Literature DB >> 34457155

Challenges to Global Standardization of Outcome Measures.

Zoe Liao1, Yuri Quintana2,3.   

Abstract

Global standardization of outcome measures for disease states can help researchers and healthcare providers compare healthcare institutions' and populations' health outcomes. Despite the creation of standardized outcome sets, clinical institutions' adoption of these sets is not common. A literature review shows that among the challenges to standardizing outcome measures include the difficulties of achieving consensus in the working groups creating these outcome sets, the tradeoffs made when selecting outcome measurement tools, and the high costs of implementing a new or different set of outcome measures. The duplication of effort to create these standard sets can also limit standardization, which could be minimized through increased transparency of how these standard sets are developed. We propose some approaches to improve how to create and implement standard sets to broaden their usability across institutions. ©2021 AMIA - All rights reserved.

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Year:  2021        PMID: 34457155      PMCID: PMC8378612     

Source DB:  PubMed          Journal:  AMIA Jt Summits Transl Sci Proc


  12 in total

1.  Patient reported outcome measures in practice.

Authors:  Eugene C Nelson; Elena Eftimovska; Cristin Lind; Andreas Hager; John H Wasson; Staffan Lindblad
Journal:  BMJ       Date:  2015-02-10

2.  What matters to me: living with Crohn's disease.

Authors:  Charlotte Roberts
Journal:  BMJ       Date:  2016-06-07

Review 3.  Unlocking the potential of value-based health care by defining global standard sets of outcome measures that matter to patients with cardiovascular diseases.

Authors:  William H Seligman; Matthew Salt; Alethse De la Torre Rosas; Zofia Das-Gupta
Journal:  Eur Heart J Qual Care Clin Outcomes       Date:  2019-04-01

4.  Partnership for mental health development in Sub-Saharan Africa (PaM-D): a collaborative initiative for research and capacity building.

Authors:  O Gureje; S Seedat; L Kola; J Appiah-Poku; C Othieno; B Harris; V Makanjuola; L N Price; O O Ayinde; O Esan
Journal:  Epidemiol Psychiatr Sci       Date:  2018-11-27       Impact factor: 6.892

5.  Patient-reported outcome measures among breast cancer survivors: A cross-sectional comparison between Malaysia and high-income countries.

Authors:  Nadia Rajaram; Zhi Ying Lim; Chin Vern Song; Ranjit Kaur; Nur Aishah Mohd Taib; Mazanah Muhamad; Wee Loon Ong; Maartje Schouwenburg; Mee Hoong See; Soo-Hwang Teo; Christobel Saunders; Cheng Har Yip
Journal:  Psychooncology       Date:  2018-10-30       Impact factor: 3.894

Review 6.  The meagre outcomes of HoNOS.

Authors:  Keith G Bender
Journal:  Australas Psychiatry       Date:  2019-09-30       Impact factor: 1.369

7.  Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM).

Authors:  Robert L McNamara; Erica S Spatz; Thomas A Kelley; Caleb J Stowell; John Beltrame; Paul Heidenreich; Ricard Tresserras; Tomas Jernberg; Terrance Chua; Louise Morgan; Bishnu Panigrahi; Alba Rosas Ruiz; John S Rumsfeld; Lawrence Sadwin; Mark Schoeberl; David Shahian; Clive Weston; Robert Yeh; Jack Lewin
Journal:  J Am Heart Assoc       Date:  2015-05-19       Impact factor: 5.501

Review 8.  Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations.

Authors:  Lucy Webster; Derek Groskreutz; Anna Grinbergs-Saull; Rob Howard; John T O'Brien; Gail Mountain; Sube Banerjee; Bob Woods; Robert Perneczky; Louise Lafortune; Charlotte Roberts; Jenny McCleery; James Pickett; Frances Bunn; David Challis; Georgina Charlesworth; Katie Featherstone; Chris Fox; Claire Goodman; Roy Jones; Sarah Lamb; Esme Moniz-Cook; Justine Schneider; Sasha Shepperd; Claire Surr; Jo Thompson-Coon; Clive Ballard; Carol Brayne; Alistair Burns; Linda Clare; Peter Garrard; Patrick Kehoe; Peter Passmore; Clive Holmes; Ian Maidment; Louise Robinson; Gill Livingston
Journal:  PLoS One       Date:  2017-06-29       Impact factor: 3.240

Review 9.  A scoping review of core outcome sets and their 'mapping' onto real-world data using prostate cancer as a case study.

Authors:  Michela Meregaglia; Oriana Ciani; Helen Banks; Maximilian Salcher-Konrad; Caroline Carney; Sahan Jayawardana; Paula Williamson; Giovanni Fattore
Journal:  BMC Med Res Methodol       Date:  2020-02-27       Impact factor: 4.615

10.  The feasibility of implementing the ICHOM Standard Set for Hip and Knee Osteoarthritis: a mixed-methods evaluation in public and private hospital settings.

Authors:  Ilana N Ackerman; Bernarda Cavka; Jacob Lippa; Andrew Bucknill
Journal:  J Patient Rep Outcomes       Date:  2018-08-01
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