| Literature DB >> 34394851 |
Smita Awasthi1, Sridhar Aravamudhan1, Anupama Jagdish1, Bhavana Joshi1, Papiya Mukherjee1, Rajeshwari Kalkivaya1, Razia Shahzad Ali1, Sonika Nigam Srivastava1, Sreemon Edasserykkudy1.
Abstract
Due to the coronavirus (COVID-19) pandemic, around the middle of March 2020, in-clinic intervention services based in applied behavior analysis provided to children had to be stopped abruptly in India. This qualitative and quantitative case study details how Behavior Momentum India (BMI), an organisation providing ABA-based interventions, transitioned services from in clinic to telehealth while continuing to target each student's skill acquisition goals in language and communication domains. A cohort of 92 students diagnosed with autism or other learning disabilities participated in this study; 51 therapists, 9 behavior supervisors, and a doctoral-level Board Certified Behavior Analyst collaborated with parents; 78% of the students and 82% of the therapists used smartphones; and only a few used iPads and laptops. Therapists conducted direct sessions and parent-mediated sessions with 82 students. With 10 students, behavior supervisors trained parents to implement interventions with their children. The critical transition decisions, logistics, and ethical challenges were identified using qualitative methods. Despite significantly reduced session durations, all students continued to acquire targeted skills, and 52% of the students acquired more skills in telehealth compared to in clinic. A parent satisfaction survey returned high ratings onour organization's initiative, and 72% of the parents reported that their familiarity and confidence with the science of applied behavior analysis had increased. © Association for Behavior Analysis International 2021.Entities:
Keywords: ABA; Autism; Behavioral skills training; COVID-19; Parent training; Telehealth
Year: 2021 PMID: 34394851 PMCID: PMC8356690 DOI: 10.1007/s40617-021-00600-9
Source DB: PubMed Journal: Behav Anal Pract ISSN: 1998-1929
Primary Session Facilitators From Families
| Primary collaborator or facilitator | No. of students | % |
|---|---|---|
| Mother | 67 | 73 |
| Father | 8 | 9 |
| Both | 12 | 13 |
| Siblings, grandparent, or nanny | 5 | 5 |
| Total | 92 | 100 |
List of Implementation Protocols 10 Parents Were Trained In
| Parent no. | Implementation protocols trained |
|---|---|
| 1 | Following one-step instructions; identifying body parts; responding to name; LR and tacting objects in the environment; LR and tacting functions, features, and class; getting items from a distance; giving items to another person; discriminating “mine vs. yours” |
| 2 | Vocal manding, waiting for preferred stimuli, giving and taking preferred stimuli on instruction, responding to “come here,” teaching eye contact when name is called, manding during adult instructions, matching identical and nonidentical picture stimuli, LR nouns and colors, LR one-step instructions, LR body parts, LR verb in context, LR objects in the environment, imitating gross motor movements, pasting paper (craft activity), eating with a spoon, wearing trousers, selected independent play activities |
| 3 | Waiting for preferred items, LR one-step instructions and body parts, tacting objects |
| 4 | Manding; LR body parts, one-step instructions, and environmental objects |
| 5 | Vocal manding; LR one-step instructions, body parts, and environmental objects |
| 6 | Manding, bathing, sitting on instruction, complying with simple instructions |
| 7 | Vocal manding, waiting for preferred stimuli, giving and taking preferred items, responding to “come here,” imitating, LR environmental objects |
| 8 | Manding; LR body parts, one-step instructions, and environmental objects |
| 9 | Manding; sorting; LR object identification; tacting by function, features, and class; discriminating “mine vs. yours” |
| 10 | Manding, tracking moving stimuli and pointing, sorting, LR, tacting by class, tacting items belonging to a class |
Note. LR = listener responding.
