Literature DB >> 34519981

A Psychosocial Support Program for Young Adult Childhood Cancer Survivors in Austria: a Qualitative Evaluation Study.

Thomas Pletschko1, Kerstin Krottendorfer2, Juliana Schlifelner2, Agathe Schwarzinger2,3, Verena Fohn-Erhold2, Liesa Weiler-Wichtl2, Anita Kienesberger3, Ulrike Leiss2.   

Abstract

Many adolescents and young adult (AYAs) childhood cancer survivors face disease- or therapy-related late-effects, which limit their participation in various areas of daily life. AYAs are often left alone in our health care system, and many worry about their ability to cope with long-term sequelae, and some are even lost to follow-up. Therefore, in the present study, a targeted aftercare program was developed and evaluated with the goal of facilitating three important "life skills": (1) self-perception, (2) social interaction and conflict management, and (3) self-conscious communication of support needs. A total of n = 13 participants (19.2-30.2 years, mean age 22.8 years) completed a 3-day aftercare seminar, at the end of which each participant wrote a reflection letter ("letter to my future self"), elaborating on observed effects of the seminar, applicability of the given information in daily life, and the direct impact of the seminar on their individual circumstances. The reflection letters were analyzed using qualitative content analysis. All target life skills were mentioned in the reflection letters. The participants reported individual benefits from the program especially with respect to self-perception and self-confidence, giving and taking feedback, and acceptance of personal strengths and weaknesses. Moreover, the feeling of "not being alone" was associated with the survivors' experience of emotional and social support. This evaluation highlights the potential of a one weekend aftercare seminar to address important life skills that are known to positively influence health behavior in AYAs. The detailed description of the seminar can serve as a basis for making this kind of aftercare accessible for other people in similar circumstances.
© 2021. The Author(s).

Entities:  

Keywords:  Aftercare; Childhood cancer; Psychosocial support; Young adult survivors

Year:  2021        PMID: 34519981     DOI: 10.1007/s13187-021-02083-2

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  8 in total

1.  Reports of life skills training for students with intellectual disabilities in and out of school.

Authors:  E C Bouck
Journal:  J Intellect Disabil Res       Date:  2010-12

2.  Medical assessment of adverse health outcomes in long-term survivors of childhood cancer.

Authors:  Maud M Geenen; Mathilde C Cardous-Ubbink; Leontien C M Kremer; Cor van den Bos; Helena J H van der Pal; Richard C Heinen; Monique W M Jaspers; Caro C E Koning; Foppe Oldenburger; Nelia E Langeveld; Augustinus A M Hart; Piet J M Bakker; Huib N Caron; Flora E van Leeuwen
Journal:  JAMA       Date:  2007-06-27       Impact factor: 56.272

3.  Social support and symptom distress in adolescents/young adults with cancer.

Authors:  Amy L Corey; Joan E Haase; Faouzi Azzouz; Patrick O Monahan
Journal:  J Pediatr Oncol Nurs       Date:  2008-08-04       Impact factor: 1.636

4.  Is early hematopoietic stem-cell transplantation necessary in mantle-cell lymphoma?

Authors:  Mitchell R Smith
Journal:  J Clin Oncol       Date:  2013-12-16       Impact factor: 44.544

5.  Psychosocial and Neurocognitive Outcomes in Adult Survivors of Adolescent and Early Young Adult Cancer: A Report From the Childhood Cancer Survivor Study.

Authors:  Pinki K Prasad; Kristina K Hardy; Nan Zhang; Kim Edelstein; Deokumar Srivastava; Lonnie Zeltzer; Marilyn Stovall; Nita L Seibel; Wendy Leisenring; Gregory T Armstrong; Leslie L Robison; Kevin Krull
Journal:  J Clin Oncol       Date:  2015-07-06       Impact factor: 44.544

6.  Scarring, disfigurement, and quality of life in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor study.

Authors:  Karen E Kinahan; Lisa K Sharp; Kristy Seidel; Wendy Leisenring; Aarati Didwania; Mario E Lacouture; Marilyn Stovall; Anand Haryani; Leslie L Robison; Kevin R Krull
Journal:  J Clin Oncol       Date:  2012-05-21       Impact factor: 44.544

7.  Advocacy skills training for young adult cancer survivors: the Young Adult Survivors Conference at Camp Māk-a-Dream.

Authors:  B J Zebrack; K C Oeffinger; P Hou; S Kaplan
Journal:  Support Care Cancer       Date:  2006-02-16       Impact factor: 3.603

8.  Psychological outcomes in long-term survivors of childhood brain cancer: a report from the childhood cancer survivor study.

Authors:  Brad J Zebrack; James G Gurney; Kevin Oeffinger; John Whitton; Roger J Packer; Ann Mertens; Norman Turk; Robert Castleberry; ZoAnn Dreyer; Leslie L Robison; Lonnie K Zeltzer
Journal:  J Clin Oncol       Date:  2004-03-15       Impact factor: 50.717

  8 in total

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