adolescent substance use intervention. Best practices for addressing ethical challenges are also provided using the Belmont Principle as a guiding framework. As social media becomes more commonly used to engage and retain youth in clinical research studies, researchers must address emerging ethical concerns within project protocols.

Entities:  

Keywords:  behavioral social science research; benefits; burdens of research/beneficence and non-maleficence; justice/participant selection/inclusion/recruitment; research ethics; risks; social media

Mesh:

Year:  2021        PMID: 34533383      PMCID: PMC8800377          DOI: 10.1177/15562646211039701

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.978


  21 in total

1.  Minors' assent, consent, or dissent to medical research.

Authors:  Sanford Leikin
Journal:  IRB       Date:  1993 Mar-Apr

2.  Consent in cyberspace: Internet-based research involving young people.

Authors:  Merle Spriggs
Journal:  Monash Bioeth Rev       Date:  2009-12

3.  The protective effects of parental monitoring and internet restriction on adolescents' risk of online harassment.

Authors:  Atika Khurana; Amy Bleakley; Amy B Jordan; Daniel Romer
Journal:  J Youth Adolesc       Date:  2014-12-13

4.  What Works? An Empirical Perspective on How to Retain Youth in Longitudinal Human Immunodeficiency Virus (HIV) and Substance Risk Reduction Studies.

Authors:  Erika Montanaro; Sarah W Feldstein Ewing; Angela D Bryan
Journal:  Subst Abus       Date:  2014-10-13       Impact factor: 3.716

5.  Attrition in prevention research.

Authors:  W B Hansen; L M Collins; C K Malotte; C A Johnson; J E Fielding
Journal:  J Behav Med       Date:  1985-09

6.  Conducting research with racial/ethnic minorities: methodological lessons from the NIDA Clinical Trials Network.

Authors:  A Kathleen Burlew; Jerren C Weekes; La'Trice Montgomery; Daniel J Feaster; Michael S Robbins; Carmen L Rosa; Lesia M Ruglass; Kamilla L Venner; Li-Tzy Wu
Journal:  Am J Drug Alcohol Abuse       Date:  2011-09       Impact factor: 3.829

7.  Towards an Ethical Framework for Publishing Twitter Data in Social Research: Taking into Account Users' Views, Online Context and Algorithmic Estimation.

Authors:  Matthew L Williams; Pete Burnap; Luke Sloan
Journal:  Sociology       Date:  2017-05-26

Review 8.  Attitudes Toward the Ethics of Research Using Social Media: A Systematic Review.

Authors:  Su Golder; Shahd Ahmed; Gill Norman; Andrew Booth
Journal:  J Med Internet Res       Date:  2017-06-06       Impact factor: 5.428

9.  Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment.

Authors:  Jacqueline Lorene Bender; Alaina B Cyr; Luk Arbuckle; Lorraine E Ferris
Journal:  J Med Internet Res       Date:  2017-04-06       Impact factor: 5.428

Review 10.  Ethical issues in using the internet to engage participants in family and child research: A scoping review.

Authors:  Stacey Hokke; Naomi J Hackworth; Nina Quin; Shannon K Bennetts; Hnin Yee Win; Jan M Nicholson; Lawrie Zion; Jayne Lucke; Patrick Keyzer; Sharinne B Crawford
Journal:  PLoS One       Date:  2018-09-27       Impact factor: 3.240

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  1 in total

1.  Developing a Smartphone-Based Adjunct Intervention to Reduce Cannabis Use Among Juvenile Justice-Involved Adolescents: Protocol for a Multiphase Study.

Authors:  Sarah A Helseth; John Guigayoma; Dayna Price; Anthony Spirito; Melissa A Clark; Nancy P Barnett; Sara J Becker
Journal:  JMIR Res Protoc       Date:  2022-03-11
  1 in total

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