Literature DB >> 34427316

Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24.

Servando E Marron1, Manuel Gomez-Barrera, Lucía Tomas Aragones, Ana Goni-Navarro, Eva Vilarrasa-Rull, Rosa María Diaz-Diaz, Francisco Javier Garcia-Latasa de Aranibar, Ricardo Campos-Rodenas, Victoria Fuentelsaz Del Barrio, Yolanda Gilaberte-Calzada, Tamara Gracia-Cazaña, Anna María Morales-Callaghan, Sandra Ros-Abarca, María Blanca Madrid-Alvarez, Lluís Puig.   

Abstract

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv-es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi-centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceiv-ed by patients.

Entities:  

Keywords:  patient-reported outcome measure; psychometrics; quality of life; validation; hidradenitis suppurativa

Mesh:

Year:  2021        PMID: 34427316      PMCID: PMC9413661          DOI: 10.2340/00015555-3905

Source DB:  PubMed          Journal:  Acta Derm Venereol        ISSN: 0001-5555            Impact factor:   3.875


  25 in total

Review 1.  Update on Hidradenitis Suppurative (Part II): Treatment.

Authors:  A Martorell; F J García; D Jiménez-Gallo; J C Pascual; J Pereyra-Rodríguez; L Salgado; E Villarrasa
Journal:  Actas Dermosifiliogr       Date:  2015-08-12

2.  Questionnaire-based diagnosis of hidradenitis suppurativa: specificity, sensitivity and positive predictive value of specific diagnostic questions.

Authors:  S Esmann; D N Dufour; G B E Jemec
Journal:  Br J Dermatol       Date:  2010-01-17       Impact factor: 9.302

3.  Increased Suicide Risk in Patients with Hidradenitis Suppurativa.

Authors:  Linnea Thorlacius; Arnon D Cohen; Gunnar H Gislason; Gregor B E Jemec; Alexander Egeberg
Journal:  J Invest Dermatol       Date:  2017-09-20       Impact factor: 8.551

Review 4.  Development and Preliminary Validation of the HSQoL-24 Tool to Assess Quality of Life in Patients With Hidradenitis Suppurativa.

Authors:  S E Marrón; M Gómez-Barrera; L Tomás-Aragonés; R M Díaz Díaz; E Vilarrasa Rull; M B Madrid Álvarez; L Puig
Journal:  Actas Dermosifiliogr (Engl Ed)       Date:  2019-04-23

Review 5.  Hidradenitis suppurativa: Epidemiology, clinical presentation, and pathogenesis.

Authors:  Samantha R Goldburg; Bruce E Strober; Michael J Payette
Journal:  J Am Acad Dermatol       Date:  2019-10-09       Impact factor: 11.527

6.  Morbidity in patients with hidradenitis suppurativa.

Authors:  J M von der Werth; G B Jemec
Journal:  Br J Dermatol       Date:  2001-04       Impact factor: 9.302

7.  Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation.

Authors:  Diane Wild; Alyson Grove; Mona Martin; Sonya Eremenco; Sandra McElroy; Aneesa Verjee-Lorenz; Pennifer Erikson
Journal:  Value Health       Date:  2005 Mar-Apr       Impact factor: 5.725

8.  To what extent do disease severity and illness perceptions explain depression, anxiety and quality of life in hidradenitis suppurativa?

Authors:  A Pavon Blanco; M A Turner; G Petrof; J Weinman
Journal:  Br J Dermatol       Date:  2018-10-16       Impact factor: 9.302

Review 9.  An Update on Hidradenitis Suppurativa (Part I): Epidemiology, Clinical Aspects, and Definition of Disease Severity.

Authors:  A Martorell; F J García-Martínez; D Jiménez-Gallo; J C Pascual; J Pereyra-Rodriguez; L Salgado; E Vilarrasa
Journal:  Actas Dermosifiliogr       Date:  2015-08-06

10.  Validation of a new tool to assess health-related quality of life in psoriasis: the PSO-LIFE questionnaire.

Authors:  Esteban Dauden; Enrique Herrera; Lluis Puig; José Luis Sánchez-Carazo; Jaime Toribio; Ma Teresa Caloto; Gonzalo Nocea; Montse Roset; Nuria Lara
Journal:  Health Qual Life Outcomes       Date:  2012-05-24       Impact factor: 3.186

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  1 in total

1.  Self-Reported Hidradenitis Suppurativa Severity: Is It Useful for Clinical Practice?

Authors:  Piotr K Krajewski; Servando E Marrón; Lucía Tomas Aragones; Yolanda Gilaberte-Calzada; Jacek C Szepietowski
Journal:  Dermatol Ther (Heidelb)       Date:  2022-03-10
  1 in total

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