Literature DB >> 34421170

Personalization of Patient-Provider Communication Across the Lifespan.

Jessica Gormley1, Susan Koch Fager2.   

Abstract

People with disabilities are more likely to be hospitalized and use healthcare services relative to people without disabilities. They also report experiencing negative experiences interacting with health care providers during these encounters placing them at risk for preventable adverse medical events, poor quality of life, and dependence on others. Fortunately, providers and people with communication disabilities can take steps to improve these interactions by personalizing and implementing communication supports to empower people with communication disabilities to actively participate in these interactions and improve outcomes. The purpose of this article is to describe strategies that health care providers can use to develop and implement personalized communication supports for children and adults with communication disorders during health care interactions. Additional strategies are provided to guide people with disabilities as well as their community/school providers and families to prepare for health care interactions. Case examples are provided to illustrate use of these strategies in acute care, inpatient rehabilitation, and outpatient settings. The use of emerging training tools (e.g., video visual scene displays) and AAC partner training formats (e.g., just-in-time training) are also presented as future directions to expedite learning and implementation of communication supports in fast-paced and time-limited health care interactions.

Entities:  

Year:  2021        PMID: 34421170      PMCID: PMC8375497     

Source DB:  PubMed          Journal:  Top Lang Disord        ISSN: 0271-8294


  34 in total

1.  Effect of communication disability on satisfaction with health care: a survey of medicare beneficiaries.

Authors:  Jeanne M Hoffman; Kathryn M Yorkston; Anne Shumway-Cook; Marcia A Ciol; Brian J Dudgeon; Leighton Chan
Journal:  Am J Speech Lang Pathol       Date:  2005-08       Impact factor: 2.408

2.  Patient-Provider Communication for People with Severe Dysarthria: Referral Policies that Lead to Systems Change.

Authors:  David R Beukelman; Amy Nordness
Journal:  Semin Speech Lang       Date:  2017-06-15       Impact factor: 1.761

Review 3.  New and emerging AAC technology supports for children with complex communication needs and their communication partners: State of the science and future research directions.

Authors:  Janice Light; David McNaughton; Jessica Caron
Journal:  Augment Altern Commun       Date:  2019-01-16       Impact factor: 2.214

4.  Increasing prevalence of medically complex children in US hospitals.

Authors:  Katherine H Burns; Patrick H Casey; Robert E Lyle; T Mac Bird; Jill J Fussell; James M Robbins
Journal:  Pediatrics       Date:  2010-09-20       Impact factor: 7.124

5.  Providing Supportive Hospital Environments to Promote the Language Development of Infants and Children Born Prematurely: Insights From Neuroscience.

Authors:  Jessica E Gormley; Diane L Williams
Journal:  J Pediatr Health Care       Date:  2019-03-11       Impact factor: 1.812

6.  Effect of a multi-level intervention on nurse-patient communication in the intensive care unit: results of the SPEACS trial.

Authors:  Mary Beth Happ; Kathryn L Garrett; Judith A Tate; Dana DiVirgilio; Martin P Houze; Jill R Demirci; Elisabeth George; Susan M Sereika
Journal:  Heart Lung       Date:  2014-02-01       Impact factor: 2.210

7.  Effect of an application with video visual scene displays on communication during play: pilot study of a child with autism spectrum disorder and a peer.

Authors:  Emily Laubscher; Janice Light; David McNaughton
Journal:  Augment Altern Commun       Date:  2019-12-13       Impact factor: 2.214

8.  AAC Technologies with Visual Scene Displays and "Just in Time" Programming and Symbolic Communication Turns Expressed by Students with Severe Disability.

Authors:  Kathryn D R Drager; Janice Light; Jessica Currall; Nimisha Muttiah; Vanessa Smith; Danielle Kreis; Alyssa Nilam-Hall; Daniel Parratt; Kaitlin Schuessler; Kaitlin Shermetta; Jill Wiscount
Journal:  J Intellect Dev Disabil       Date:  2017-06-19

9.  Perceived importance of AAC messages to support communication in rehabilitation settings.

Authors:  Susan Koch Fager; Judith M Burnfield; Chase M Pfeifer; Tabatha Sorenson
Journal:  Disabil Rehabil Assist Technol       Date:  2020-03-06

Review 10.  A metasynthesis of patient-provider communication in hospital for patients with severe communication disabilities: informing new translational research.

Authors:  Bronwyn Hemsley; Susan Balandin
Journal:  Augment Altern Commun       Date:  2014-09-17       Impact factor: 2.214

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