Emily McKenzie1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Lucy Matkin1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Luz Sousa Fialho1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Ifeoma Nneka Emelurumonye1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Timea Gintner1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Christiana Ilesanmi1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Beth Jagger1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Shannon Quinney1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Elizabeth Anderson1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Lone Baandrup1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Amrit Kumar Bakhshy1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Alison Brabban1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Tim Coombs1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Christoph U Correll1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Caroline Cupitt1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Anju Devianee Keetharuth1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Dania Nimbe Lima1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Paul McCrone1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Mary Moller1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Cornelis L Mulder1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, David Roe1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Grant Sara1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Farhad Shokraneh1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Jacqueline Sin1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Kristen A Woodberry1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23, Donald Addington1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23. 1. Department of Psychiatry, University of Calgary, Calgary, Canada (McKenzie, Addington). 2. Department of Zoology, University of Oxford, Oxford, United Kingdom (Matkin). 3. International Consortium for Health Outcomes Measurement, London (Sousa Fialho, Emelurumonye, Gintner, Ilesanmi, Jagger, Quinney). 4. Service user, Calgary, Canada (Anderson). 5. Mental Health Centre, Copenhagen (Baandrup). 6. Service user, Pune, India (Bakhshy). 7. Tees, Esk and Wear Valleys National Health Service (NHS) Foundation Trust, Darlington, United Kingdom (Brabban). 8. Australian Mental Health Outcomes and Classification Network, St. Leonards, Australia (Coombs). 9. Department of Psychiatry and Molecular Medicine, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, New York, and. 10. Department of Child and Adolescent Psychiatry, Charité Universitätsmedizin Berlin, Berlin (Correll). 11. South London and Maudsley NHS Foundation Trust, London (Cupitt). 12. School of Health and Related Research, University of Sheffield, Sheffield, United Kingdom (Keetharuth). 13. Department of Biomedical Informatics, Universidad Nacional Autónoma de México, Mexico City (Lima). 14. Institute for Lifecourse Development, University of Greenwich, and King's Health Economics, King's College, London (McCrone). 15. School of Nursing, Pacific Lutheran University, Tacoma, Washington (Moller). 16. Department of Psychiatry, Erasmus Medical Center, University Medical Center, Rotterdam, Netherlands (Mulder). 17. Department of Community Mental Health, University of Haifa, Haifa, Israel (Roe). 18. Northern Clinical School, Faculty of Medicine and Health, University of Sydney, Sydney, and. 19. System Information and Analytics Branch, New South Wales Ministry of Health, St. Leonards, Australia (Sara). 20. Cochrane Schizophrenia Group, London (Shokraneh). 21. City University of London, London (Sin). 22. Center for Psychiatric Research, Maine Medical Center Research Institute, Scarborough, and. 23. Department of Psychiatry, Tufts School of Medicine, Boston (Woodberry).
Abstract
OBJECTIVE: The objective of this project was to develop a set of patient-reported outcome measures for adolescents and adults who meet criteria for a psychotic disorder. METHODS: A research team and an international consensus working group, including service users, clinicians, and researchers, worked together in an iterative process by using a modified Delphi consensus technique that included videoconferencing calls, online surveys, and focus groups. The research team conducted systematic literature searches to identify outcomes, outcome measures, and risk adjustment factors. After identifying outcomes important to service users, the consensus working group selected outcome measures, risk adjustment factors, and the final set of outcome measures. International stakeholder groups consisting of >100 professionals and service users reviewed and commented on the final set. RESULTS: The consensus working group identified four outcome domains: symptoms, recovery, functioning, and treatment. The domains encompassed 14 outcomes of importance to service users. The research team identified 131 measures from the literature. The consensus working group selected nine measures in an outcome set that takes approximately 35 minutes to complete. CONCLUSIONS: A set of patient-reported outcome measures for use in routine clinical practice was identified. The set is free to service users, is available in at least two languages, and reflects outcomes important to users. Clinicians can use the set to improve clinical decision making, and administrators and researchers can use it to learn from comparing program outcomes.
OBJECTIVE: The objective of this project was to develop a set of patient-reported outcome measures for adolescents and adults who meet criteria for a psychotic disorder. METHODS: A research team and an international consensus working group, including service users, clinicians, and researchers, worked together in an iterative process by using a modified Delphi consensus technique that included videoconferencing calls, online surveys, and focus groups. The research team conducted systematic literature searches to identify outcomes, outcome measures, and risk adjustment factors. After identifying outcomes important to service users, the consensus working group selected outcome measures, risk adjustment factors, and the final set of outcome measures. International stakeholder groups consisting of >100 professionals and service users reviewed and commented on the final set. RESULTS: The consensus working group identified four outcome domains: symptoms, recovery, functioning, and treatment. The domains encompassed 14 outcomes of importance to service users. The research team identified 131 measures from the literature. The consensus working group selected nine measures in an outcome set that takes approximately 35 minutes to complete. CONCLUSIONS: A set of patient-reported outcome measures for use in routine clinical practice was identified. The set is free to service users, is available in at least two languages, and reflects outcomes important to users. Clinicians can use the set to improve clinical decision making, and administrators and researchers can use it to learn from comparing program outcomes.
Entities:
Keywords:
Outcome and clinical measurement; Psychiatric research; Psychoses; Scales
Authors: Philip D Harvey; Marta Bosia; Roberto Cavallaro; Oliver D Howes; René S Kahn; Stefan Leucht; Daniel R Müller; Rafael Penadés; Antonio Vita Journal: Schizophr Res Cogn Date: 2022-03-22
Authors: Lone Baandrup; Peter Allerup; Mette Ø Nielsen; Signe W Düring; Kirsten B Bojesen; Stefan Leucht; Silvana Galderisi; Armida Mucci; Paola Bucci; Celso Arango; Covadonga M Díaz-Caneja; Paola Dazzan; Philip McGuire; Arsime Demjaha; Bjørn H Ebdrup; Wolfgang W Fleischhacker; René S Kahn; Birte Y Glenthøj Journal: Acta Psychiatr Scand Date: 2022-04-22 Impact factor: 7.734