Examples of Antecedents and Responses in Telehealth Sessions for Different Types of Trials
| Delivery mode | Type of trial | Antecedents, including prompts | Student response |
|---|---|---|---|
| TSD | Tact objects | The therapist held a spoon in front of the camera and provided echoic prompts as required. | “Spoon” or “This is a spoon.” |
| Tact features | The therapist held a cup in front of the camera and provided echoic prompts as required. | “This is a cup. It has a rim, a handle, and a base.” | |
| Intraverbal | The therapist asked, “What do you call a large water body surrounded by land?” and used an echoic prompt, if required. | “Lake.” | |
| Transcription | The therapist said a word. | The student wrote the word and held it up in front of the camera. | |
| Mand for information using “where?” | The therapist said, “Keep the book there,” and used a text prompt by holding up the text in front of the camera or used an echoic prompt. | “Where should I keep the book?” | |
| Mand for information using “What?” | The therapist said, “Mom is going to give you something special today,” and used a text or echoic prompt. | “What is mom going to give me?” | |
| Mand for information using “Which?” | The student had several colored pens on their table. The therapist said, “Pick up a pen,” and used text or echoic prompts. | “Which pen should I pick up?” | |
| Part listener responding, part tact | The therapist presented stimuli in an array on a PowerPoint slide on their PC or by arranging stimuli in front of their phone camera. They issued an instruction such as “Which one gives light?” and used text or echoic prompts. | “Candle.” | |
| TSPM | Mand for tangibles or edibles | The parent brought an edible or tangible item in view. After ascertaining interest, the parent provided a model or physical prompt for the sign or said the name of the item depending on a predetermined protocol. | The student signed or said the name of the item. |
| Listener responding with arrays | As in TSD, previously, without echoic or text prompts; the therapist asked which one is a “sea animal.” The parent provided a predetermined gestural prompt if required. | The student touched the image of a ship on their screen. If the response was correct, the parent gave a thumbs-up. If incorrect, the parent said the response selected. | |
| Tacts, intraverbals, and transcription | As in TSD, previously. | ||
| Reading | The student was given preprinted worksheets; the therapist had a copy. | The student read words or passages. | |
| Math | Parent gave a preprinted worksheet with 100 single-digit addition exemplars. The therapist had a copy. | The student said or wrote their response and held it up in front of their camera. |
Note. TSD = therapist-student direct; TSPM = therapist-student parent mediated.
Results of Parent Satisfaction Survey From 32 Parents
| No. | Question | Results | |||||
|---|---|---|---|---|---|---|---|
| Scale | |||||||
| 1 | Rate Behavior Momentum India’s initiative in providing telehealth services. | No. of respondents | 16 | 11 | 5 | 0 | 0 |
| % | 50 | 34 | 16 | 0 | 0 | ||
| 2 | Rate the therapist’s enthusiasm and efforts. | Scale | |||||
| No. of respondents | 18 | 14 | 0 | 0 | 0 | ||
| % | 56 | 44 | 0 | 0 | 0 | ||
| 3 | Rate the clinical director’s recommendations for your child. | Scale used | |||||
| No. of respondents | 17 | 9 | 6 | 0 | 0 | ||
| % | 53 | 28 | 19 | 0 | 0 | ||
| 4 | In this difficult time, my child has acquired . . . | Scale | No response | ||||
| No. of respondents | 10 | 21 | 0 | 1 | |||
| % | 31 | 66 | 0 | 3 | |||
| 5 | Has telehealth made a difference in your child’s productivity at home? | Scale | |||||
| No. of respondents | 16 | 12 | 4 | 0 | |||
| % | 50 | 37 | 1 | 0 | |||
| 6 | Since lockdown, my awareness, familiarity, and confidence with applied behavior analysis has . . . | Scale | |||||
| No. of respondents | 23 | 8 | 1 | ||||
| % | 72 | 25 | 3 | ||||
| 7 | Videos and information shared with Behavior Momentum India is safe and confidential. | Scale | |||||
| No. of respondents | 32 | 0 | |||||
| % | 100 | 0 | |||||
Fig. 1Equipment Used at Students’ End and Therapists’ End for Therapist-Student Direct and Therapist-Student Parent-Mediated Sessions
Fig. 2Equipment Used at Parents’ End and Behavior Supervisors’ End for Parent Behavioral Skills Training Sessions
Fig. 3Number of Students From the Cohort Undergoing Intervention
Fig. 4Therapist-Student Parent-Mediated (TSPM) Students Who Left the Program and the Reasons
Fig. 5Session Durations for Therapist-Student Direct and Therapist-Student Parent-Mediated Students in Minutes and as a Percentage of In-Clinic Hours
Fig. 6Parent Behavioral Skills Training Session Durations in Minutes per Week
Fig. 7Instructions per Hour for Therapist-Student Direct and Therapist-Student Parent-Mediated Students
Fig. 8Mean Mastered Skills per Student for Therapist-Student Direct and Therapist-Student Parent-Mediated Students
Fig. 9Scatterplot Depicting the Number of Skills Acquired In Clinic and in Last 2 Months for 68 Therapist-Student Direct (TSD) and Therapist-Student Parent-Mediated (TSPM) Students. Note. Skills acquired by 68 TSD and TSPM students in 2 months in clinic and 2 months at the end of the study. Each student’s data are represented by a dot. Multiple students’ data that are identical were plotted as a single dot.
