Edine P J van Munster1,2, Hilde P A van der Aa3,4, Peter Verstraten4, Ruth M A van Nispen3. 1. Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands. e.vanmunster@amsterdamumc.nl. 2. Expertise Innovation Knowledge, Robert Coppes Foundation, Vught, The Netherlands. e.vanmunster@amsterdamumc.nl. 3. Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands. 4. Expertise Innovation Knowledge, Robert Coppes Foundation, Vught, The Netherlands.
Abstract
BACKGROUND: Depression and anxiety are highly prevalent, but often unrecognized in adults with vision impairment (VI) or blindness. The purpose of this study was to explore visually impaired and blind adults' views on facilitators and barriers in recognizing and discussing mental health problems. METHODS: Semi-structured interviews, based on the Integrated Model for Change, were conducted with 16 visually impaired or blind adults receiving support from three Dutch low vision service organizations. Interview data was analyzed using the framework approach. RESULTS: Participants perceived their focus on practical support with regard to their VI, lack of mental health literacy, and misattribution of symptoms of depression or anxiety as barriers for recognizing mental health problems. With regard to discussing mental health problems, they perceived difficulties in acknowledging their VI and mental health problems due to feelings of vulnerability and inequality. Participants mentioned that their social support system and healthcare providers (could) facilitate them in recognizing and discussing mental health problems. However, participants thought that healthcare providers currently often lacked the knowledge, skills and attitude to recognize and discuss this topic with their clients. CONCLUSION: Our findings suggest that visually impaired and blind adults may experience several barriers to recognize, acknowledge and discuss mental health. Healthcare providers and social support systems seem essential for them in reducing these barriers. However, there might be a mismatch between the needs of visually impaired and blind adults and healthcare providers' knowledge, skills and attitude. Training healthcare providers may improve detection of depression and anxiety in adults with VI or blindness, and enhance clinician-patient communication on mental health.
BACKGROUND:Depression and anxiety are highly prevalent, but often unrecognized in adults with vision impairment (VI) or blindness. The purpose of this study was to explore visually impaired and blind adults' views on facilitators and barriers in recognizing and discussing mental health problems. METHODS: Semi-structured interviews, based on the Integrated Model for Change, were conducted with 16 visually impaired or blind adults receiving support from three Dutch low vision service organizations. Interview data was analyzed using the framework approach. RESULTS:Participants perceived their focus on practical support with regard to their VI, lack of mental health literacy, and misattribution of symptoms of depression or anxiety as barriers for recognizing mental health problems. With regard to discussing mental health problems, they perceived difficulties in acknowledging their VI and mental health problems due to feelings of vulnerability and inequality. Participants mentioned that their social support system and healthcare providers (could) facilitate them in recognizing and discussing mental health problems. However, participants thought that healthcare providers currently often lacked the knowledge, skills and attitude to recognize and discuss this topic with their clients. CONCLUSION: Our findings suggest that visually impaired and blind adults may experience several barriers to recognize, acknowledge and discuss mental health. Healthcare providers and social support systems seem essential for them in reducing these barriers. However, there might be a mismatch between the needs of visually impaired and blind adults and healthcare providers' knowledge, skills and attitude. Training healthcare providers may improve detection of depression and anxiety in adults with VI or blindness, and enhance clinician-patient communication on mental health.
Authors: Hilde P A van der Aa; Mirke Hoeben; Linda Rainey; Ger H M B van Rens; Hilde L Vreeken; Ruth M A van Nispen Journal: Qual Life Res Date: 2014-11-15 Impact factor: 4.147
Authors: Claire L Nollett; Nathan Bray; Catey Bunce; Robin J Casten; Rhiannon T Edwards; Mark T Hegel; Sarah Janikoun; Sandra E Jumbe; Barbara Ryan; Julia Shearn; Daniel J Smith; Miles Stanford; Wen Xing; Tom H Margrain Journal: Ophthalmology Date: 2015-08-13 Impact factor: 12.079
Authors: Hilde P A van der Aa; Tom H Margrain; Ger H M B van Rens; Martijn W Heymans; Ruth M A van Nispen Journal: Ophthalmic Physiol Opt Date: 2016-09 Impact factor: 3.117
Authors: Hilde P A van der Aa; Hannie C Comijs; Brenda W J H Penninx; Ger H M B van Rens; Ruth M A van Nispen Journal: Invest Ophthalmol Vis Sci Date: 2015-01-20 Impact factor: 4.799
Authors: Ellen B M Elsman; Edine P J van Munster; Femke van Nassau; Peter Verstraten; Ruth M A van Nispen; Hilde P A van der Aa Journal: Transl Vis Sci Technol Date: 2022-01-03 Impact factor: 3.283
Authors: Edine P J van Munster; Hilde P A van der Aa; Peter Verstraten; Martijn W Heymans; Ruth M A van Nispen Journal: BMC Health Serv Res Date: 2022-04-21 Impact factor: 2.908