Literature DB >> 34330796

Data for sale: trust, confidence and sharing health data with commercial companies.

Mackenzie Graham1.   

Abstract

Powered by 'big health data' and enormous gains in computing power, artificial intelligence and related technologies are already changing the healthcare landscape. Harnessing the potential of these technologies will necessitate partnerships between health institutions and commercial companies, particularly as it relates to sharing health data. The need for commercial companies to be trustworthy users of data has been argued to be critical to the success of this endeavour. I argue that this approach is mistaken. Our interactions with commercial companies need not, and should not, be based on trust. Rather, they should be based on confidence. I begin by elucidating the differences between trust, reliability, and confidence, and argue that trust is not the appropriate attitude to adopt when it comes to sharing data with commercial companies. I argue that what we really should want is confidence in a system of data sharing. I then provide an outline of what a confidence-worthy system of data sharing with commercial companies might look like, and conclude with some remarks about the role of trust within this system. © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY. Published by BMJ.

Keywords:  confidentiality/privacy; databases- genetic; ethics; ethics- research; information technology

Year:  2021        PMID: 34330796     DOI: 10.1136/medethics-2021-107464

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  1 in total

1.  Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents.

Authors:  G Samuel; F Hardcastle; R Broekstra; A Lucassen
Journal:  BMC Med Ethics       Date:  2022-09-21       Impact factor: 2.834

  1 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.