Number of Students for Whom the Number of Skills Acquired Increased or Decreased Compared to In Clinic
| Mode | Months 1 & 2 | Months 3 & 4 | Months 5 & 6 | |||
|---|---|---|---|---|---|---|
| No. | % | No. | % | No. | % | |
| TSD and TSPM | ||||||
| Total students | 82 | 69 | 68 | |||
| Increased | 38 | 46 | 33 | 48 | 35 | 52 |
| Remained equal | 1 | 1 | 0 | 0 | 2 | 3 |
| Decreased | 43 | 52 | 36 | 52 | 31 | 45 |
| BST | ||||||
| Total students | 10 | 5 | 5 | |||
| Increased | 6 | 60 | 5 | 100 | 5 | 100 |
| Remained equal | 0 | 0 | 0 | 0 | 0 | 0 |
| Decreased | 4 | 40 | 0 | 0 | 0 | 0 |
Note. TSD = therapist-student direct; TSPM = therapist-student parent mediated; BST = behavioral skills training.
Fig. 10Instruction Hours per Skill for Therapist-Student Direct (TSD) and Therapist-Student Parent-Mediated (TSPM) Students Who Acquired Fewer Skills. Note. This figure presents mean instruction hours, per student, per skill acquired by TSD and TSPM students who acquired fewer skills in the last 2 months of the intervention compared to 2 months in clinic.
Fig. 11Instruction Hours per Skill for Therapist-Student Direct (TSD) and Therapist-Student Parent-Mediated (TSPM) Students Who Acquired More Skills in the Last 2 Months. Note. This figure presents instruction hours per skill acquired by TSD and TSPM students who acquired more skills in the last 2 months of the intervention compared to 2 months in clinic.
Fig. 12Mean Number of Protocols Mastered per Parent and Skills Acquired by Their Children
Decision Areas and Rationale
| Decision areas | Decision | Considerations | Decisions taken |
|---|---|---|---|
| Initial decisions on enrollment and service delivery | Participant profile for a successful transition | Right to effective treatment Does the student have any challenging behaviors? What was the student’s attendance span in in-clinic sessions? How does the student score on parameters of cooperation? | All students whose parents applied, except students with high-rate challenging behaviors, would be accepted. For students with a low attendance span, tasks would be started with a reduced duration and the duration of attendance to tasks would be shaped. |
| Which therapists can be involved in the transition | Is the therapist recently recruited and under training? Can the therapist commit to a certain number of hours daily to work from home without distractions? | Only therapists who have worked with BMI for at least 6 months and have trained in most of the protocols could conduct telehealth sessions. Therapists who had constraints at home with too many family responsibilities would be exempt. Only therapists who could commit to being available daily for assigned hours would be selected. | |
| Ethical considerations | Technology for communications with parents | Almost all messaging platforms carry a risk of hacking and risks to privacy. Are there any adverse government advisories in India against specific platforms? With what platforms did parents feel at ease? | WhatsApp messenger would be used, as most parents and therapists were comfortable with its use, and there were no adverse advisories from the government. |
| Informed consent | Are the existing informed consent agreements adequate? | Additional informed consent agreements with parents were to be secured by email: the first for telehealth use for instructional sessions and the second for recording meetings for internal training purposes. | |
| Technology for video meetings | There were no regulatory requirements in India like HIPAA and FERPA in the United States. Is there any advisory against the use of any specific video meeting platforms? With what platforms were parents most comfortable? | There was an advisory note against the use of the Zoom app. Skype “meet now” would be used and technologies and the decisions would be reviewed after a year. | |
| Recording sessions | Is there a higher risk of inadvertent video sharing outside the organization? | Therapists would be trained to record sessions only on email instruction from a behavior supervisor or clinical director.BMI further would further ensure that they uploaded the recordings to a secure site and deleted them from their equipment by 5:30 p.m. the same evening. Existing agreements with therapists would address adherence to client confidentiality requirements. | |
| Operational decisions | Mode of instruction delivery | Can the students attend a telehealth session independently and self-administer reinforcers? Will parents be required for prompting and reinforcer delivery? Can one parent commit to being available throughout every telehealth session? | TSD: A therapist would run telehealth sessions directly with verbally interactive students who had a record of task-attendance span of 20 min or more. TSPM: A therapist would conduct instructional sessions, seeking parent assistance for prompts. PBST: Behavior supervisors would train parents in implementing ABA-based procedures using telehealth and BST. |
| Assigning therapists to students | Was the therapist implementing programs with the student in clinic? Does their availability match with the parents’ requirements? | As far as possible, the same therapist–student dyads as in the in-clinic sessions would be continued. If such therapist was not available, another therapist who has implemented similar programs as required by the student’s IEP would be assigned. | |
| Initial targets | The priority is to ensure that the student sits and attends to the camera for the specified initial duration. | All the students would be started with maintaining mastered skills to ensure cooperation. Targets would be added gradually to their IBI plan. Where required, parents would assist in prompting the student to attend to the camera. | |
| Skills to be taught | The limitations imposed by mode used | TSD students: Therapists would derive targets from the students’ IBI plan, leaving out manding for tangibles. There was no such restriction for TSPM students. BST student targets would be based on their IBI plan but limited based on the protocols that the behavior supervisor trained their parent in. | |
| Data collection | Cloud-based data collection and collation | Therapists would be trained to use Google Sheets on their phones. In some instances, they would send photographs of the data noted on paper, and the administrator would enter the data into Google Sheets. |
Note. HIPAA = Health Insurance Portability and Accountability Act; FERPA = Family Educational Rights and Privacy Act; TSD = therapist-student direct; TSPM = therapist-student parent mediated; PBST = parent behavioral skills training; ABA = applied behavior analysis; IEP = individualized education program; IBI = intensive behavioral intervention.
Some Parent Responses to the Open-Ended Question “Comments on Services Received”
| Parent | Response |
|---|---|
| Parent A | Thank you “BMI” for the support during this lockdown period. Our child has improved in his sitting tolerance, attention and other areas. Though Direct 1-1 sessions are better than camera sessions, now parents are learning a lot during this time and the child knows and is slowly adapting to virtual learning environment. We are now educated on the child’s communication and behaviour requirements. The role of ABA is understood clearly and helps parents to learn and improve the child’s each and every activity in a scientific and a target oriented methods. Now we know exactly the role of parents in the child’s development. Customised program from “BMI” for every child is evident and the application of ABA science is sure making improvements slowly and steadily for our child. “BMI” has the key for any lockdown problems. Thank you to therapists, trainers and management to ensure consistent support at all the situations. |
| Parent B | The trainers are so punctual and on time for the virtual classes. Initially there were some tech hitches but we were able to overcome all that in a short span and were able to move on with your classes. My son used to wander around and didn’t understand this concept in the beginning but learnt it over time. The trainers have been quite effective, with certain constraints, on how to make the hour effective with my son. Their instructions are clear and my son can follow it. He looks forward to the classes sometimes and is eager. There are only few shortcomings—one of the parent have to be with him all the time, or else he runs and comes out. Still not able to do it all by himself in the class and the trainer. Since me and my husband are working from home too, it becomes quite important for us to take time off to sit with him in the class. If we aren’t around, he just doesn’t sit in the class. |
| Parent C | “BMI” service awesome, it is helping my kid to progress in his language skills and academics. The approach to make my son to understand the concept is amazing. Trainers are putting extra efforts, every day they come up with new examples, stories etc. . . . My son enjoys each session and he will eagerly wait for next session. Thank you “BMI” HRBR team for all your hard work and support. |
| Parent D | Excellent! Like I always say “BMI” is the best. I really appreciate the patience of trainers who are training me. “BMI” has given us an opportunity to understand our kids in more sensible manner. I myself is feeling that confidence in dealing with my son’s issue. May Almighty bless the team of “BMI” with his choicest blessing. |
| Parent E | There are challenges of online session like child’s attention is less, network issues, parents need to be fully involved else session can’t take place. Rest assured I acknowledge the hard work put in by all. |
| Parent F | It was very good. The trainers efforts are highly appreciated. The way they are teaching training is very helpful. Bcoz of the online classes his interactions with others has improved a lot. Thanks.” |
| Parent G | I am extremely pleased and very appreciative about the services provided by “BMI” during this testing times. All queries are professionally and assiduously solved to my utmost satisfaction. |
| Parent H | Excellent initiative by the “BMI” Team. It has been a great help during this period. The trainers, supervisors and clinical director were enthusiastic and supportive. |